Mine clearly doesnt. Even on my worst days they didnt believe me. My brain fog was x100 hell. I was barely recognising them. And face changes… some friends of mine noticed my face changes, but family didnt believe again. Its so hard to be alone in your house. Trying to do your responsibilities and acting like normal so difficult. So do your families believe and help you?
i think no one can understant this horrible sıtTUatıon except us .so they dont make effort like us we must work for us i think this site foundation will find cure
In most resects no. They believe I suffer from depression and anxiety and have repeatedly suggested therapy. When I say ‘At the moment nobody can help me’, I am often told I am defeatest in my attitide. I no longer talk about it.
They just think its always psychological, something in my head. And as the doctor said that, they believe its true.
Its just funny, I simply dont talk about that with them anymore, because when I do they look at me like i am kinda crazy, haha
Not particularly, and the longer it goes on the more it reinforces my belief that i’m fighting this alone. I get the feeling that they empathise to a degree, but as long as it’s not them and that counts for friends and family they will never fully understand it. However, everyday it’s still fight francis fight until I cure myself or die trying
People not beleiving is worse then the disease itself.
To be battling so hard and have people assume you are taking it due to being lazy is debilitating
It’s not a widely recognized (and in fact it’s very under-recognized) medical condition. I think that’s the key to why it’s so hard for others to take us seriously. That and we’re men. If women were experiencing something equivalent to this, others would more readily sympathize, there would have been more aggressive research done on it, etc.
But hey remember, there’s a society-wide war on women here in the U.S.
Fucking spare me.
I only mentionned PFS to my new love, and even she has a hard time believing me.
I would never mention this to anyone else. It’s embarrassing enough, and even doctor’s won’t acklowledge it, so what are the chance that anyone elso does.
It’s mind blowing that this pill is still on the market after so long … it’s not an easy thing to discuss, and I think PFSers basically rather hide the sides than expose them to the world.