I mean that a lot of mainstream “medicine” is bullshit. I think we are more likely to be cured by using natural methods.
Dgreene- let’s not forget, many people are reporting that they are feeling much better or recovered who would at least indicate that potentially this syndrome (notice how I didn’t say disease) is self limiting
So what if its self-limiting?
How does self-limiting explain the fact that my beard almost doesnt grow on the right side of my face ?
No amount of stress could cause the side effects that we are experiencing.
Interesting that Dr. Bhasin considers one possibility that I’ve been quietly considering: the drug could still be in us. I consider it a possibility still because no one has offered a good story that would discredit this theory and I’ve not been able to exercise (nor do a long fast) since getting this disease. Is it possible that Finasteride is lodged in our body fat which none of us can completely be rid of unless we were doing a long-running fast along with using some belts or devices that cause us to sweat profusely?
If it is still in us then how did our problems get worse since stopping the drug ? Their must be a lot less fin inside us now than their was when we used it.
If this were the case, wouldn’t losing weight exacerbate the condition? More stored Propecia would be released…and some people have claimed recovery with fasting.
Self-limiting doesn’t mean you don’t have symptoms, it means it’s a syndrome that can last an indefinite amount of time but eventually goes away on its own, problem is how long? Years?
Same with me on the not being able to exercise (I feel zero androgenic response when trying) and not being able to fast for a complete day even though I’m down to a couple tiny meals a day totally about 500-700 calories. Whatever I eat bloats me almost immediately and I’m pretty much 100% paleo now. Also, my last trip to Boston it was humid and I was sweating like crazy.
When I saw Bhasian he didn’t mention anything about Fin still being in our system and I havn’t heard of him mentioning it to anyone other than moonman in his above post. I wonder if that’s really something he’s considering since I don’t see anything that seems to be looking for that in the study outline posted earlier in the thread.
I am not able to exercise because I’ve been crippled (foot broken, not fixed, back and pelvis messed up) since I took Propecia --not for any other reason.
If someone wants to test this theory, he needs to do it right. If he cannot exercise, then using a long fast (and NOT WORKING, not having any pressing responsibilities while undertaking the fast) and any means necessary to cause substantial sweating at least once a day. If one was overweight prior to Propecia and gained more weight afterward, I don’t really have answer for that problem other than going on a diet, exercising, THEN doing the fast after a substantial weight reduction has already been achieved. Using something like an UV sauna would accelerate this process along with any tools that can target fat (sweating) in the abdomen and thighs.
I know the difficulties and what many people do and look like nowadays (overweight, over-worked, no time for personal endeavors). So, I am doubtful that all but a handful of people on this board or any randomly selected group of people from the population can successfully do what I’m describing. So, please, if you’re not truly a person who has the time and the willpower or discipline to do something like this, don’t try it until you’ve at least gotten some advice from someone who knows you or who has seen you.
I’ve done a fast for 6 days in the past. You reach a point where you are no longer hungry (hormonal/chemical), but you also begin to lose the ability to do a lot of things and you SHOULD have someone with you most of the time to make sure you are O.K. Not something everyone can do safely.
Amazing news. Not enough can be said about the efforts of those who helped arrange this study and fund it. Just…man…thank you.
Guys, I highly highly doubt that Bhasin is investigating whether Fin. or any other drug is still inside of our bodies. It was just something he rambled off when brainstorming “possible” reasons of PFS 2+ years ago. I would not put any stock into it. Playing devil’s advocate, I did read a story of a woman who had detected Accutane (another 5ar inhibitor) in her body 2 years after taking her last dose. But again, it is more likely that Bhasin is looking at genes and epigenetics, 5ar enzyme regulation, or receptor sensitivity.
I’m sorry but this is just useless …even your dope you smoked at the age of let’s say 15 is still in your fat … if it’s that easy go to a cosmetic surgeon and let it pump out … sorry for being sarcastic.
It was 25 years, and that lady went off the deep end:
…This is a good case in point for why real science is essential for patient groups like ours.
BTW- Thanks again to everyone involved in making it happen!
if I prove otherwise, I will let everyone here know. I know how to do it, but I cannot right now.
using exercise, fasting, psyllium, chelation therapy, plus colon hydrotherapy might help. all of this helped me get rid of heavy metal toxicity over 10 years ago, which is difficult to be rid of if one has large fat deposits–and even difficult without a lot of fat in the body. I was unable to absorb my food, work all day, nor climb two flights of stairs without being exhausted (despite being basically fit). these problems persisted for about 3 years, slowly getting worse.
but, I, like many on here tend to believe that out problems are “deeper,” as you suggest in your reply. for me, it’s just not worth waiting to find out while I can do cleansing, exercise and fasting to eliminate one possibility.
Guys, I just got off the phone with a researcher at Harvard and I am going to travel from the Uk to Boston in the next 3 months to take part in this study, spending in excess of 2k of my own money for our cause.
Wish me luck, I figure that I might as well do something positive to help our cause whilst I’m still here!!
Its my only positive outlook alongside my kids.
Thanks for making the trip. It will be worth it in the end. I hope that’s 2k of USD and not GBP.
Good for you brother, it will pay off in the long run. Gods speed
If anybody is interested in speaking to the program coordinator about participation, please PM me for his contact details. He will ask you initial screening questions on the phone to assess your eligibility. Be honest with him FFS. This is important!
The study will require two discrete visits to Boston with an additional optional visit.
The initial two visits will consist of additional screening questions and fasting blood draws. The third, optional visit is for an MRI brain scan.
Travel to and from as well as accommodations is the responsibility of the participant (you).
J
Thank you for being EFFING awesome. You are the best.