Hi all. New to this forum. I decided to Google “propecia eye problems” when, after almost a year off of Propecia, I decided to start back on it (not realizing that my symptoms may be related to quitting P cold turkey). I thought I noticed a slight improvement in my vision problems after 2 days being back on it. That was the only change I made in my diet/med intake. Finding the improvement suspicious, I executed my Google search and here I am now.
I’ve been seen by 3 Opthalmologists, a Retina Specialist, a Glaucoma Specialist, a General Practitioner, and a Neurologist. I’ve had 3 pairs of glasses in the past year, I’ve been on at least 12 types of eye drops (OTC & RX), three types of allergy meds, had three vision field tests, numerous eye exams, photos of my optic nerves, nerve conduction test, a brain CTscan, a spinal tap, and been tested twice over the past year for HIV and STDs. All my doctors say I am healthy and that there is absolutely nothing wrong with my eyes. Did I mention that my health insurance company has decided not to cover some of these procedures and I’ve had to see some specialists that are out of my plan? This is costing me a fortune.
Meanwhile, I have experienced persistent and worsening eye pain, severely red eyes, itchiness, cloudy, blurry and hazy vision, dull (unsharp) vision in both eyes but VERY BAD in my right eye. Driving at night has almost become dangerous…moving circles around traffic lights, big cloudy blurry brake lights, street lights that look “pixelated”. My body temperature has not gone above 98.1 in months (averages 97.5; normal for me was always 98.6). I’ve experienced abdominal pain, dark circles under my eyes (regardless of how much iron I consume or sleep I get), and suffered a terrible bout of depression. In addition to depression, I’ve experienced terrible anxiety, unable to sleep through the night, and horrible restlessness (unable to sit still, moving feet/legs around, and rocking back and forth.
I am now on Ambien for sleep and Lexapro for depression. This has helped me get through the night, and day. I feel like I am now able to fight this problem again (with the depression, I had just given up). But, I don’t know where to start as all my doctors are unable to find anything wrong. I am terribly afraid that, by the time they figure it out, the damage to my eyes will be perm. It’s been a year already - how long can nerves experience pressure/pinching/etc before the damage is irreversible?
Does anyone have any advice on where to start? Or a suggestion for a doctor that can determine if my problems are Fin related?