Lots of questions and enthusiasm. Thank you to all those who have applied over email.
I’ll have to check with the researchers, but I don’t think so. The value of research data is in the aggregate and not the individual, and given they’ll be performing highly complex analysis which likely wouldn’t make sense to most patients, I don’t think there’s much value for the individual patient either.
Researchers have asked us to prioritise patients 35yo and under because that is going to be the age of our sample population. However, please submit an application anyway. If you meet the other criteria mentioned above well, and we get a lack of suitable younger candidates, we may select older patients.
I think that’s a great idea. We’re fielding applications globally but prioritising those in Europe and think we can get enough from EU/UK. But if there are any severe North American patients or from other parts of the globe who can be sponsored, I’d be interested to see what people can contribute.
A full overview of the study can be found here: https://www.pfsnetwork.org/epigenetic-study
Researchers will be looking at:
- Chromatin structure
- Methylation in the AR regulatory region
We may also be doing a part II that performs RNA sequencing, but we’re getting this study out the door first.