I talked about pfs with my doc about 2 months ago. He told me why I dont ask Merck. He told me they do tons of research wich is not accessable for the outside. I told him even if Merck is aware of pfs, they would never communicate it to the outside, it would ruin their product.
What I also wonder is, I think there are way way more pssd sufferer out there than pfs sufferer. I wonder that even there it seems like it’s not even an accepted disease by the pharma.
I am willing to spent cash on research. But we have to organize that shit. Labs etc.