I have decided I do not want to live like this anymore and looking for someone to meet to end our lives together?..I am too gutless to suicide alone and need someone else next to me who truly understand what suffering is…I am sourcing out a chemical which I have a pretty good source I think I can find and will have all the materials needed for a peaceful exit…well its not hanging or gun shot, so its the best possible way and most likely least painful…so I’ve heard.
I am like all you guys who wished there is going to be a cure but its not coming soon, we have to realize this…if you can put up with this feeling for a couple more years then that is fine…I respect and love life too much to go on living like an invalid…I know when I have to leave and accept what has happened now…anyone can contact me if you are serious about talking about an ‘exit plan’
I really dont want to go alone…I am in australia and will travel if need be to meet my last friend…again I am serious and looking for someone who has had enough also…I believe together we can share stories and offer a real friend before we end it all…just physically that is…we will move on to something else I hope…I am not just doing this cause my dick dont work that will be stupid…its more what this has done to my spirit than anything else…
I am sorry to post something so negative on here, but I have nowhere else to find someone who has been ruined by this drug…
When did you crash? and what symptoms are you dealing with?
lukas, we understand what you are going through!
Can you get to the US for the PFS studies?
Please don’t. We’re making a real push to get enough volunteers for the clinical studies, and I intend to be part of it if I’m eligible.
The purpose of the studies is to find a cause. Once we know the cause, we can start looking at treatments. Give it a year or two minimum.
Don’t give up now. Look at how far the PFS Foundation has come. Just hang in there and let’s see where there things go.
thanks all for replying I appreciate it…I crashed last year in may 2013…didnt know what was going on…the freaking floor started to move and bend when I looked down…I could ‘see’ little things moving on the sides of my vision like little things sort of crawling…I have severe brain fog I feel like I am not here at all…extremely sore lower back…bad head pressure headache all day still…ringing ears…very sore head…emotions are screwed…lost my lob in January inability to stand working with people and too tired…I get scared of people for no reason…like they are closing in on me…when I look at cars moving it can get too much…I am seeing a psychologist who is trying to make me realize like this is not me…just bad symptoms and maybe I have to deal with them…I have seen a spiritual healer who said my brain need to signal my body to start producing testosterone again…I get anxiety everytime I go to the toilet and have to look at my penis…its gone all ‘jelly’ like with no weight to it…and veins everywhere…if I do manage to get an erection its like a 8 year old small penis and extremely skinny…cant understand why its damaged the muscle tissue down there…severe man boobs and have a huge gut now with a very skinny body everywhere else…
I have tried a few things…I have thought about coming to the states to do this study…I have anxiety meds I can take for the flight but I get so nervous thinking about this…if I will make it there…
I am just so hurt I did this too myself…my body gave me a chance to stop this drug but I couldnt read the signs and I poisoned myself further…all because I was scared of loosing hair…
I am not sure I will have the strength to go another year like this with everyone around me thinking all I need to do is take an antidepressant and get better!..I have not touched them as they will make me worse…thanks everyone for listening
I think you need to just take a step back and not worry about a cure for all of this as it will not come overnight or maybe even at all.
You need to get in the gym. Go every day. Even if it’s just light walking on a treadmill every day. Don’t focus on girls or how bad this sucks. Just eat as good as you can and get as much in at the gym as you can.
You just need to think “no pain”.
Have the I will fix this or die trying attitude. Death may be the only way out of this but die from taking shit trying to fix this and from working to hard in the gym. No giving up no matter what . Fix or die trying.
This guy is talking about suicide and you say him forget to cure? You seem like dont know anything about pyschology…
Exactly, telling someone there might never be a cure is the absolute LAST thing anyone in this mental state needs to hear. I was in that state for a very long time and having people giving little hope makes things even worse… unless your trying to drive someone over the edge you should talk about how things do improve in the mental sides over time at least for many of us. I have reached a point where I can sort of live with this, my life has been destroyed in the process like many others here, but life is more about living and enjoying what you can instead of living the perfect life as long as you can take some enjoyment out of things even as small or minor as they might seem life can be worth living.
Our current world doesn’t make it easy, not that the world has ever been easy (humanity isn’t too friendly regarding depressed people) but I had to re-think what I wanted out of life. It’s not what I wanted or planned for, and it doesn’t suit me but I am making it work and I do hope for significant progress in the future. Many of us are relatively young, 20’s, and 30’s when my grandfather was in his 20’s they were just starting to experiment with space technology, rockets, and very rudimentary computers… he is now 88 and in good health, he could easily live another 10 years the way things are going. I think about how far our technology has come since he was my age and it gives me hope… of course I don’t want to wait till I’m in my 80’s to be cured, but to be honest I don’t think it will take that long. I don’t believe this condition is as complex as cancer which is caused by DNA mutations and more of a inherent condition this was caused by a medication, something was fundamentally triggered and changed biochemically, we just need to isolate the cause and mechanisms behind it.
Even if I have to live with this for awhile it will be worth it to at least see wider understanding of this condition so that all that has happened to me because of it, can be in some way justified and the medical community can no longer simply brush us off as psych cases.
To some it up, give it some time… focus on the good aspects of your life no matter how minor they may seem… pickup a hobby even if its a waste of time to distract you from thinking about it 24/7. Accept that your life may not be the way you wanted it before PFS but you can still enjoy your time here on earth even with PFS.
Actually I put more thought than you guys think into what I posted.
My post was for the purpose of getting him mentally able to be able to live with it instead of hoping for magic cure. Magic cure meaning I take a pill every day and feel better. We know from the recovery stories on this website curing PFS is not that easy. It’s like saying all someone suffering from pfs needs to do is take testosterone and they will feel better. We know enough about pfs to know it’s not that easy. Even though I say in my opinion this magic cure may never come I do think we will learn more about what type of hormonal issues we are dealing with in as well ways to help combat the symptoms.
But cure or no cure a guy saying he’s going to end it because of such and such symptoms needs to go and at least get control over the symptoms he has the ability to get control over like his “gyno” and being out of shape. The gym will help him with both of those issues resulting in him being happier than he is now in the long run.
I for one feel better mentally every time I make an improvement in my diet and in my work outs even though I have not thus far been able to get improvements in my ED. Why is this?
Because of control. My brain is saying hey he has at least some control over this situation. That’s how are brains work. More Control means easier time dealing with these side effects.
There will be no cures without enough people to participate in the research studies.
…I have thought about coming to the states to do this study…I have anxiety meds I can take for the flight but I get so nervous thinking about this…if I will make it there…
[/quote]
DON’T BE SCARED OF FLYING ACTUALLY WHEN YOU ARE IN THE AIR ALL YOUR SYMPTOMS REVERS
YOU BECOMING NORMAL PERSON SOMETHING HAPPENS TO THE BODY ONE IT’S UP IN THE AIR THAT ALL OF THESE PFS SYMPTOMS GO AWAY
IF YOU HAVE THE MONEY AND THE TIME COME TO THE US AND DO THE STUDY
What the? As if this condition isn’t complicated enough, do we really need trolls spreading bullshit?
Cut this crap out.
DON’T BE SCARED OF FLYING ACTUALLY WHEN YOU ARE IN THE AIR ALL YOUR SYMPTOMS REVERS
YOU BECOMING NORMAL PERSON SOMETHING HAPPENS TO THE BODY ONE IT’S UP IN THE AIR THAT ALL OF THESE PFS SYMPTOMS GO AWAY
IF YOU HAVE THE MONEY AND THE TIME COME TO THE US AND DO THE STUDY
[/quote]
this all makes no sense . I don’t understand what you are trying to prove here.
DON’T BE SCARED OF FLYING ACTUALLY WHEN YOU ARE IN THE AIR ALL YOUR SYMPTOMS REVERS
YOU BECOMING NORMAL PERSON SOMETHING HAPPENS TO THE BODY ONE IT’S UP IN THE AIR THAT ALL OF THESE PFS SYMPTOMS GO AWAY
IF YOU HAVE THE MONEY AND THE TIME COME TO THE US AND DO THE STUDY
[/quote]
What?! Have you experienced this??
I think on reflection he is just in a bad place. It’s not serious, just desperate.
I think if these studies go no where, there will be alot of suicides. Including me. I am going to follow up with more testing and wait for the studies. After that im done with this hell.
Can you partipicate studies?
Ive reached out a few times already. I never get anyone to follow up with me.