Fellow PFS sufferers,
I am an early sufferer. I am a little over 3 months in. My first month was complete hell. With my symptoms being highly neurological, and I had it bad. Depression, thoughts, sense of doom, anxiety, and insomnia. I also had muscle twitches and loss of libido and other more minor ones as well.
After that I almost fully recovered for about one week, followed by a 1 week crash. I then recovered even more for a period of about 3 weeks. I then had multiple subsequent crashes where my insomnia got worse each time.
I am currently in week 4-5 of the overall crash. I believe my only remaining symptoms to be waves of anxiety and severe insomnia. The insomnia is debilitating, but has gone up and down throughout the crash. 9 days ago I finally had a string of decent sleep. I had two days of 7 hours, followed by two days of heavily interrupted sleep but overall think I got between 4-6 hours those days. The days of 7 hour sleep I even got a block of 4 hours straight which is the longest block I’ve had outside of the “recovered weeks”. The last five days have been mostly no sleep, or very light 1-3 hours max. Other days within the crash mostly top out at 4-5 hours very interrupted but more often 3 or less or none.
I’m struggling heavily today. I’ve been prescribed 0.5mg clonazepam, but am terrified to take it. Is there anyone that has gone through bouts of insomnia like this that can make recommendations?
Do my sleep patterns indicate I may be headed towards more recovery? Should I hold out for longer? Is there something else I should take to help me get sleep? Is clonazepam generally safe for other members? Is there anything else for sleep that is generally well tolerated by PFS sufferers?
I’ve tried glycine and 3mg melatonin which is what initially helped me get the 7 hours but has since obviously lost it’s effectiveness if it was ever there. I also tried MG which did not seem to help much.