I’m not so sure about no results on hCG, at least from what I read here and elsewhere. If there’s no harm to it, and no know side effects, I’d assume it’s safer than proviron.
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He needs to stay calm and rational but telling people they aren’t running out of time isn’t any use. Even as much as it might seem otherwise in youth, we all have ticking clocks on sexual phase. You can only date women so much younger than you and most healthy women, arguably all that don’t have psychological issues, target having children by the age of 30. No sense in living in denial of biological truths.
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I think Proviron is safer but that’s just an opinion. Don’t consider DHT unsafe at all (relative to drugs and herbs) and hCG can desensitize leydig cells. This is too much OT, though.
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Thanks PFS25, but after more than a decade of this, time is indeed running out. At over 50 now, even if I was well, it’s downhill. I’m a shell of who I once was, despite all the positivity I’ve had. I work very hard to not be a downer, and will continue living a healthy lifestyle and exploring treatments to this condition.
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If I were you I’d think less and do more, try this Proviron protocol, keep other dimensions of life well attended to, but if you’re going to sit thinking about PFS then make sure you are always DOING something on that too. And not the same things everyone has failed with already, that just makes you worse psychologically and financially.
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We definitely need to act if we want to make progress but what i was implying is that people should remain positive and calm , it’s important to make the right decisions
I think every person reacts differently , hcg and TRT have been beneficial to some pfs patients or at least played a part in their recovery/improvement , if his testosterone is low he should try it
He said his hormones are fine, so he doesn’t have hypogonadism. People who recover via TRT have hypogonadism, not PFS.
I agree with the last part of your paragraph but it doesn’t mean that people should stay arm crossed and don’t try any protocol , many persons have felt better with protocols and some have recovered , like i said every person reacts differently
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HCG is very interesting. A couple of months ago someone with PFS recovered after years with HCG therapy. And it’s also been part of a couple of recovery stories.
Definitely worth trying.
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PFS may induce hypogonadism in some people or trigger the condition , + even if you’re not hypogonadal you may gain some benefits from the protocol , let him try first
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Seeing a “cured after 11 years” as a title gave me hope, because I’ve had PFS longer than that, and it’s become the “new normal” a long time ago.
Several others see to be along the Proviron path, and while I wait for them, I’m finding legitimate places to get hCG, which seems like it’s also used for diets (go figure). I haven’t yet found a horror story about hCG, which is something I should have done before taking that poison finasteride.
Once I’m on hCG, I’ll start another thread on it, and post frequently, in hopes of some outcome, good or bad.
Separately, and in the same vein as some of the comments above, I’m very methodical in my approaches, even if they’re not agreed on. With that said, I’m using an app, MyFitnessPal, where I enter everything I eat, and how much water I drink. It automatically gets sleep, weight and and other data from my watch and from Apple Health. That data can be shared with those you want. There may be other, better ways to share and collect that data for us, but that’s what I know and am using.
Additionally, a year ago, when I went to get Ketamine treatments for the debilitating depression I developed, they were using a system to collect “how you feel” from patients. The system sends you a text, and you text back a number from 1-10. We need something similar, because who really logs how they feel every day? I think something like may help us see trends. I think it’s a couple of dollars a month, and there may be other, free options. For comparison, the product I’m using is by a company called www.moodmonitor.co
In a perfect world, each of us would have a substantially detailed profile, that shows a lot more about us and what we’re doing to feel better, and maybe we can understand what makes us feel worse. For example, when I overlay how I feel with my weight and other data, it’s easy to see I feel better when I’m lighter, and get less sleep, not more. Add foods eaten to that, and you may see (like I have) that one large meal a day regularly can drag me down all day and into the next, and even one sugary soda do the same for a couple of hours.
We need to do more, yes, much more.
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I talked about pfs with my doc about 2 months ago. He told me why I dont ask Merck. He told me they do tons of research wich is not accessable for the outside. I told him even if Merck is aware of pfs, they would never communicate it to the outside, it would ruin their product.
What I also wonder is, I think there are way way more pssd sufferer out there than pfs sufferer. I wonder that even there it seems like it’s not even an accepted disease by the pharma.
I am willing to spent cash on research. But we have to organize that shit. Labs etc.
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Keep us updated about your hcg protocol , i think it’s an important part of the puzzle , you’re following Joekool’s protocol ?
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PSSD is recognized as a legit condition in europe:
Post-SSRI Sexual Dysfunction Recognized as Medical Condition
And yeah, many more poeple who take SSRI’s than AA’s like fina/duta so it’s only logically there should be more PSSD victims.
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I believe finasteride must cause a far higher proportion of long term suffers following use after quitting the drug. Makes sense as finasteride is a much stronger direct modulator of androgenic activity than Accutane or SSRIs.
Yeah could be, it’s hard to estimate imo.
Hope PFS will be recognized a serious condition as PSSD in the near future.
In my mind there’s absolutely no doubt it will be recognized within the next few years. There has been way too much evidence mounting in our favour for the last 5 years. I’ve met several Drs now who do not prescribe finasteride at all to young patients anymore. Once a few more mechanistic studies have been published which give weight to a plausible mechanism i.e. epigenetic modifications/receptor desensitization there will be far greater recognition.
A viable treatment will likely be a fair distance more, but at least we will have hope and more information on what finasteride has done to us.
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Plz take the survey
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I must say I am pretty much set on the idea of a high dose 8+ week masteron cycle 2-3 months after this if it doesn’t cure me. Need a bit more research on it but to my mind that’d test the “principle” of it; running DHT very high, feel like crap, get a bit of adjustment in the latter weeks, then drop it.
Long way off that yet though.
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