Cdnuts took eight years to recover. His protocol has been here for a year or so. You need to be recovered for four months to post in the recovery section. At least three people have shown improvements from following his protocol. One guy claims to be almost normal.
I would’ve quoted bizzbee33 but the dude is a douche.
I’ve also got pm’s from people who were so fucked up they couldn’t form sentences at their worst and they’re slowly getting better.
It’s enough to keep me hopeful and I hope it’s enough to keep some other spirits up.
While there isn’t a word for it, you are the opposite of a hypochondriac - somebody who thinks everything they try is a miraculous cure or a golden bullet. A bunch of guys have responses to hormones that resemble androgen insensitivity. Trying this treatments, for many guys, will barely have a response. I don’t think anybody here is telling people NOT to try TRT, they might be lucky and simply facing hypogonadism.
You clearly aren’t banned, as you would not have been able to post. While I am taking a bit of a guess, you probably haven’t been admonished for suggesting cures but instead for telling everybody you are a miracle healer. On many occasions you have basically promoted yourself as the only person experienced enough/smart enough/unique enough to solve PFS.
Your willingness to experiment with these less frequently tried treatments is helpful to all of us, but you kind of waste the value by rapidly jumping to conclusions before actually figuring out what works. You are far from the first person here to do this kind of thing, but it’s really annoying to those of us who have been living with this for years and had limited benefit after trying hormones, pills, injections, supplements and the like.
Justquitdut- you are absolutely right!!! ThiS place has become. Place to bitch how bad your situation is, and those that bitch say they are the absolute worst affected. I am getting measurably slowly better but I am willing to try HrT, once the studies show inconclusive. Keep posting justquit
Finatruth, if you want me to keep posting please message mew and tell him that, my supporters never message him and all he gets are complaints. I would like to stay and try to share my experiences with others here. I am now into dht with very good results, the lies here that dht does not work are not true, high doses will make you feel crappy, the key is low doses and with testosterone, I will be posting my experiences with that soon.
Being more specific on cause/effect would help. The fallout from this is so huge for some of us. For example if your protocol is only helping erections, that ain’t going to help everyone. If it brings back sensivity and libito that might help.
I am also better in some ways and worse in others. I could barely follow conversations at first. In large crowded areas I felt like I couldn’t keep track of anything. My anxity was off the charts, that improved. Vision is better, not as dry and inflamed, but still blurry and light sensative. Weight loss continues, no desire to eat, but I can. Digestion is a bit better. Memory is shit, but not as bad as it was. I actually slept pretty good last night without any “aids”. My junk and prostate area hurt randomly instead of all the time.
In whole I feel like a light that had a dimmer switch someone turned way down. I can still do everything for the most part. It’s just muted. Example full maintainable erection but I have to really concentrate on being in the moment. Just flat across to board.
It didn’t creep up on me after years of use. It happened quickly from just a few days of use.
I was on fin for 13 years and started Avodart for a week, that's what did me in, I suffer all the side effects as everyone else, when I say I have PFS in remission, I mean all the sides, I have it about 80% in remission with my protocol currently. I am experimenting though, I have been fooled by PFS before, so I am waiting, but I have come to a point where I have figured out how to maintain myself at 80% all the time, it just takes a lot of different injections which is not practical.
However, if you guys found a way to remain at 80%, you would do what it took, I am currently running experiments with DHT while on HRT. So far so good, I really didn't want to have to go the route of replacing DHT, but I hit the end of my rode with inducing my own. I was able to get by but my body was aromatizing too much testosterone and running out of 5AR enzymes, I could have got by like that but I was getting too much water retention and didn't want to start taking extra arimidex or Nolvadex.
I will tell you guys something VERY interesting that I have noticed about DHT, the feeling of “Calm,” I must have been pumped full of such out of control estrogen levels for the past 5 to 6 months that I got used to it. The DHT seems to put me to a state of “calm,” I don’t want to post protocols anymore till I have one that I know consistently works. I really liked the idea of inducing my own 5AR and thus reducing my own test to DHT, but there seems to be a limit on how much 5AR (in my opinion) that I can produce.
I have come a long way in the past 5 to 6 months, but I have no idea if it is from recovering or improved protocols, when I talk about improvement, I don’t mean just sexual, I have had sexual function throughout this whole ordeal. It has been a shadow of what it was before PFS, but when I got my hormones working correctly it was enhanced. The problem with PFS is consistency and that is what I am working on. If I can find a protocol that will at least keep everything normal long term, that would be useful for people who want that option, and I am close.
I don’t know if this condition is curable, the people that recovered, would they respond normally to testosterone? That would be the only way to know for sure. Simultaneously while I work on this I have an appointment at the Cleveland clinic (supposed to be the best in the world bla bla). I think it will be one of my last attempts to get help from a doctor, my hope is that if this doctor cannot help me, she can access other doctors there, she will have more resources to help. Whatever I learn or figure out I will share with the forum, the more we try, and the more we share, the better we will help each other out.
I do think though that eventually the body will recover, but the theory that taking nothing will help that I disagree with, so far the people who have taken nothing have not recovered. The recovery stories are usually from people who took hormones of some sort, and getting myself in remission is not recovery, but it may lead to it.
Finatruth u are going to try hrt?? I thought you were getting better without. U claim significant improvements constantly but are now willing to try pumping hormones into yourself…odd. perhaps you are not improving after all if that is the case?
Justquitdut I thought you were leaving due to constant spamming?
I don't want to leave, I have come to like this forum and the people here, otherwise with pfs you can feel very much alone. Also, I am conducting lots of experiments and having success with protocols that I will post when I confirm long term results. I never was spamming, I just posted a lot because I didn't understand how a forum worked, also didn't know anyone was bothered by it. I mean if Mew bans me then I have no choice, but I'm trying to contribute and help,not many people out there with pfs conducting experiments with hormones as I am.
No because in reality the drug has been since 1997? So within an 18 year time span there must’ve been countless cases like ours and STILL to this day nothing has been achieved or accomplished. They should at least do the decent thing and ban the drug. Life isn’t fair but it’s one of those messed up things
I see, so all the countless stories of full recoveries (only a fraction of which appear on this website) are totally bunk. That’s right, there is no hope. Life’s not fair for people like you I suppose because a cure is supposed to just land in your lap in a nice packaged bundle. You’re not supposed to do what it takes on your own to try to extricate yourself from this mess. You must be one of the 6/7 people who will never recover. Enjoy the rest of your PFS bogged, miserable, worthless life. I’m sure you’re looking forward to another 60 or so years of living like a zombie.
I say to all here that this thread is ridiculous on its premise. The question of whether or not PFS is curable is not really a question anymore. It is possible, but for a few 1/7 people who have the extreme determination to make it happen. I’m sitting here at 70% recovery as just one example of many (many not even reported on this website of which I have found elsewhere). Two years ago I thought I would be no better or worse if I amputated my dick. Now I have trouble trying to aim it in the toilet just to pee in the mornings due to such strong arousal. I also find life enjoyable again. Too bad danny boy here will probably never know what that feels like.
Nope, I just reach into YOUR ass, reach real deep, as far as I can go and out come two numbers…a seven…and…wait wait wait…here comes a zero!! Oh crap, I seem to have dirtied my hand a little. Here, let me wipe some of this on your face. There we go. Look! You’re a sh$*face! I don’t have the f#$king time to layout a scale from 0 to 100 on what progress is. And it’s not just a feeling, there are physical parameters involved that indicate progress, i.e. erection strength, frequency, duration, fatigue, muscle-wasting, watery semen or ejaculate and semen volume, body hair growth, skin oiliness, mental fog, anhedonia, sleep quality, etc… etc… etc… All of these have improved for me to a degree where I feel that I am about 60-70% of what I USED to be before I took the drug. Get it now d%&ba$$?
Don’t know what’s eating you up but your vile tone needs adjusting, good for you, you may be lucky enough to see improvements. Many others don’t with time and effort. In one sense we should not need a cure because supposedly such sides would go away after discontinuation. Get lost you mole big chat behind a computer screen.
Yeah, maybe I should get lost. Now is a good time. But you can linger here and wallow and weep like the downbeat no-good bum you really are. What’s vile is YOUR loser attitude and your spreading of fecal-laced quotes like the one about PFS not being curable.
[quote=“bizzbee333”]
Yeah, maybe I should get lost. Now is a good time. But you can linger here and wallow and weep like the downbeat no-good bum you really are. What’s vile is YOUR loser attitude and your spreading of fecal-laced quotes like the one about PFS not being curable.
Could do but then most of us have got a life, i’m sorry that your so absent in that department course you could always play with your plastic dick. Fuck off you cunt trolls like you would get buried in person so climb back into your cave. Good-day
At least I have a dick. I don’t think you would bury me in person, I think once you took a look at me your little belly-button sized shriveled dick would would shrivel up even more until it was gone Danny-boy.
Oh I’m not just yet ready to call it a day Danny-Boy, you’ll take your whipping whether you like it or not. Your opinion lacks any credibility whatsoever and your poisonous defeatism along with that of a number of other nitwits on this forum is infecting the many other pliant minds into thinking this is a permanent thing. Ooooohhhhhhh Danny boooyyyyyy tis you… tis you must go and I must bide.
My opinion lacks credibility and your view holds more weight than anyone else because? My opinion is actually based on articles, doctors, reports and day to day experiences (I’m sure there must be a brain left up there regardless DO RESEARCH) that’s not to say your symptoms may improve over time or lessen? That’s not the same as a cure but i’m sure we’d all settle for it. That’s not only dependent on what we do exercises, diet etc but most importantly how our bodies respond to such things we are all different in case you didn’t know. I see your an optimist credit to you, don’t try and shut people down for having views that are different to yours or judge people you’ve never fucking met; who do you think you are.
Dude, Bizbee is only 60-70% after supposedly working his ass off. He only got his T level to ~500’s. His recovery has more to do with his idiotic narcissistic personality and not accepting reality. Exercise and diet are good for all humans and will no doubt make you feel better. Its just not the key to solving whatever this is. Nor is jacking your T levels up by any means. Not to say that it will not have some benefits but its just not a solution.