Can anyone recommend an Endocrinologist in NYC who knows about PFS

Its really just a backup plan. I have a real fear of having nothing that will get me to sleep. I know its a very bad idea but it make me feel better even if I (hopefully) never have to use any of it.

This all sounds scary as shit. I just read through the TRT thread and there was not one person who claims it helped them and several who said it made things worse. I would really have to thing carefully and do a lot of research until getting comfortable with this idea. I would be heart broken if I didnt respond well and made myself worse.

I’m on trt 6 months in now it does nothing for me, I’m either planning on stopping or try it another 6 months but by now I know somthing should have worked. Hell I don’t even know if I’ll feel worse off of it. My T production might stop all together and im not sure if it will even come back again. My body is so damaged from the shit I took maybe it may work for you, just know there is no guarantee.

Outside of insomnia my symptoms arent THAT bad. I have some vision issues, head pressure… maybe a little ED but I also might just be normal for my age (42) . If I can clear up insomnia, I would accept the rest and happily move on with my life.

I had horrible issues with eyes as well. FYI this is also a symptom in cfs but estrogen issues can cause eye problems. Now I’m really curious to see an ultra sensitive estrogen test.

Aaron what protocol are you doing? (Dose freq etc) did you have low T before? Also where are you injecting? I found sub q the best in my fat.

If you want to quit you need a few months supply of HCG 1000 iu split in half 2x a week. It will restart you balls. You will still feel run down for a week or 2 until everything starts again

Shell’s testosterone is that of a 80 year old man. I think he should go to the endo and discuss it.

I booked an appt with Jackness… earliest appt is June 19th. UGH. Good news is that he takes my insurance and I booked him through ZocDoc. As for Levine… not sure she takes my insurance. I left her a VM this morning.

Yea it was a pain with her but I paid out of pocket. $100

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Only $100? These docs all want like 500-1000 for a consultation . I guess I’ll find out when she calls me back.

It’s possible the first costs more but when I started my insurance was covered. I switched to United and she didn’t cover it.

I inject 2X a week, once on a Wendsday and a Saturday 100mg split into two injections of 50mg. Take arimidex .25 after each injection.

I took HCG alongside of TRT but testicles don’t function I believe they are damaged they shrunk down to nothing, I did hcg 5000iu a week split into 2 injections if I remember correctly. I think it was to much my estrogen went through the damn roof, did that for 3 months and saw no results as far as testicles size and no improvements in libido.

There’s no good Endos or urologist around me and every doctor at kaiser refused to help me and told me to get mental help so I am using a men’s HRT clinic that’s the protocol I got. I am 23 my total T was at 390 and my free T was at 4 really low for my age. My T sits at 945 now and still feel just as shitty as when I crashed.

(I inject into my quads as well)

I have 6 or 7 different types of muscle relaxers or sleeping pills. From time to time I take them if I’m traveling, flying or i take a muscle relaxer if I want to chill out in a Saturday night haha. You should look at etizolam. It’s a prescription drug in Japan and a few other countries but not classified here yet. You can mail order it legally in nyc (some states are starting to make it illegal)

I’m hesitant to tell you since you are having serious problems because if you take this for 2 months you could get dependent. It is a form of a benzo. It would be addictive if you took it long term. (I.e 6 months or a year) Its super powerful and 10x more potent compared to Valium. The Max time you are supposed to take them is 2 months but I had a hair transplant January and took it for only 6 weeks just because it was a pain to sleep with irritated scalp. It was pretty tough to quit. I had to switch over to another pill for a week just to get back to normal. They are awesome for sleep! They are pretty awesome to just watch a movie in bed with haha. BUT I give you fair warning that benzodiazepines can be addictive ;). The good thing is that the half life of these are super short (like 5 hours) so addiction is harder compared to Valium with a 24+ hour half life or klonopin wich I think is 30+. You are not supposed to drink on them but I sometimes tempt fate with a glass of wine.

If you take benzos you need a backup sleeping pill when you stop

What’s your estrogen on ultra sensitive test (not the normal estrogen test)

The reason I ask is you may not need the AI on a 2x a week schedule.

I’m on every 3rd day schedule and inject 40mg. (120 a week) I only need an AI about every 6 weeks … I’m going to reduce my dose this weekend. Obviously everybody’s body’s are different but .25 of anastrizole would put me down hard.

You should also look at t-nation forums. A lot of people feel like shit on HCG and can’t handle it. The recommended dose by the famous trt doctor crisler is about 1000 a week split into 500.

I’d try dropping the HCG for a month and maybe the AI unless your sure you need it!

Here is one of his articles
https://defymedical.com/resources/health-articles/242-an-update-to-the-crisler-hcg-protocol

You can google crisler … he died a while back but has some great videos.

IMO, there seem to be two “types” of PFS if you will. One responds well to increasing testosterone, i.e. TRT, the other seems to respond better to reducing testosterone.

I’ve read some theories on other forums that are way over my head on why this is the case, but I have seen several people say TRT made a huge difference for them.

So, you might end up better, you might not… it’s really a crap shoot, IMO

Hopefully the survey which is being conducted will allow us to distinguish presentations and then make informed decisions as to which are the best treatment options for different phenotypes.

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I hope so as well.

Ironically I work peripherally in the biotech world in Investor relations. I intensely research everything. I’ll check out Etizolam but if it’s a known drug to cause problems with QT Prolongation I can’t take it. However…most Benzos dont effect QT Prolongation. Some of the stuff like Seroquel and Trazodone totally make my heart race and are a death risk. So I’m limited. Currently I take Klonopin maybe once a week. Phenibut once a week. Abien once a week…and so on. Etizolam could be good to add to the arsenal as long as it’s not cross tolerance with Klonopin (which it probably is).

You may be ok … it’s tecnically in the benzo family but not the same. I’ll let you decide. I’m an engineer :wink:

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Are you talking about the e2 test? Unfortunately they only do the regular test and not that one, I probably could go get that one done at a lab though I’m curious myself. I still have hcg at my disposal so I could try again at a lower dose. As for the AI I think I might stop using it and see if I feel any different.

yea You need an ultra sensitive …the normal can be super off for men. you can buy a labcore test online for about $59 I think. Most specialists say don’t even use HCG until your feeling good. HCG is like the cling on the cake and will improve mood, libido and allow your calls to make pregnelone(however you spell it) I also supplement with pregnenolone from Amazon which really improves my motivation and energy with trt (great for men over 40 … google pregnenolone and men) Trt takes a long time to tune because every time you change your T you have to wait 40 days until steady state. Changing your anastrizole or HCG is faster but if iyiur e is low you may take 2 weeks to recover. If It were me I’d get a test immediately and then stop all but T and then retest in 2-4 weeks depending on how I felt. On the flip side high doses of HCG will create a lot of e2 in your testicles. This is not tratable by an AI. I can explain scientifically why but if you go to t-nation there are tons of stories of people who over inject HCG with issues and an explanation of why this messes with your E.