Of course they do…its all about the Money…
And can someone pleas tell me the Difference between Ratpoison and Propecia??
I bet nobody can
Rat poison does not make you suicidal, rat poison does not shrink your dick, rat poison is safer than propecia.
I would rather eat rat poison than propecia.
I think it IS curable. There is certainly hope. Our(well some of us) androgen receptors are shut down. Not responding to even insane doses of testosterone or other hormones. Researchers need to analyze our receptors and develop a hormone that WILL illicit a response out of them. It’s that simple I think. Similar to Androgen Insensitivity syndrome which there is no cure for currently. We just need specific drugs tailored to our bodies.
Its not curable…I have been clinically diagnosed with Low Free T. A few weeks/about a month back I wrote a post on here asking if anyone has actually ever recovered from Propecia induced low free t. I had a few replies none of which pointed to any recoveries. Checked the site, found none. I am not going to recover.
I have decided that our case is hopeless and I for one plan to just end it. I am just trying to figure out how to kill myself over the next little while, and while I am chicken shit I am confident I will be able to do it. In Canada guns are not easy to come by so the easiest most obvious way to kill myself is not going to be as easy as it should be. So far I’ve been debating between parking in front of a train (there is one near my house) or carbon monoxide poisoning by running my car in the garage.
The studies that they are doing won’t come up with any cure. And nothing currently exists that can cure us. Just look at the recoveries section, 23 lousy recoveries with thousands of members? Really? And most of them didn’t have any actual blood tests showing low t in the first place so they probably just slowly recovered naturally or they were bullshitting.
I came on this site hoping for answers, instead I’ve found nothing but prophecies of doom, ridiculous theories, suggestions that don’t work, and men fighting eachother over claimed recoveries and theories. I’m done with it.
We aren’t getting better. The studies aren’t going to help us. Want to know why? Because no one cares about our problem. We are an unlucky and tiny minority without the power to get any real attention on the issue. If any of you are religious, it is because God fucked us over for some reason. Anyways, I do plan to end it but if I don’t I’ll be sure to stop in and bitch some more, that’s all this forum is used for anyways.
If you don’t hear from me again, no I didn’t recover, if I recover I plan to come on here and tell everyone. So if you don’t hear from me again its because I was finally able to get some balls (the ones Merck left me with unfortunately) and off myself.
Cheers,
Brad
I agree. I’d rather have suffered from eating rat poison. At least the medical community would know how to treat it and I could only blame myself instead of facing such a betrayal of trust in Big Pharma and the FDA.
This experience has confirmed the evil in this world. There is no such thing as a company that cares for people.
Have you tried taking testosterone? Low free T is extremely treatable. The question is though, do you respond to it?
what about stem cells?
Low free T is one hundred percent curable in the regard that you can go on testosterone and or armidex and up your T and free T levels.
The question is will doing so help your symptoms?
Simply fixing your low free T should be the least of your worries. That’s child’s play.
Having low free T and low T is common with people with PFS. But something else more complicated is at play here
first mounths i have hope with reading recoveries but now im full of hopeless imo recoveries section must delete becasuse this are not recovery if recovery there why all we in here delete that admistirator my going to less hopeless study wont cure tyeh make sicene only they aim is how we dameged they cant cure they have no miracle stick to cure our all andogen receptors how can we cure how can a blind man see
I have just come back from spending one week in Barcelona, Spain speaking to clubs about Rick Simpson Oil and PFS. The reason for my journey begins with Low T.
Firstly, I want to briefly address this issue of Low T. It’s my understanding that when a PFS sufferer takes testosterone they don’t feel any better despite raising their T level. Why is this? It’s the androgen receptors job to absorb or grab hold of the T in our blood but what if these receptors are damaged or desensitized. I know from taking T that I was able to partially elevate my PFS symptoms but only when my T levels went over 40nmol/L. But those levels are too dangerous to maintain and will likely thicken my blood and lead to a heart attack at some point. So that’s not an option for me and shouldn’t be for anyone else here. Our T range is between 8-34nmol/L with 20nmol/L being the right level for heart, muscle and bone health. Where is this going, well read on?
There is a drug called HCG, which is a fertility drug. It replaces the hormone LH and it’s job is the go directly to the Leydigg Cells in the testicles in order to produce T. Bodybuilders will be well versed with HCG as they use it with a steroid cycle. The major side effect of HCG is that it can permanently desensitize the Leydigg Cells in the testicles. When that happens you end up with Low T and have to take T replacement therapy for the rest of your life. Desensitization of the Leydigg Cells is not reversible and there is no know treatment. The only thing I can think of that might repair the cells is stem cell research. India is the cheapest place I know for stem cell research and I know patients that have gone to India and paid over £20k or $30K for treatment with no guarantee of success.
The point I’m making here is that if our androgen cells have been desensitized by Propecia in the same way as HCG can affect the Leydigg Cells then there is no known cure. Being an ex-bodybuilder I’ve come across a number of guys who have damaged their Leydigg Cells with HCG so I speak with some experience here.
While I fully commend the research being done I am not hopeful that it will lead to a cure anytime soon. My main reason is because I feel that Propecia has caused physical damage to the body that will require something special to repair it. I would love to be wrong on this in so many ways but ignorance is no friend of ours right now.
In PFS we are dealing with a highly complicated problem and I would not rest on any study being done. Right now the Baylor and Co studies give us hope but these are very early studies in the fight and is it realistic hope? What happens if they produce nothing of real value. Hope is what keeps us fighting but what happens when you take it away?
After reading the recovery stories of PFS suffers who have used Rick Simpson Oil (cannabis oil) to recover from this disease I chose to research the subject. I watched Run from the Cure on youtube and joined different cannabis groups on Facebook. Cannabis Oil Success Stories (facebook.com/groups/416702921703509/) is one of the biggest groups out there. Try reading about worried parents who are desperately trying to get their cancer stricken children RSO or move to the state of Colorado in a bid to save their child’s life. It’s heartbreaking stuff and make’s you realize your not alone with pain and suffering. I also contacted folks who have cured their own cancer using cannabis oil and followed patient blogs on the Internet and youtube. Right now I think cannabis oil is our only chance of a cure.
Cannabis is the one thing that scares the pharmaceutical companies and they went through extraordinary lengths to ensure those of us in the Western world are denied this drug. In the US alone, the cancer industry is worth $160 Billion Dollars, that puts it up there with Arms and Weapons Manufacture. So you can see the huge motivation to make sure cannabis oil stays banned as a medical treatment. But cannabis oil doesn’t just cure cancer it can cure or reduce just about every major disease known to man. Cannabis oil is the most powerful treatment on the planet for major diseases, nothing else comes close and Big Pharma knows it. So far, Big Pharma has not found a way to patent cannabis into one of its profiting making cancer drugs but it’s not without trying. Cancer charities have also funded research into synthetic cannabis treatments but when Rick Simpson when to them will letters from Dr’s and patients confirming the oil had cured cancer they completely ignored him. And yes Big Pharma makes donations to cancer charities, what a surprise! In fact I just read in the newspaper the other day how a family raised money for a cancer charity after their young daughter died from the disease. If only people knew how these corrupt charities are ignoring a cure because Big Pharma can’t turn it into a drug that would save lives. The biggest cancer charity in the UK has £55million worth of donations in the bank so what’s their excuse, more leaflets and posters about cancer that do nothing.
If you are thinking about taking your own life because of PFS and you have the chance to be treated with RSO then what are you waiting for? If someone with terminal cancer who has been given 6 months to live by Dr’s can get off their arse and take RSO then what is your excuse?
So like I said I have just spent one week in Barcelona, Spain speaking to cannabis clubs about RSO. I got on a plane and flew to another country not for a holiday, but to spend my time walking up and down busy streets in baking hot weather, trying to find clubs and learn about the cannabis movement in Spain. It was sometimes a lonely and depressing experience going past the many people enjoying themselves on holiday, why I’m there purely because of disease and a desire to find a cure.
Seeing happy families, friends and couples in love, experiences that have been ruined because of this crap hit home once again. It made me realize how far I’d fallen in life. But you have to get out of the house to really see it for yourself. Being home alone and closing yourself off to the outside world can protect us from some of the emotional pain of PFS but it can also lull you into a false sense of security. In any case, I realized in those moments that it was going to take a huge effort in order to beat this disease and be among the people I saw enjoying living life free from disease and suffering.
What I saw and felt also made me want to call it a day, admit defeat and swallow a bottle of pills. I asked myself how or where I was going to find this ‘big effort’ to cure my disease because it sure wasn’t coming from my Dr. The only thing that I could think of at the time was Rick Simpson Oil, the one thing that’s taken on the toughest diseases in the world and won. Don’t be fooled into thinking it’s an easy treatment because it’s not and you will have to give up 3 months of your life to do it just like being admitted to hospital. It’s a dammed tough treatment but we have a dammed tough disease that’s stumped a huge list of Dr’s so far. It will take a lot more than going to the gym, fasting and eating salads to beat what we have I’m convinced of that.
I will post my experience with the cannabis clubs on the forum under the post Cannabis Oil – The cure for everything viewtopic.php?f=6&t=8826&p=87329#p87329
I tried Rick Simpson Oil (legally) on two occasions while I was in Barcelona and I got my ass handed to me both times. I also slept for 8 hours both evenings, something that’s been impossible until now, even on sleeping pills or taking the latest natural supplement from I-herb I have only managed 4-5 hours of broken sleep. I don’t know scientifically what the oil did to my body but it took control after one dose and made me sleep. The oil didn’t give a fuck about PFS and showed it no respect.
My current testosterone level dropped this year to 4 nmol/L, I am critically low and have been given roughly 10 years to live due to my age. I have been chronically ill for 8 years and my biggest regret over the past years is waiting on Dr’s to help me. Chronic disease will make you physically and mentally weaker over time; it will do the job slowly but make no mistake it will do the job, so you have to fight while you have the strength to do so. Don’t sit on you arse thinking your ok because your T level is say 8-12nmol/L. Mine used to be at these levels and now it’s almost gone.
Also remember something, we are not here by our own hand and I don’t believe for single second that God is making me suffer for some unknown reason, I have lived a good, honest life and do not deserve to suffer like this. Our fate has been handed to us by a corrupt corporation who produced a poisonous drug that rakes in about $400million dollars a year. While we sit here with our lives in ruins, shareholders and senior management from that corrupt corporation are living a first class lifestyle in their big homes with their families and every luxury affordable to them. Lawsuits will merely put a dent in their profits and their high priced lawyers will know doubt push down any future compensation payments which I’m certain will not reflect a life ruined by PFS. You can either sit here and die quietly (which is what they want) or you can make a noise.
Good luck.
I wonder is there any way to find if our androgen receptor damaged?
Great question. If it’s a medical condition then their should be some sort of test. Dr Crisler talked about the androgen receptors being shut down by Propecia and tried high amounts of testosterone on patients in a attempt to shock the receptors and wake them up. This method has not worked and I wouldn’t recommend anybody spending $000’s to go an see him.
Speak for yourself.
How can someone say this is uncurable…there HAS BEEN cures here.
In my opinion most of our problems are a domino effect due to the blockage of allopregnanolone conversion. I think that after finasteride we do not come back to the levels of allo we used to secrete before. Allo has an effect on the central nervous system, which affects all the body. But Allo has an effect on hormones too, because the lack of it is able to down regulate the HPT axis.
RSO, You can’t fix stupid.
You see what you all have done? He hasn’t even considered hrt because he is convinced it won’t work, low test is easily treatable and common. I never bothered to try dht replacement because I listened to all of you naysayers! Now I’m on it and 90% recovered consistently, it works in low doses with testosterone. You guys are a bunch of hypocondriacs, afraid of everything, your own shadows. Your fear is ultimately self defeating and causing harm to others. I welcome my ban from this forum, I really do. I will take no part in such a macabre negative place that leaves guys with no hope but suicide. That’s what you all are going to do right? No thanks, I’ll stay at solvepfs and help others recover. After reading that post it was the last straw, even without dht low doses of testosterone work on pfs sufferers.
Shame on you guys for not making this a positive and welcoming place. Many of you haven’t even tried testosterone and for me touting it I’m being banned. You guys spend most of your time with conspiracy theories about secret Merck agents infiltrating this forum. When you aren’t doing that you are telling people how bad everything is for you. You guys who are so anti hormones are worse than Merck because normally a guy with low test would go to a doctor and be treated. Now many of them are coming on here resding that there is no hope and doing themselves in.
Fucking Hilarious
Who? Chi,CDNUTS… Piss off 
I have an insane amount of respect for you, THETIGERSHULL but it’s not fair to take away the hope those two give this forum. Chi was a bit of a bellend towards the end of his thread but he clearly had what we had.
I’ve read through pretty much all of cdnuts posts all the way back to 2008 and the man was destroyed. Now he isn’t. You can literally see the slow, painful progression. They didn’t get “cured” they fought this shit at every turn and eventually they won. Maybe it was natural recovery but I think they got themselves so damned healthy their bodies literally had nothing else to work on but the pfs.
For the record, if you know where to look you can find cdnuts on different forums, happily living his life.
I’ll leave you guys with a cdnuts quote from a different forum I dug up, warning people away from propecia.
"The sides for alot of guys sneak up on them. It starts out as just not feeling yourself…you think you’re having an off day, or that you just didn’t get enough sleep, etc. You slowly lose interest in sex. You slowly start to get a creeping anxiety that was never there before, your personality changes. You become more childlike. I liken it to sand through an hour glass. Little by little, you start losing yourself. Until weeks or months, or depending on your make up, years go by and you’re like WTF. You become a shadow of your former self. A shell of a man.
Not like you know me from any other dude, but take my advice and stay away from that fuckin poison. I shared that propecia site with the PP group a few years back (Thanks FPR for continuing to spread the word). I’m currently in litigation as a member of a class action lawsuit against Merck.
You really want to read some horror stories, my user name is the same on that site. I’m no longer an active member on those forums because after 8 long, debilitating and humiliating years, I’m back to 100%. It was a friggin horror. Wouldn’t wish it on my worst enemy.
Losing PP really hit me hard because it was with that companies products and the help from the knowledgeable dudes on that site that I slowly recovered myself. Not saying it wouldn’t have happened with other products, just that I found PP first and went from there. I had many long convo’s with Eric going back to 08 and 09 that started my recovery process.
Bottom line, poison is poison no matter how small the dose. Just do yourself a favor and stay away. Shaving my head was one of the most freeing things I’ve ever done." Cdnuts, April 2013
He has considered HRT. He can’t find a doctor that will prescribe it. That and there is a possibility he will not respond. Still may be worth the risk for him at this point. There have been more people here that have not responded to HRT then have. My T was trending up but I felt no better. The majority of my issues seem to be CNS related. That and he is correct. Only 1 guy everyone tries to replicate, CDnuts. No one else claimed 100% cure from following his protocol.