I know of at least 4 doctors here in Ireland that recognise PFS and I’m sure there’s lots in other countries. I’m wondering would it be beneficial for us to have these doctors sign their signatures recognising this condition and putting it forth to those who are responsible for recognising diseases along with the studies. There should be enough evidence to put forth to get recognition for PFS as a disease instead of being labelled delusional.
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Doctors who recognise PFS are already listed on the PFS foundations website.
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