Just contacted the woman who co-wrote “***.” Her name is *** and she works at the *** in ***. She said she would get back to me after she speaks with some of her collegues about advice and help. I just told her what I was going through; mostly cognitive impairment questions.
I also did this, so that she might act as an advocate for me, in terms of getting the local docs to take me more seriously.
Guys, maybe you should try to contact her as well. She might be a great advocate for us someday.
I’m currently in contact with her and she is willing to help us out. She is a professor and a pretty important person at the *** in ***. This could be a major breahthrough in terms of getting us some attention, and in terms of getting this investigated some more. She said she is willing to help me out. I’m a veteran, which helps give me some more “pull” in getting through the door. If more guys complain to her, the more of a benefit this will have for us. We are talking about a major, federally linked American institution with strong fda ties. From what I’ve found, she seems to be a very nice, intelligent woman who seems to want to help and listen!
We need to take action now!
Her contact info:
Rob
i just wrote an e mail to her saying all my sides.
thanks
EVERYBODY DO THAT NOW!!!
I recommend calling her first. The email she uses is not very good(as I found out today), because it is an academic address, and her filters are set differently. She may have to know your email is incoming and who you are.
Best thing to do is call her initially and describe your situation. Be firm and assertive with her, but polite. She seems very nice, so don’t freak her out right away.
Are you sure that this woman wants hundreds of guys calling her, each one telling her a similar story about Propecia sides? Isn’t that going to be a pretty good way to piss her off?
Maybe email is in fact the better option? Or we write a group email, or something?
Roberttino, you said “she is willing to help us out”. What exactly does that mean? What is she willing to do? Did she ask for case studies, did she specifically request that members email her their stories??
If not, that is one sure way to spam her without her consent, which will likely backfire. I have to agree with ScaredMale30, having a bunch of random people calling with their story will probably annoy her.
It may be a better approach to send her the link to this forum, the FAQ, The Finasteride Studies section, and stickies at top of Mental Side Effects section so she can peruse at her own will.
I will also contact her via email on behalf of this site to hopefully provide some insights.
I have emailed her with an in-depth overview of our syndrome, provided screenshots of research materials, and a request to discuss further.
I also asked if she wants everyone to contact her with their stories – I recommend you DO NOT until she (hopefully) provides a reply, stating it is ok to do so.
I have censored her contact info in the meantime, until she gives the ok (roberttino, you did not state wether SHE requested 1000 people contact her – you made the decision FOR her by posting her info on this forum and encouraging us to do so).
Just want to get a clear answer from her if she is ok with being bombarded, otherwise to overwhelm someone like that will likely backfire in the end and turn them against our plight.
OK, mew. I agree. We should wait and not scare her off. Everyone, sorry, but hold off for now, or until she has a chance to reply back to myself or mew.
Do not contact this woman until we can get her reply. She may be a key advocate for us in terms of help. We can’t afford to blow this opportunity. Wait for now gents, until we get the green light. I’ll post as soon as I hear back from her. Promise. As of now, myself and mew, are the appointed coordinators for this contact person.
Rob
While I share your excitement to some degree, I would suggest even editing out the title of the paper for now to help protect privacy.
Agreed.