maybe he just doesnt like brazilian people…haha you can go to jacobs anytime…he will not help you. period
I am Brazilian too, I don’t think there’s any prejudice at all against Brazilians as I have lived in both Canada and USA now and I don’t see how they could possibly be any better than us, lol.
Some of them are friendly actually, whereas some people in Brazil can be pretty arrogant and conceited.
Granted they have some advantages, when it comes to the state of their economy and welfare and politics, but misery, boredom exist here just as it does in Brazil. No country is perfect, no city is perfect, and I think I can say that, having lived in Vancouver, Toronto, Sao Paulo and now New York.
I contacted Dr. Jacobs, first thing he focused on was the payment logistics, so to speak. Asked me if I had insurance, and after my negative response, he asked me if I had the means to pursue at least $100 blood tests.
At that point I started to fantasize that he would drop his fees and would treat me out of compassion or charity, how naive of me, lol.
I’m not sure if I’m willing to pay the price though, doctors in Canada were useless for my EA, and I started to disbelieve all of them altogether.
Maybe these doctors are like mathematicians and our problem is the Riemann Hypothesis of Medicine. No one will solve it anytime soon.
I will keep on self medicating me, getting products online and paying through the nose for them, at times suspecting they are counterfeit, but one day I will solve this equation.
@brazilian- It’s pretty standard in the US for any doc treating remotely to ask the first visit to be in person. The red flags start to shoot up (for most of us) when they start telling you they can diagnose you for this or that from the other side of the world, for example from a clean TRUS.
@jrsousa- The handful of docs who atttempt to treat PFS operate like Jacobs. NYC doctors with his pedigree don’t come cheaply. I’ve seen two PFS docs in person and have done a phone consult with a third. Jacobs was by far the easiest to work with. He spoke to me about my labs one night for over an hour for free. I’ve had other docs demand payment via mailed and cleared check before they will pick up the phone. Expenses should start going down - the first visit is always the most expensive as it’s the longest and they always try to do the most comprehensive labs for the first set.
I definately think there is value in seeing one of the PFS docs but just keep in mind no one is really having any success with treatment right now. At the very least you are contributing to the case studies for the community. I think Jacobs thought at one point he was onto something with the superphysiological dosages of T and still claims a degree of success with that last I heard. Personally for me and from most guys here thou it seems more T is never the answer.
jrsouza…why the hell didnt you contact me then ?? Brazilians shoudl help each other…and then again. GO SE A orthomolecular doctor!!! they are the only ones who help our bodies on a celular level.
Excuse me? Jesus, you’re too young and naive, our culture is different due to age. You cannot demand anybody to be cosy and intimate with you, we haven’t met. Nobody has to help anybody just because they share a nationality. Sorry, I’m over this. Friendships have to be spontaneous and natural, not demanded.
Not being rude though, just saying for you to not be overly informal with a stranger like me, you don’t know me. Besides, people from our nationality can be pretty rude and nasty, and that pisses me off, so I prefer to sense what they are like before I attempt an approach.
I have had this since my mid-20’s, and I don’t believe anybody can fully help me with this. I may be wrong, but I’m skeptical now. I’m not sure if I want to pay thousands of dollars and take a chance with a doctor whose contributions may not be useful for me in the end, and that’s not an unlikely possibility.
Besides, I have periods of full recovery (libido is my main concern), it’s on and off all the time. Though it’s been almost 3 months with mediocre orgasms now.
Why would I believe an orthomolecular doctor can help when people on this site have been repeating that there is no cure to this condition?
I’m not sure if I have the very same PFS as these guys think they have. I can focus and reason pretty well (I work with programming, and that ability has never been affected). I’m only moody (bad mood and cranky almost all the time) and have a sensitive libido that can vanish for the lightest reasons.
I’m really not sure if the symptons I have are all due to Finas, and I don’t know how badly affected I was, if at all.
I just think that it may be finas, since prior to my taking it, I could have great orgasms, and I think I’m still too young to have a poor libido like I have (36yo).
Look I don´t know who you are nor do i care…im feeling better and i can only speak for myself. I feel 100 % mentally and sexually things have been improving greatly latelly…no i dont buy this irreversible thing, its just non sense…anyone who believes that, is also non sense…and yes i can see how much the way you handle yourself is actually helping…#not.
Look i´ve learned SO much about myself these past months and when you actually get to the other side you can see how much stronger and wiser you´ve become…and one of the things i truly have had to learn is …first trust yourself…if i was to listen only to the negative comments i would never ever start doing autohemotherapy or taking supplements…(KEEP IN MIND I WAS SUICIDAL AND STAYED AWAY FROM SOCIETY FAMILY AND FRIENDS FOR ALMOST A YEAR) and i feel great now…seriously. and secondly learn to listen to GOOD advice…i ve made some very good friendships here and everytime some one had something to tell me i would listen and pay close attention to it…so listen to what i have to say.
To me you sound so bitter and not wanting to get helped…so i guess this will be your lonely journey…but im telling you…THERES no need to suffer any longer then you have all ready.
Its actually sad to see this kind of reaction…anyways i wish all of the best ( whatever that means to you).
Braziliandude, your post is nonsense. Do you think this problem would have class action lawsuits or the FDA would add “persistent ED and libido disorders” to Finasteride packaging if it weren’t true?
So the rest of us here suffering ongoing persistent issues years later are simply “making up nonsense”? This isn’t a real problem after all, it’s all psychosomatic? Get a clue.
That’s great, you keep doing that. Both of the points you’ve put forward have already been addressed in the past, or attempted by others, and expecting some vitamins to reverse the effects of androgen deprivation is simply laughable at best.
I have, and most of what you have said is rambling pseudo-science, urging people to believe whatever it is you have to say, like you have the cure for everyone’s problems.
I’m not trying to be negative here, but (IMO) as you know this problem needs to be researched by scientists to better understand what happened to us, before an effective treatment can/will be developed. This drug affects people hormonally and can alter body chemistry in ways we have yet to understand.
Mew, why are you so hellbent on convincing others that this problem is permanent? There have been quite a few recoveries, some that are not even in the recoveries section. How can you explain Ihatepropecia702’s and cgj1’s recent recoveries if its “permanent”?
Not only that, as Xhorndog posted, there are guys who are recovering but not coming back to report because of the negativity of this site. I also think perpetuating such a negative psychology is detrimental. I too was really depressed about what has happened, but sitting and getting depressed was not helping me (if anything made me feel worse). I felt that reading the depressing crap on this site only made things worse. If this site becomes so toxic that people who are doing well or recovering don’t want to come and share their story, then whats the point of it?
I felt like I have improved a little with clomid. Before clomid, I had a estrogen that ranged from 55 to 180 (insane I know) and a test level around 350. After clomid, my test level is 380 but my estrogen is 29 (pretty good), and I can see that bringing down estrogen has helped. I did thyroid tests and my RT3 came back out of range high: 39 on scale of 11-30 (or something). I may be lucky to have found an endocrinologist who really cares to help me out and is interested in this issue, but I’m trying to stay positive and find out what can help.
Oh mew…there we go again. YOU WANT THIS TO BE PERMANENT, you it sooo bad that at this point i hope its permanent for you.
Well just because YOU think something is wrong it doesnt mean its true…and by the fact of countless posts and VALUABLE INFORMATION you have deleted just because it didnt fit" Mew’s information pattern" i can see how much interest you actually have on the issue, when you do this you absolutelly ruin your credibility , thats called Manipulation…and it souldnt happen in a forum like this.
Im a pfs sufferer…however i’ve managed to get to the point where i can say that im 100% mentally stable…and when more people get to the same point as I am, they won"t have to have this forum as their “rock” …because its not solid or helpfull either, and by the number of people that actually comes here everyday and participate you can say this is a flop…where you can get banned if you express your opinion.
I really didn’t want to derail this thread, but it seems inevitable now.
I’m not hellbent on convincing others the problem is permanent, but honestly, if this issue wasn’t one of “persistency” then such warnings wouldn’t have been added to the label, there wouldn’t be lawsuits about the problem, media wouldn’t be talking about the problem in this way etc.
While interesting, a few cases here and there out of 1000s of men worldwide still shows that this problem is far more stubborn and resistant to various forms of treatment than it should be.
Thank you for the concise update, which at least features some measurable outcomes and scientific treatment attempts. If others would share their experiences in a similar fashion, there would probably be less negativity around here, rather than argument based on opinions, theories and beliefs.
Regarding Brazilliandude’s negative and insulting posts…
Yes, you’re so right, I want to be sitting here with a shriveled penis and all the symptoms of hypogonadism for the rest of my life (sarcasm = on).
The fact you would wish PFS on someone, not the least the person who is paying for the very site you are using to post such disgusting comments to, is simply untenable. I’m sorry, but that is crossing the line. If you were truly suffering from this condition, you would never wish it upon your worst enemy.
Thanks for your opinion. Since you have no use for this forum, perhaps you should just leave it be. It’s unfortunate this site needs to exist, but it does serve as a beacon of light and awareness about the issue of persistent Finasteride side effects – something you clearly feel is a waste of time. Since that’s the case, enjoy your progress thus far and carry on living your life. Best of luck.
Mew, just curious, but what have you done or taken since you were affected? I don’t mean to be rude or anything, honestly. I am just asking because cgj1 said he didn’t do anything for years, then tried T4, T3, pregnenalone and recovered in almost two years.
We obviously all agree that PFS is extremely difficult to treat and devastating to our quality of life, but by sharing valuable information and treatment success/failure stories, hopefully we can arrive at a possible treatment/cure. I mean, if cgj1 hadn’t mentioned RT3, I wouldn’t have tested for it and I wouldn’t have (and my doctor wouldn’t have) realized that its so high. I’m not saying this is the cure, but it may help.
And its important to mention, that even treatments like clomid and T3 take time, any may not work with one go. You may need to try numerous times. Of course, it helps to have a good understanding doctor, which is extremely hard to find.
This is off topic, but, I have to say its amazing how hard it is to find a good doctor. I went to a urologist who is considered to be in the top 10% of urologists (according to US News) and he did absolutely nothing to help. He was not even curious to figure what was going on (and he had heard about the problem). He believed me, but just didn’t care. He looked at blood tests that I had done through my endocrinologist (the urologist never ordered tests) and said he couldn’t help me. He said maybe its prostatitis and gave me prosta-Q or whatever its called (combination of natural compounds). I looked at the ingredients and saw it contained saw palmetto, told him that people were reporting the same side effects from using saw palmetto, said “no way”, and looked at me like I was stupid.
Regarding the label change to include “persistent side effects”. Persistent does not have to mean permanent. And by now, Merck (and the FDA) know they cannot hide it any longer.
Dgreene, cgj1’s original posts said he was recovered, however later he said he’s just improved due to medication, I believe he stated approximately 80%. This isn’t a recovery though it’s good news regardless.
Yes I know. He said he was 80% for a while, started to go back down, and now is 100% (at least thats what he claims in a PM he sent me). Either way, fuckfin, dury, and the guy Xhorndog mentioned recovered via thyroid treatment and I have blood test results confirming I have RT3 dominance.
dont get it twisted…i know pfs is real…and it lasts long however IT IS NOT irreversible.
theres a big difference between that ok. and I only come back here to talk to people that are interested and believe me.ciao
Can anyone please tell me the name/contact of a doctor in NY who doesn’t overcharge?
I just want to get some estrogen tests done, and the crappy lobby of the doctors obligate you
to get tests through a doctor.
I have no insurance and I’m willing to pay a max of 150 dollars for a visit.
ps: it’s ridiculous how much more expensive doctors and medications are in the US.
I think it all comes back to the fact that college tuitions are so expensive, so the whole
value chain is affected.
Better yet, can someone please tell me if I can order my own blood tests in NY?
I found this great website that lets you order any blood tests online, but they have no
locations in NY.
I supposed to stupid laws of this state protect the doctors lobby and that’s why you can’t other
these darn tests online.
No wonder NY looks like the Third World.
Mew, the 3rd world state of NY won’t allow you to order these tests without going through an intermediary overpaid doctor.
This website you posted as the others I found don’t have locations in NY.
It feels so good to be in brazil…seems like you cant say the same right hehe
stop gloating, we all know that it’s not true. no place is uniformly better than any other, all have pros and cons.
besides, if i go out at night, i’m not as much at risk as you, hehe.
that i said, i like brazil for the food, the parties, and the people, who are way hotter and more interesting personality wise than in north america.