BIG NEWS FROM ITALY

General Discussion
#41

yes the researcher told me that he knows by his studies that fina damage the central nervous sistem but after discontinuing it it should return fine .

I told about our cases that CNS didn t come back and sexuals abilities too,so he said it is strange but he believes me/us …so he told me he’s very “happy” to study the case cause he proposed a study where was found thata even at 1mg fina can cause sleep problems and nervous problems,but it was not considered … anyway yes fina can damage CNS but should be just temporarly and not forever like us,so he wants to understand why ours didn’t come back to normal (he’s a great researcher just of 5AR,so he should know many things .)

…more he said me that he’s just a researcher and so he can’t do the tests but he will organize me a “group” (I think an endo and dermatolog) to make the tests like fibroblast and gene expression .

I’ ll post soon…I hope he’s not a lier and he’s telling me the truth and will help !

#42

awesome

#43

my one thoughts are that i’m googeling a lot and i ve found many ppl speaking with doctors on internet suffering of ED and their simptoms are the same of ours,I mean : one guy used a pump or something like that and after it he had ED problems and he mentioned no sensitivity on penis,cold penis, etc similar to our problems …so I 'm afraid our problem is not about 5AR gene but anyway… only tests will answer at these questions…

#44

just spoke 3 minutes ago with the researcher here in Milano.

He said me he’s organizing a clinical group for us/me and another friend I have with same issues and will call me soon ,very soon I hope .

…More next week I ll go to Switz to my father’s friend that is a researcher and is organizing an appointment with a biological clinique.

So I ll post when I know something .

#45

In my personal opinion, actually, this is the best route.
We need to do extensive tests by scientific researchers.
The big difficult is that the prostate gland is very difficult to test and its function it’s not very well known. Definately we all have an excessive aromatase activity given our testosterone levels. DHT is also a kind of aromatase inibitor (read about proviron properties) and i think our prostate is not doing apropriate conversion of testosterone in dht so the estradiol rises.

Hope…

#46

very good… you need more people for research? italy is not that far away…
i could arange that

#47

For what it’s worth, I’m in South Germany until next Friday.

#48

yes,I still don’t know when he will call me back,when he will,I will ask him what does he need if many persons to get to him or whatelse… if he needs people to test ,I will tell for sure,don’t worry,I ll not desappear .

#49

Italy if these Milan scientists really interested, could you ask them if they
would like to correspond with Awor doctor or scientist ?

since he already have several ex- propecia user as patients (which include Awor). He may be able to help with the research based on the facts that he have.

Also he could boost our credibility to the milan researcher that what
happened to us is real problem.

#50

ok, i can ask everything to them just when they ll call me back .

in the same time ,what is awor’s doctor name ? …so if they contact me,i ll tel … ok, i PM to awor and ask him directly .

#51

This mornig I wrote to the researcher…just to have some news about what he thinks or what the news are.

So he wrote me back saying he has read our forum and all our symptoms are what he has always sustained about fina…and he is still waiting for some clinic reply he had contacted about the problems,cause he needs doctor clinic to have the tests we need to test…so he said me that the doctors take a long time to reply and it 's not easy to find some cause we need a neuro-endocrine doctor…

I put here the e-mail he wrote me in italian ,just to let u guys see what he wrote me :

Caro xxxx ,
ho dato un occhiata al vostro forum per farmi un
idea un po’ piu’ precisa delle vostre
problematiche. Come le dicevo, essendo un
ricercatore di base il mio è sicuramente un
interesse scientifico e quanto ho letto che non
fa altro che confermare quanto ho sempre
sospettato su questo farmaco. Tuttavia come vi
dicevo, per un possibile intervento ho bisogno di
un appoggio da parte di un clinico. Ho contatto
un paio di colleghi (endocrinologi) e per il
momento sto aspettando una risposta. Purtroppo i
vostri effetti collaterali implicano un expertise
non solo endocrinologico (visto i disturbi
periferici alla riproduzione), ma anche
neurologico e trovare qualcuno con questo doppio
expertise non è semplice. Vorrei anche
sottolineare che purtroppo i tempi dei clinici
sono sempre particolarmente lunghi, e pur
comprendendo la vostra fretta, ho bisogno un po
di tempo per cercare di interessare qualche
collega.
Un caro saluto

#52

Google Translation from Italian to English (with some edits by me):

"Dear xxxx,

I had a look at your forum to give me an idea of the state of your issues.

Like I said, doing basic research is certainly my scientific interest and what I have read confirms what I have always suspected about this drug. However, as I mentioned previously, this is a position I need to support with a clinician.

I contacted a couple of colleagues (endocrinologists) and I am currently awaiting a response. Unfortunately, your side effects imply an expertise that is
not only endocrinological, but also neurological… to find someone with this double area of expertise is not easy.

I would also like to point out that unfortunately the timing of clinical studies are always long, and though I understand your hurry, I need some time to try to reach colleagues.

Salutations."

#53

Thanks for the translation. Excellent.

#54

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#55

This is a great news we now have a researcher that is interested in our
case. Well done Italy :smiley:

#56

yes,sorry if i didn’t traslate but had not time…anyway i hope he will not forget about us,i ll try to write/call him soon,but i think we are talking about after summer ,something like september…

#57

ok guys,can’t believeit,the researcher wrote me back… he wants two guys,he says for now he need small numbers of guys so i will go with another friend i have … for now he said me to write an e-mail to a neuro-endocrinologic doctor that will help the researcher to find what is going on … i put the email,mew please translate it cuse i can’t .
thank you ! hope everything will be right !!!

Caro xxxx,
sono riuscito finalmente ad interessare un mio
collega clinico di Roma che ha anche un buon
expertise steroideo e quindi molto probabilmente
potrà aiutarci.
Il suo nome è Prof. xxx
Contattatelo per email:
Sostanzialmente quello che ha bisogno per il
momento è copia per email (quindi scannerizzate)
dei vostri ultimi esami ormonali (androgeni,
progestinici, LH, FSH ecc. cioè tutto quello che
avete).
Quindi singolarmente la vostra situazione
clinica. No so in quanti siete in contatto fra di
voi, ma credo che sia opportuno per il momento
ridurre al minimo le persone. Quindi io direi tu
e il tuo amico che mi ha telefonato per primo.
Poi vediamo.
Fatemi sapere.
Un caro saluto

#58

Translation edit by MEW:

"Finally, I have managed to interest my clinical fellow in Rome who also has expertise in steroidogenesis, and therefore most likely can help. His name is Prof. xxx, contact him by email.

Basically what needs to happen is, send him a copy of your individual clinical situation by email (including scans of your recent hormonal examinations - androgens, progesterone, LH, FSH etc), but not those who you are in contact with.

I believe it is appropriate for the time being to minimize the number of people, so I would say you and your friend who called me first should contact him.

Then we’ll see… let me know."

#59

Italysideseffect, puoi contattarmi in privato per cortesia? Ti ho inviato due messaggi ma non mi hai mai risposto. Ti ringrazio, ciao.

#60

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