bostonusa2009's story

Member Stories
#61

I spoke to both endo drs yesterday. The both are telling me I do not have hormone problem and are not willing to write scripts. They are both basically telling me there is not much else they can do to help me. One said to go a Uroligist and the other said I should go back to my Primary care dr and have him try to help me.

I showed a slight increase in Free T over a 4 month period it went up 2 points. I’m feeling a lot better, but still don’t have the sex drive. I think I’m going to see my Primary care Dr and have him run monthly blood tests on my T, Free T and SHBG. If I continue to see the Free go higher, I think I’ll stay off of all meds and just let my body recover on it’s own. If in two months the number remains the same or dips again, I’ll have to try some type of treatment option.

I really am fearful of meds now and don’t want to create a whole new set of sides or damage my liver more.

#62

I agree with your take on meds and had almost the exact same experience with my endo shoving me back on a primary care. Without even testing estradil… :frowning:

#63

Martin,

Did they now do a test for your estradial? Do you think mine is high? Estadial: 34.92 (0-52) pg/ml. I know I’m in the range, but I wouldn’t think I should be in the top 70% of the range. I was hoping some guys that are knowledgable on this one would chime in. Maybe Mew will know.

I took a look at your blood test again. Your pretty low on Vitamin D. Did the Endo dr mention that to you? My Vit D was even lower than yours. I just started taking Vit D.

The dr suggested I also try to get more sunlight. Drink some cow’s milk too. I really don’t spend a lot of time outside in the sun, but I KNOW the real problem with this was caused by the poison pill as well. I don’t a dr to tell me that.

#64

My Dr. tells me that there is a HUGE vitamin D deficiency in the United States population (probably quite dietary in nature). She recommends supplementing.

Bostonusa, with regard to Estradiol levels, mine have been consistently in that neighborhood (~35 pg/ml), with the exception of one blood test where I was on Chrysin (aromatase inhibitor). I have not been able to find a range that is age-appropriate for males (a never ending problem we have since we are young males). My Dr. however sees many, many patients of different ages and sees hormonal panels on most of them and she says that this amount of Estradiol is too high for a young male (I’m 27).

#65

Boston, I don’t know about the Estradil. I’m just pissed my endo wouldn’t even test mine.

She did recommend supplementing with Vitamin D. The levels didn’t change in a years time even. But I have been supplementing with Cod Liver Oil (400 IU/day) for the last 8 months. And it didn’t change at ALL! :open_mouth: I drink plenty of milk and soak up all the sun I can plus I go to tanning salons in winter.

I will get some larger vitamin d pills and start supplementing with an additional 800 IU/day to try. I totally agree that we have a vitamin D deficiency in the US. It’s a hormone too…

#66

Martin,

Dam doctors, most of them are full of ego and are not out for their patients best interest.

Thanks for letting me know about your Vit D staying at that level. I think this is a very important issue for us. We need to get this Vit D up or we will lose bone. I am taking Vit D and Calcium Pills. I started drinking a glass of milk a day. I will monitor that level even more closely now.

#67

Well, I called a couple of Endo Dr’s offices today. I called Dr Hulinsky in CT,who I heard was supposed to have a good reputation for treating Propecia sufferers. I spoke to the receptionist and she said he some experience in this area. She really seemed to be trying to lower my expectations from him in this area. He is Definitely not an expert with dealing with this problem.

I also spoke to Dr Shippen’s secretary who has kind of a rehearsed line that he must have fed to her. She said, “I was told men that are looking to treat this problem, that it is a very difficult problem to treat; he has about 50% success rate with treating men for this”. The initial consultation is 580.00 and you have to pay out of pocket and look to get reimbursed by your insurance company. I guess most of us knew this already.

Not to slam the guy, because he is the only one that I have really read offers solid treatment; but wtf 580.00 for an apt. Has any one been able to get their insurance company to reimburse them for this? It seems pretty excessive for a single apt. I go broke pretty quickly driving out to see this guy a bunch of times if insurance doesn’t cover it.

I guess we don’t have many options though. My primary care dr is trying to network and find a good endo dr as well. Shippen may be the only hope. Has anyone at all found someone else other than this guy, that has a track record for helping guys like us?

Also, Shippen’s receptionist mentioned he has you go for a blood test before you see him, which is obviously a good thing. What does he look to test for? Some of the extensive list of hormones and proteins to get tested for are not covered by insurance.

#68

I’m not sure if the blood test prior to the appointment is a good thing. Mine required blood tests before the appointment and after I realized she had already made up her mind about the possible cause and when it wasn’t on the test I was dismissed. No real discussion about further tests. Make sure you have a short list and clear points when you go.

#69

Martin,

I’m going to wait for the next couple of blood tests to come back before I go to see another dr. I am just trying to find a dr that I would like to see next.

I will be having a test done next week and then another about 6 weeks later. At this point, I am just hoping to see an improvement in the blood results. I am skeptical that anyone can recover from this crap with out treatment. Has anyone actually recovered without meds? I didn’t see any recovery stories of guys that choose to go the healthy route.

#70

I’m pretty damn close. But it wasn’t easy, I’ll tell you that.

Two extended water only fasts along with months on the raw food diet and then the addition of T boosting Supps and E lowering supps and the ball zinger. I’m as close as I’ve ever been to being “normal.”

I’m going to do another fast hopefully within the next year and I believe that one followed up again with another stint on the raw food diet and I will be able to post in the recovery section. Right now, at any given time I have gone from the depths of despair to about 80-95% functionality all across the boards from mental to physical to libido…

It took me about two years to get where I am today.

It is possible. At least it was for me, and I was pretty fucked up, no doubt.

#71

Thanks CDnuts for posting that. I think I needed a bit of lift today. It is such a slow recovery that you start to doubt if it can be done without meds. I will take some time later today and go through some of your posts to see what you did in more detail.

just curious, what are the T boosting supplements and E lowering supplements you are taking?

thanks, bostonusa

#72

cdnuts i agree with your method with the fasting and water only diet, bec i was doing some research (when i thought my problem was my prostate) and i found that this guy larry kapp had prostate cancer and he miraculously recovered by nutrition alone… i looked at his book and he says in 90 days you can cure it, and basicly he says for the first 8 days you do an ultimate fast to clean out your system and balance it…and thats exactly what we need ,(to balance and clean out our system) the fast he says is basicaly to drink fresxh lemons with grade b or higher maple syrup and water like 10 times a day and eat nothing… i didnt try this yet bec im still trying to just eat healthy and vitamins and see what happens but his method will be my last result…bec if it can cure cancer than for sure it can cure us…

#73

I feel you here, believe me. Especially when you are laying in bed after not eating for 10 days and realize you have another 11 days to go. Time can be cruel. But, it can also be our ally in this fight. At least for me it has.

These are what I am taking on a cycled basis. I take each one no more then once a week so, so my body doesn’t get used to them AT ALL. Every time I take them I get the hit I am looking for.

Ashwaganda
Macca
Horny Goat Weed
Tribulis
Butea Superba
Tongkat Ali
Catuba bark
Muira puama
Rhodiola
Mucana puriens
ZMA
Sustain Alpha
Fenugreek
Chrysin
DIM
Quecetin

And of course, the mighty Ball Zinger which I wear constantly and only take off to shower and clean. Because of it’s method of action, its’ one of the very few things I don’t need to cycle.

On the diet front, I’m doing the paleo diet, which is basically like the raw diet I was on but with the addition of meat and eggs and being able to cook some of my veggies. I don’t eat any grains whatsoever. So, no bread, pasta, cereals, etc.

If you add in these supps you WILL notice a difference if done correctly. It was like night and day for me. It wasn’t until I started cycling these that I really began to improve quickly.

#74

Chiller,

That method is known in nutrition circles as the Master Cleanse. i believe you are also supposed to add a bit of cayenne pepper to the mix as well. It’s not a true fast, but it still gives the body a chance to clean out. IMO, water is the best place to start as it gives your body the ultimate time out. It completely shuts down digestion, which takes up the majority of our energy. When on the Master cleanse, you are still getting some nutrition through the sugar in the maple syrup…

Fasting, when done correctly, is very powerful. I would not be where I am today had I not done the fasts I did. That’s for sure.

#75

cdnuts,
I was wondering why you cycle your suppliments,is it cause they have a different mechanism that triggers test or something? also i noticed the last three are for estrogen,do you take those for 3 days straight or every other day or something?

#76

I cycle them because of information I found on this site: boost-your-low-testosterone. … rally.html

The site owner actually became a member of this site after we had correspondence back and forth on another issue. I made him realize that the reason for his low T was probably propecia, as he had taken it for a few months in his past, basically when all of his problems started. He had no idea that it was from the finasteride until I introduced him to this site. He has since made a page on his site about the dangers of propecia and low T. So, more spreading the word which is good.

Anyway, the reasons for cycling the supplements is that if you don’t, they stop working, like you’re not even taking them. When you cycle them, they work EVERYTIME you take them, like clock work. So, stock up, and take them once a week max, move on to the next one, etc.

I take the E lowering supps about once or twice a week. I also take them instead of taking a T booster one day.

I have also started combining supps for really strong reactions which I am enjoying the feeling immensely. For example, when I take Tongkat and Tribulus together, whew, man do I feel like a king. I really tear up the weights at the gym. Another good combo I like for mental clarity is CDP Choline with ginseng. This is really good for mental work when you need to focus strongly. I take twice the recommended dosage and then that’s it. I won’t touch it for another 7-10 days.

I’m to the point now where I am taking a day or two off a week without taking any supplements. I’m starting to get what I call the supplement hang-over. This is a good thing. Basically I call it this because I can still feel the hormonal juice the next morning into the next day. No need to take anything if I’m still feeling it! Plus, I notice when you take two days off and then hit the supps again, you will get super juiced that day. I can basically plan out how I’m going to feel and when. I’m no longer worried that I’m not going to be able to perform at the meeting in front of a shit ton of people or that I’m not going to be able to perform in the bedroom. All of that has changed for me. It’s to the point now where I can create an internal symphony with supplements if you will.

Granted, I don’t think they would work as good as they do if I didn’t do all the supporting things to like a T boosting diet (which is huge and actually more then supportive) T boosting exercises, the right amount of sleep, etc.

Try it. You’ll be surprised at how great it works. Haven’t you ever noticed that you’ll start taking a supplement and at first, it feels great, like its supposed to, then, it just stops working? This is the way around that.

#77

I have had morning wood everyday for the past three days and had a sexual dream last night. This is a strong improvement for me and I hadn’t had morning wood for two days in a row in more than a couple of years. I’m wondering if anyone else has been seeing an improvement in this area? If so, did they stay with you or go away again.

I also had posted that my ejaculate has improved in terms of the amount and force during sex as well.

I continue to feel very mentally sharp, alert, energy has improved considerably along with these other things. I will be going for a blood test this week. If I can see an improvement in my hormone profile it could help us compare these improvments to certain increased hormones.

I’m not currently taking any medications, just vitamin supplements: Tyrosine 1000mg, ZInc 100mg, Vit D 1000 & Calcium. I increased the amount of lean meat that I eat because I read numerous studies that it helps lower SHBG levels. I had previously been lowering my meat intake for the past year, believing it would be more helpful. I also lift weights constantly and cardio.

#78

I have been having morning wood again as well. Sometimes they are full and strong, and other times they are not as strong, but this is coming from someone who had NONE for years. So I am happy with the improvement thus far.

#79

I have been getting it in the last few months on and off, recently it’s been decent. I do feel I have an excess of energy or T in my system right now because I haven’t been able to get my heart rate up in the last month.

I was totally dead in this area though a few months ago after my most recent crash. I had my first two sexual dreams in the past week that I’ve had in years. Both were good, signaling the thought process was working correctly. I hope they continue :slight_smile:

#80

Cdnts

thank you very much. I appereciate your help and comments. Here is my LH and Test values. I could not understand why they are on constant decline. Maybe you or some body can make some comments. I know Mew will ask me to go and see the Doc.I have been seeing the Doc and he has been writing these tests. I have stopped Sawpametto long ago (around Feb,2009)

March 2009
LH 4 range 1 - 9
free Test 30.7 range 25 - 80

Aug 2009

LH 3 range 1 - 9
free Test 29.7 range 25 - 80

October

LH 1 range 1 - 9
free test 24.8 range 25 - 80

I assume , now I around 24 or 25. I don’t know how inhibbitting DHT caused my LH to drop.
I am just concerned if I mess up further with my harmones, My pitutray gland will completely shutdown.