I have a brain body disconnection, my body feels numb.
The only time it feels better is for about 2 minutes after a warm shower.
I agree that the nerves in the penis have not died. I had insensitivity in my penis for the entire time I was on finasteride, but within a week of quitting, my penis felt great again. Then came the crash, and the numbness returned. This leads me to believe that the nerves are not dead, but something is preventing them from working. There are also times where ejaculating feels much better than other times, etc.
My experience is that the nerves are not dead, no way. If i fix the root cause then everything is fine. When i have experienced recoveries i have gone back to the very high sex drive i used to have i.e. sex anytime, upwards 5 times in a day very easily.
I don’t know about anyone else that has experienced temporary recoveries but the most pronounced sensation was around the prostate area. I can remember in August, i was unbelievably horny. I had an amazing feeling running through my prostate and groin area and would become erect even at the sight of cleavage.
I have no idea how i could go from that to the abysmal state i am usually in. It is beyond me. I seriously think that we might have just completely fucked up our prostates. I never even knew what a prostate was when i was taking finasteride - if i did i probably would of never touched it because i now know how important it is to male health.
men.webmd.com/news/20110309/sexual-side-effects-of-hair-loss-drugs-persist
"Traish thinks that may be because nerves that are maintained by dihydrotestosterone become permanently degraded and can’t be repaired even after men come off the medication."
FYI Dr. Traish is a PHD Molecular Biologist who wrote the paper “Adverse Side Effects of 5α-Reductase Inhibitors Therapy: Persistent Diminished Libido and Erectile Dysfunction and Depression in a Subset of Patients” – onlinelibrary.wiley.com/doi/10.1111/j.1743-6109.2010.02157.x/abstract
according to traish ther’s no cure
but why some have days when sensitivity is back?
could be an inflamation? (at least for some)
However why i don’t see people taking nerve tests instead of hormonal?
imao
Sensory evoked potentials SEP
Somatosensory Evoked Potentials SSEPs
Somatosensory Evoked Potentials pudendal nerve(SEPPNs)
sensory conduction velocity of the dorsal nerve of the penis (SCVDNP)
pudendal nerve terminal motor latencies (PNTMLs)
bulbocavernosus reflex latencies BCRLs
could give a better view of a possible damage
prop,
thanks for listing all the nerves. Very interesting. Have you tested all those nerves.
I have done two tests with two different doctors and all turnde out fine. However, I don’t know if they have tested all those nerves.
One question to Dr. Traish:
“Traish thinks that may be because nerves that are maintained by dihydrotestosterone become permanently degraded and can’t be repaired even after men come off the medication.”
Does anyone know if we can test for nerve damage induced by a lack of DHT? I guess not.
hi keepup
how r u?
i haven’t tested yet but i want to
however before i have to convince my gp to prescribe them.
hard task
here few people getsome of these test,
but came out some damage
problem is, there r helping drugs for nerves ?
just lurking some pudendal nerve forum and a minority have our problems
Do you know what effects those nerves specifically prop? Like what is the precursor to those nerves. I’m just trying to find out what exactly is the cause of the numbness, and than work your way up the line fixing each step.
sorry bryce, i have lack of knowledge
i just opened a 3d on nerve tests because i was wondering why nobody pay a proper attention on some objective data.
here only hormons test r widely discussed, but what about nerve tests?
a fresh approach focused on pelvic floor area is needed
if my gp accord me a visit to an neuro uro, i will gladly share my exp
right, i agree theres multiple factors much more complicated than simply hormones, however, because the penis numbness and flucation is affecting mostly the penis itself, it tells me that the hormones play a large part. like how Mew is talking about DHT being lost, DHT/test have a large part in making nitric oxide, than it moves down the line, etc.
somethign is obviously not being synthesized correctly or being used correctly or something. i;m wondering maybe if it makes more sense to look into how the hormones or synthesized or how they are actually used, but based on people’s DHT/test levels… it seems to be normal… so I’m wondering if we work down the line from DHT/test and up the line from specific whatever it is that actually causes penile numbness, we’ll find the issue where stuff isn’t firing right… i just need to know what to look for… at this point, my best guess is still nitric oxide because numbness starts inside the penis, than works it way out to skin.
i don’t know bryce, but i guess by forum experiences that standard hormonal tests are useless.
imao only hi research test could show the root cause (they r working at), but we have to deal with damaged parts so best for us is target exactly parts involved
this is possible only with objective data from specific area tests
so, if the numbness is a widespread symptom, is necessary to spend more time on nerve tests then tring to cure that parts (if possible)
This is an interesting quote that I don’t think has been discussed in detail (or maybe I missed it). There are drugs that attempt to repair nerve damage, at least from diabetes induced nerve damage. (duloxetine or pregabalin per attached link on trying to repair nerve damage). Has anyone tried to utilize a nerve repair protocol?
ehow.com/how_5523305_repair-nerve-damage.html
If we believe what Dr. Traish theorized to be true then I wonder if the 5 or so scientific studies that are being undertaken are looking into identifing what nerves have been damaged and the possibilty of repair?
Hi prop,
I am worse than ever…
Could you provide a link of the pudendal nerve forum.
Good to hear from you and thanks for the input regarding nerves. Hope you cope somehow.
BadLuck,
very good idea to try a nerve repair protocol. So far I have not heared of a person here trying it. We should follow that path!
This is the million dollar question as far as I’m concerned… and it’s my chief concern right now. I’ve trawled the interwebs on many a Saturday night trying to crack this nut. Never thought I’d ever have to spend so much time reading about male sexuality but I guess this is one of the many joys of PFS 
Here’s what I’ve come up with so far (I suspect none of this will really be news to you guys); There are a few potential angles to explore in terms of finding a solution. Hormonally the consensus among the dudes at sites like AnabolicMinds etc seems to be that penile sensitivity is about tweaking E2 and prolactin (downwards) in most cases and/or increasing test (rarely). Apparently Histamine is also crucial to the “sensitivity” equation and some guys have found success by using L-Histadine (a Histamine precursor). Mechanically, increasing bloodflow is important (PDE5 inhibitors and/or Arganine work well here). A word of caution, Arganine and Histamine run along the same pathway and have a relationship akin to Dopamine and Serotonin so you need to be cognizant of this if you plan on using both simultaneously. From a neurotransmitter standpoint I’ve read that increasing Dopamine (via supps, exercise and/or pharmaceuticals) may be important… as those who have used SSRIs and have symptoms similar to ours can attest to.
Finally, and this is simply speculation on my part, I think some sort of inflammation might be at play here. One of the most bizarre things about this problem (in my own experience) is the appearance of new veins and one in particular at the top of my penis which starts at the base and looks quite angry when erect. More and more I’m feeling like something mechanical is going on here. Or more likely some unfortunate combination of mechanical-prostate-inflammation/hormonal/neuro issues. For me at least this whole disaster began with one painful ejaculation, after which my nads were dead. I’m now up to something like 30% sensitivity. But the reason I feel like this might be rooted in something mechanical is that I often find that my ejaculations feel strained, like something at some place crucial to the sexual experience is literally “pinched” off. It’s a very difficult feeling to describe. I’m also experiencing a bit of persistent discomfort in my nether-regions, along with a pretty constant need to pee So I have to leave open the possibility that the root of my issue may be some kind of CPPS, Chronic Prostatitis etc where inflammation and tightness are at the core of the problem.
I don’t even want to consider nerve entrapment. That’s too depressing… I’ll work my way through that stuff once I wade through the potential remedies above.
Anyways… sorry for the rambling post. I hope it helps someone somehow lol. Bryce I’m with you dude, I’ve read alot on penile sensitivity and it’s kind of silly how little I understand the processes/physiology that accounts for penile sensation. Then again I’ve been more focused on looking for solutions as opposed to poring over physiological resources… might need to reassess how I’m approaching this. More Saturday nights dedicated to male penises? YES! 
Haha… booooooo.
YES!
In my mind i always focus on my horror crash, the point at which i was bombarded with a number of very severe symptoms. However, weeks/ a month before this crash, sensitivity in my penis and slightly lowered libido and erection consistency was a problem looking back. I remember i masturbated once and it was rather painful. I looked down and saw a load of red streaks down the tip of my penis. It was the strangest thing. I will be damned if that doesn’t have something to do with this. After that happened i went off on a holiday that was fueled by outrageous amounts of alcohol, drugs and general unhealthiness. Probably not the best environment for recovery and healing?
I have had SOME clues. I have mentioned them before but i will mention them again.
- Temporary recovery by going back on finasteride. This must have been from the testosterone boost right? anyway, it wasn’t just my libido and penis that was up but my ejaculations were also very powerful and they shot out white, thick ejaculate. I slept properly and woke up with morning erections (sleep disturbances are very common with low test/ andropause) and my flaccid penis was the biggest i had seen it in my life. If this recovery was from higher testosterone levels then it shows that hormones can cause these symptoms that we suspect are mechanical. My morning erections were not as sensitive so maybe something mechanical was to blame for that.
- Temporary recovery on holiday in a hot climate, getting LOTS of sun and also applying very, very hot water all over my perineum and groin area for 30 minutes daily. This is a tough one because i don’t know if these hot showers applied to my perineum were doing anything. I am sure they were because i noticed that from the first one my ejaculate became thicker and healthier looking, as i kept doing them the ejaculate improved until it was 100% normal and i was feeling like a sexual god all round. Even though at this point i may be forgetting what pre finasteride was like. This must have been as good, if not better, we are looking at ejaculations upwards of 10 times a day here. Each one of them absolutely phenomenal.
I don’t suppose anyone fancies trying the hot showers to the groin/ perineum? very hot salt baths would be a good alternative. Twice daily. It’s considerably cheaper and easier than flying over to Greece and getting fingered by an old man every day.
I really want to take something from these periods of normality that i have experienced. Any clues are good!
i read one but is in italian
in english i found this
pudendalhope.info/node/9
i’m just looking inside, the majority of symptoms looks different, but
are also present some of ours
Possible symptoms include burning, numbness, twisting or pinching, abnormal temperature sensations, hot poker sensation, constipation, pain and straining with bowel movements, straining or burning when urinating, painful intercourse, and sexual dysfunction – persistent genital arousal disorder (genital arousal without desire) or the opposite problem - loss of sensation.
blasè seems have a good knowledge about this approach
i’m looking forward in his next replies
viewtopic.php?f=26&t=5788
Thanks for this response bluecloud! I literally laughed out loud at the bolded haha 
So you recovered temporarily after using propecia again? That’s fascinating. How long did this last? It’s certainly true that hormonal issues could be at the root of problems that appear mechanical to us. Among other things. This guy on Dr. Crisler’s board is convinced that amping up our metabolic rate would kickstart
our system. There are so many angles to this problem. Your observations on heat applied to the perineum is also interesting… I don’t know what to make of it but if it brings relief then it’s something worth trying!
My goal is to work through some of these angles in a systematic way starting with the things I have most control over.
Anyways… take care dude.
LMAO 
In answer, The prostate.
cleanprostate.com/nervesphoto.htm
People who have BPH have erectile dysfunction however much their testosterone is.
Prostatectomy results in loss of penile sensitivity and erectile dysfunction.
My prostate feels swollen. It feels as if that whole area is sort of clogged/ blocked up.