Thought I’d mention I have daily frontal headache for years as well as fog, irritability and inability to really feel happy and relaxed. Since you guys have the fog too, did you check if you are low in vit D? I’m extremely low in D as well as testosterone and pregnenolone. An autoimmune (ANA IFA positive) also.
We should keep track of our symptoms because I have that same tight band headache which varies but is always there. Pain is focused in forehead/brow area. Wondering if autoimmune inflammation caused by PFS is causing nerve pain in head…
I’m sure many of you have tought about this, but is it conceivable that our brain fog symptoms are none other than those of a chemically induced depression? Depression is known to result from hormone-altering medication, like finasteride.
I know a lot of people have tried antidepressants - some with catastrophic results. But are these people with ED or only brain fog? Are there maybe antidepressants that could be appropriate for us?
Anyway, I dont mean to say that its “only in our head”. This shit was provoked by a potent, nasty pill. But if it was depression - which is now listed as an official side effect - wouldn’t this open many new possibilities for healing? In a way, I hope so.
Agreed. Allopregnanolone also modulates GABA receptors, which may a major role with PFS regarding the many sleep issues. Finasteride is a poison that Merck is trying to hide as safe.
Hello everyone I have been on Propecia for over 14 years and tonight by the grace of God was I able to discover what was going on. Let me tell you that my emotional state was so alarming that I discussed it with many friends of mines. Thank God so I know I am not crazy. I will post more on this as things progress but I am stopping this drug immediately and seeing medical attention. In the last two years I have lost every sense of feeling any emotion toward people it has been so sad. Can anyone tell me if this situation can improve?
Other propecia side effects do not compare to this. I would be a happy man if the depersonalization disorder en.wikipedia.org/wiki/Depersonalization_disorder and severe cognitive impairment would go away.
I would live happily ever after with ed, no libido, fatigue and muscular weakness.
Same here Tim. You are correct. This is the worst of all the side effect’s.
Our mind’s, and the way we experience life, has been completely chemically altered in negative limiting capacity; changed and lobotomized never to return it seems. Frightening? Yes, to say the least…
It’s a sad existence, that one day I will shed more light on independently. This certainly need’s more attention, as it is the only side effect, that can lead to homelessness, disability, suicide, self destructive behavior’s, or being institutionalized.
We are victims living with a mental disorder, or thanks to the selfish and corporate greed of Merck and Co.
Agreed, it is absolutely terrifying. I live in the hope though, that it is not irreversible or permanent despite living with it for 7 years. In that time I have had 3-4 occasions where it was like someone flipped a switch and I suddenley reconnected with the world and felt ‘normal’. Each time it has lasted for the day until I went to bed and unfortunately when I wake up the next day it is back to the “fog”. Of course each time I have racked my brain to remember what I did different, what I ate, in the hope that I can replicate it but it always seems just random. I do take it as a sign though that it is not irreversible damage, it is just a matter of finding what is causing it.
Yes, with me the “brain change - altered state of reality (terrifying brain fog)” hit me after exactly one month of stopping the drug. It is some sort of crash or change in our brain chemistry, which might be linked to multiple body systems. It is incredibly complicated to solve on your own. I applaud you for having hope. This is no question the worst symptom to have. Drinking alcohol definitely impacts it (especially the following day), as does coffee drinking(increases the fog) and fasting for long periods (improves the condition)
Yeah, I have definitely found that also. I also agree that fasting does seem to help as does lots of sleep. I can definitley notice the difference if I have had a period of poor sleep. Late nights and stress seem to be a bad combination and always increase my brain fog and dizziness.
Then why hasn’t anyone been tested for Alzheimer’s? This is an absolutely logical thing to do given our symptoms. I will look into this discussion, but it will not be an easy sell with my doctor guaranteed.
Yea i agree w robert. To have a new, unfamiliar reality is so hard to believe, accept, live with, and describe to anyone. I feel like the passenger and now someone else is driving. Sometimes i notice just hearing language on TV or in person can immediately trigger a feeling that, the world ia moving faster than i can absorb, and its happening before my eyes. I feel like im only experiencing the present at a 60-70% level. This really disturbs me. Even more scary, guys on propecia help seem to know more about this than any doctors or society. If id have had a stroke and got brain damage, atleast i would recieve sympathy and understanding rather than skepticism from everyone.
This hasn’t improved but there are times that it does go and I feel normal for a couple of hours. It happened to me like a week ago. I think it’s time to act…i’ve waited too long.
It is a wretched state of reality. The late suicide victim said it best, or living in a mentally crippled state of mind.
Shunned? I know alot about that…
I was shunned by the veterans hospital and my doctor fired me. I was escorted out of the building.
Being shunned by my own father has been hard. Nobody can really believe you, which hurts. One year ago, seeing my mother dieing in front of me, while in this state of mind was even harder. Keep fighting. Just a suggestion. Be only around people who have love for you, and consider a complete lifestyle change, or one that promotes healing. This will help. Hardest thing for me to accept was that my old life was gone forever. It truly is like living with brain damage. Not an easy life for us.
Also:
Extreme forgetfulness
Memory problems
Stress far too easily
Sleep troubles
Vision changes
Headaches
Bags under the eyes
The being lost in the woods feeling, drunk and having to make to your car.
Also, having a borderline alcoholism issue to just to try to relax…not too proud to admit this.
We have a very hard life to live through.
I have dramatically improved brain fog with cortef + certain lifestyle changes. It looks to me like thr fog and other cognitive issues are at lewst partly adrenal related.
A simple 24 hour cortisol test. Dont do any blood cortisol tests.
