I’ve had a shit deal since PFS like many of you. Crippling cognitive sides with me, that resemble a mind, after it being smashed in a severe car accident. No cure in sight. Basically homeless now. Am i the only one, who has taken to drink for relief, and from the immeasurable cognitive suffering?
There’s no relief in alcohol, only further suffering and you will suffer till the end of your days if you keep going that way. We are stronger than that, You are stronger than that. Give up alcohol and use that money to get back up in track.
I do.
Can’t get drunk though.
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@tab. Yes, I understand and agree with you. I’ve had PFS since January of 2008. It can only make things worse, but I’ve had a very hard life, on top of having disabling cognitive side effects due to PFS. I don’t have a support group and my family has shunned me. I have the worst mental sides with some others on here. 10 out of a scale of 1-10. Total new scary reality every day non stop. Dissociative disorder and feeling completely 100% not connected to reality. Like living with a brain injury. The beer relieves some of the suffering, as sometimes I feel it’s futile to suffer with no relief and no cure in sight. Just my prerogative, but thank you for reaching out.
@gennaro. I knew I wasn’t the only one. Your right. It is hard to get drunk normally, as our systems are completely imbalanced.
@both of you. When i lost my mother to cancer, and seeing her die an excruciatingly painful death, I turned to drink after she passed on in 2011. Life became unbearable for me. She was diagnosed with stage 4 cancer at the same time I got sick with PFS in 2008. The first three years of PFS, I was clean and didn’t drink and took better care of myself - even when i had to deal with my abusive father and taking care of my mother while being very ill myself. My father became even more so abusive towards me after my mother had died, and my family and friends cut ties with me. Dealing with too much by myself, with no help from anyone, on top of PFS has been incredibly hard. Most likely harder than most on here who have PFS. I was never a big drinker in my life. I still eat very well and healthy and exercise often.
Fuck Merck, the FDA, and the horrid political system in place, that favors big money pharma, and ignores the safety of regular consumers. Kills and harms us all - for greed and maximum profit.
I can relate with ur mental sides. I feel like a ghost floating around with no connection to the world. My entire body is numb when i talk to people im like a robot
Yes, there is no connection to the wold or people around you. Total numbness. I also get lost very easily, and disoriented/confused, especially on hikes through the forest…like relying, on some form of impaired instinct, solely, without proper cognitive processing. It’s as if something is blocked or damaged in our cognition… it feels asif our cognition will eventually be lost in total amnesia. Scary. I already have a letter, from my shrink, stating that I am cognitively impaired, with no chance of working.
I will say, Adderall helps a lot. I wish I could take it, but it exacerbates my dry eyes and stuff… But otherwise I would totally take it. Breaks me out of my fog and slump always, and brings my swag back. It could really be a good treatment for you guys with all the mental sides and depression. Really, I took the drug for 4 years, and it can be an amazing thing for certain people. Especially after hearing what you two have posted above.
I havebt drank since November 2012, 3 months after crash in august. I spiraled out of control on the booze. Life has not been easy, but I think the alcohol would have made things much, much worse in my case since I have an alcoholic nature before fin anyway. So id say get off it, there are many people in the world with fucked up illnesses that do not self medicate with alcohol. Just bc we are damaged we don’t have to make it worse.
All I do is drink. I have permanent damage. Turned me into a introvert zombie, still so after 6 months of quitting. Lost my gf, lost touch with my mates, because I simply don’t contribute to ANY conversation anymore… due to brain fog. POISON POISON POISON POISON POISON POISON POISON.
After almost 10 years now with pfs I’ve started drinking lightly again. Usually only one or 2 beers max, once or twice a week. I really miss a good beer buzz. Not sure if I’ll ever be my old self again, hell I’m 10 years older now. I’m certainly better than 2008, crying on the way home from work, barely hanging on to make it through the work day. I tire very easily anymore but feel sort of normal during parts of the day, usually after resting. I’ve been a runner before pfs and for the 10 years after. It has really saved me. Not a cure but a tremendous help. I’m still hopeful the studies will find out what has truly happened to our bodies. Sure wish they would release them soon. You have to have the patience of a saint with pfs. I guess I’ve waited this long.