[b]Is anyone looking into getting an MRI to diagnose demyelination per Alex Miller’s theory? Or the EMG / SSEP / Doppler testing outlined by Blase’s “Pudendal Neuropathies” thread?
Is anyone taking any steps to counteract demeylination through diet or supplements or drugs? Any experiences with Magnesium Sulfate as suggested by Alex Miller?[/b]
I had an MRI and it showed up negative its all cool… started on my neck all the way down…should i get a brain mri?
What strength MRI? 1 Tesla? 2? 3?
If you have brain (cognitive) side effects, then get a brain MRI if available to you.
From what I’ve read at pudendalhope.org, some patients with pudendal nerve entrapment (not neuropathy like PFSers have been diagnosed with), can come back with false negative tests based on the software/imaging settings and interpretation of the MRI. This is something to consider and research further.
What does all this mean? Even if we have neuropathy is there a way of fixing it? How could 5AR cause nerve entrapment?
Don’t know if anyone has nerve entrapment (more associated with pain), but search the forum for the keywords in the title of this thread + Alex Miller and you will read on some possibilities like neurosteroid inhibition (allopregnanolone) which is neuro-protective. There has been one report of brain demyelination and 13 reports of pudendal neuropathy in PFSers.
It’s unclear what the nature of the persistence of inflammation is. Treatment ideas range from ant-inflammatory medicines / diet / supplements to estrogen control to nerve regenerating meds to physical therapy (see Moonman’s Pelvic Floor thread relating to pelvic floor disorders / muscle-nerves being intertwined + alpha blockers).
The problem is neurological and hormonal.
we have to wait is induced.
They may try different mechanisms.
Are you saying that the brain is now deprived of allopregnanalone or was deprived during crash resulting in neurological damage? The treatments you have suggested have already been attempted by various members have they not? How do you get tested for PN? MRI?
If its brain…cerebrolysin…will take care of it…cant fuking wait to go the USA and get mine
You’re going in feb right?
Yes…I will go with my family in Feb…however I would like to go sooner …so maybe I’ll book a flight to atlanta in december or early january./
costums in brazil doesnt work like in the usa…even the fucking chinese herbs weren’t allowed. SUCH bull shit.
and please buy it from that website i posted here once…well at least we know its trustable.
this is the one my friend’s dad (neurologist) bought from.
Can’t someone in US give this a punt, its worth a shot…nothing much to loose
if someone is thinking about buying it…i can search for the link again.
Give what a punt? An mri? I have one scheduled but youd have a hard time talking any neurologist let alone insurance company to do some advanced level mri. I fully expect mine to come back normal and he will tell me theres nothing wrong with me.
No this cerebrolysin drug, its not very expensive. Brazilian, did your friends dad say how many shots he needed?
I guess two cicles…like one shot everyday for 5 days…weekend off…then again the same thing for 3 more weeks, two months of rest and then another round just like the last one.
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Gotcha… Interested