Hey all,
I want an honest answer here. I’m 8 months in, and I was wondering if I should expect to get more and more symtoms. The way i think of it, im like a car that’s low on oil. I may be able to run on the existing oil for some time, but eventually things in the engine will start to break down. Is this what I have to look forward to?
it’s tough to say. i’ve seen both sides of the spectrum.
initially when i got this condition my receptor sensitivity was extremely good, although not 100%. but i’ve made myself so much worse by trying to raise ligand levels akin to PFS where people try to raise androgens. i am now light years worse than i initially was due trying to fix myself. huge emphasis on light years.
it’s highly individual. this is what i wanted to personally speak to you about.
What made you worse?
Does anyone think that in the worst cases this can be neurodegenerative?
it’s stated in my posts, i don’t want hijack this thread, especially because i don’t have PFS.