Calling for Study Participants for First Molecular Level PFS Study EVER ********************

No, it is not directly tied to this research initiative.

Probably has to do with setting up a “fund”. Might as well keep that top secret too…

What the hell is all the secrecy about.I don’t understand it.it’s like we can’t get a straight answer.all of us are holding on by a thread for some hope of good news through this research and it’s like beat around the bush.alot of us are holding off thoughts of ending our lives to hope that we can get better some how.when a question about good news is asked it’s oh that’s something different.sorry if I don’t sound patient but I’m ready to donate and help and I think all of us are.there’s no need to be secret shitbags at merck finally changed the label to alot of what were going through.

I doubt that anyone’s trying to be an elitist here and merely holding on to study results for the sheer purpose of being secretive. I’m sure that once test results are interpreted we can expect a peer reviewed published study to follow and these types of things don’t just happen overnight.

I’m as anxious as the rest of you. I’m waiting on the edge of my seat for any update and prepared to donate as much as I can possibly spare to make any headway on finding a cure, or just an explanation. We’re not just awaiting from news from an impartial third party either – fellow sufferers will be sharing the results with us all and they’ve no reason to keep secrets.

Any update here regarding the research? Whether its finished or when it will be published?

What research do you mean? I posted first hand information about the DNA study.

Whew…took me a couple days but I finally got through reading all of this. Very interesting stuff. I too look forward to any updates and any possibilities to donate!..well at least as much as a simple college student like myself can afford!

That was March 7th. I know Awor said two or so months hopefully but a lot of us are on edge to hear any news about this.

Damn! This wait has been excruciating. Someone please, at least tell me who to write the donation check out to. :neutral_face:

I just wish that there would be a little more elaboration on previous statements. I would like to know more specifically what they found. I really hope I am wrong but I am beginning to feel they may have run into a dead-end.

I’m afraid you could be right.

some sort of update, anything really, good or bad, would be very much appreciated

hope you are doing ok awor

I’ll be honest in that I am not completely familiar with all of the details of the studies going on, but is there any hint that this could actually address the chemical imbalances in the brain that this drug has almost certainly caused? I’m just curious how a study that begins with biopsies of penile skin could eventually lead to explaining brain fog & symptoms like dulled emotions, which must contribute to decreased libido. I know that you have to start somewhere, and if they are actually on to something that “would be capable of explaining just about every aspect of our problem” then that’s wonderful, but I just don’t know how we get from point A to B.

I think that the reasoning behind this is that androgen receptors are everywhere in our bodies, thus if they are dysfunctional in one place they will be dysfunctional in other places.

i found the study (probably) on italian blog/forum

postfinasteridesyndrome.blogspot.it/2012/05/il-gruppo-dei-ricercatori-italiani.html

Definitely not it…

“Definately” not it, huh? And you know this “definately” how? There are two seperate and unrelated Italian projects?

No mention of penile skin biopsies.

Looks likely to be a preliminary study. One of the authors spoke at the PFS seminar in Italy last fall.

Yes that is a study from the same scientists mentioned in this thread. Looks like they may be using the data to publish more than one study (ie DNA).

Notice it has almost the exact same number of participants as Dr Irwigs study!

Also, it only mentions sexual sides which makes it USELESS to me.