Calling for Study Participants for First Molecular Level PFS Study EVER ********************

I thought he asked that all of your arguing be sent to him via PM? It is too distracting to this thread to have to scroll through all of the arguing. As he said, please do this via pm.

It’s not so much arguing than exposing important things that absolutely need to be exposed, publicly. Many people here, including you (and you should know why I say this), really need to wake up, and open their eyes.

i dont know why me, but you can pm me about it and i will be happy to hear your thoughts

Wow I really didnt want to come back here but I focused on reading awor’s argumentation before replying and I have to (publicly) reply to his (public) personal attacks which I didnt pay attention to

Again intellectual dishonesty on your part for you to write this, as I made it VERY clear, several times, that I supported the research. However after this last post I cant possibly support it anymore, dumbfounded that I am to realize the extent of your intellectual dishonesty and tenacious illogicities that you wont seem to ever care to abandon. THIS above sentence from you represents what you can call defamation.

So it’s a “way out of line behavior” to dare factually scrutinizing the misleading inacuracies from the one person that people put the most hope and uncritical trust in? You may want to review the definition of “defamatory statements” btw. This implies that I have been spreading LIES with sole objective to tarnish your reputation. Ive only been telling ACCURATE FACTS hoping that you would recognize them (publicly thus repairing some misinformation) and take advantage of this to correct and improve yourself as you might not have realized the special status you have here to the eyes of many if not most. The obviously irrational faith many people put in your person (and that should even be disturbing to you), called for a much needed PUBLIC wake up call. You talking about “courage” here is absolutely ridiculous and irrelevant, I wouldnt have NO problem telling any of this to your very face, beleive me, even though my spoken english is not that fluent.

You jest, no?

This thread has become a real mess now, with tons of off topic posts in it. We will be cleaning it up shortly. For publication based evidence regarding HDAC targeting of antibiotics and other substances, please refer to:

viewtopic.php?f=27&t=6386&start=0

There I will supply further examples and research as time permits. Participation welcome.

No comment needed.

So…whats going on with this study? Any updates?

I am new, but this thread has been an amazing read. This will probably be a long, hard and frustrating journey, but I want to express my admiration and gratitute towards all the people involved who have taken the first huge steps. This is a serious achievement that I haven’t seen on other health issue boards before.

I hope one day I can contribute to this cause.

Keep it up!

Haven’t heard anything in awile hope the study is coming along.we are all eager to help I would do anything to recover from this.hopefully it’s not permanent and our bodies can be fixed.

Awor, could any findings suggest that Finasteride or Dihydrofinasteride has some affinity with the AR of those men that had skin biopsies?

Well since this is basically the only “real” thing going on in the world to actually try to help our condition I thought I would try to figure out what was going on, on my own since regular updates are not given. This is what I got from one of the scientists conducting the study.

They dont even have enough patients yet?!? More proof of how rare the condition is. Mew why not post something about this study on the front page of the website or something?

I dont see how there can be further studies without first finding out the results from existing studies.

The study is taking place in Italy, perhaps why it maybe difficult for them to get more people. And #2, they probably have some results but want to confirm some things before releasing initial information.

This is the more likely conclusion and is probably why they state it is ongoing.

Im not sure whats being said here. They need a certain number of patients for the study (read the study protocol) and they clearly state they are still recruiting patients.

Are you privy to some special information and know that this is not actually true??? If not more needs to be done to help recruit study subjects.

My understanding is they are recruiting some additional patients, probably to further confirm initial findings. This process is being managed by them.

The study therefore is not concluded yet but is still in progress, as they stated they will release more info once it has been finished.

you mean the first part of the research, the skin biopsies? they need more people for that?

No that was done like 7 or 8 months ago.

so to clarify, they are still looking for patients for the brand new phase of research?