Any of you here U.S. military veterans on this forum with pfs?
I need some help with dealing with VA doctors and getting help. So far, for the past 6 years, I have gotten nowhere with them in terms of getting any real help. Please contact me when you can. Could sure use some advice. Very frustrated.
Thanks!
Rob
I’m a military vet. Did you get PFS while in the military? Honestly, I don’t know what any VA doc could do that others docs couldn’t. Are you just looking for financial help?
My understanding is that if you are a vet you should be able to get medical help at your local VA hospital. I had to go to the hospital and sign up for care. I don’t use the VA as it’s a major pain in the ass. We all have seen the recent news reports; the VA hospitals are “a little behind” in seeing patients.
Nope. I got PFS as a civilian or post military. Well, the VA is a totally different animal. Just trying to justify seeing an endocrinologist is impossible. I’m getting ignored, even after telling the doc. I’m feeling like shit since stopping fin. many years ago.
I have no choice, but to go to the VA. I am basically disabled from fin. and PFS. Got all the sides. Cognitive sides, are what disables me. Even if I mention my PFS sexual sides to him, he tries to tell me there is nothing wrong with me, and instead of sending me to a urologist, as I’ve asked, doc. insists on sending me to see a shrink. I give him all the info. I have and a list of all my sides. Basically, laughs at me, and makes me feel like an idiot NO MATTER what evidence I present or info. Might have to go to my congressman just to force them to have me see a urologist. lol. I understand there is no way yet to diagnose this shit, but this is fuckin’ wacked.
Can you file a complaint?
Calling your congressman might not be a bad idea. My mom had to do that once when she was having trouble with her Social Security disability. Apparently she talked to the congressman’s secretary and within two weeks the issue was resolved.
Going to have to. BUT, the essence of the problem, is really, that PFS has NO official diagnosis.
I “appear” fine to the doctor there, but he fails to comprehend or even acknowledge the real physical signs of something gone wrong. Like my complete crap, thin, curly, and frizzy hair change, the loss of hair on a large portion of my legs(like old men with bald legs), very slow hair and beard growth, thinner beard…
What little(very little) blood work they have done hormonally etc. turns out normal, or according to them.
A real uphill battle when you feel like shit from PFS, plus at the VA, the docs are real pricks, because you need to convince them just to do anything. The gate keeper primary care doc., is the wall, and in order for him to even send you to an endo. or a urologist at the VA, he has to be convinced, or face scrutiny from his higher ups. But honestly, under his smug smirk grin, I can see he thinks this is all in my head still.
Appreciate the feedback guys. I am at a loss. Had this shit ghost sickness since 2008. TOO f’n long…
How are you treating your PFS? Seeing a private doctor? Can you work?
At this point I’m wondering what the point is of seeing most doctors. I mean, we’ve all been to multiple doctors without much success (Legendary is the only one I can think of that stumbled upon a doc he thinks is helping).
I’ve spent thousands of dollars on doctors and have only blood work to show for it.
I spoke with Dr. Crisler over the phone and he was able to recommend a doctor in Denver. Will this doctor be able to help? Odds are no, but at least I’m starting with someone who actually believes me and has a treatment plan for people with side effects from Finasteride.
I guess my advice to anyone would be to start with one of the doctors recommended on this site.
I’m currently seeing a “Functional Medicine” doctor who is treating me for multiple things. I’ve got bad Methylation or whatever that is, apparently I have a mold sensitivity so I’m working on that, she used my 23andMe results to figure out a couple other susceptibilities I may have and gave me supplements for that. She believes that people’s health problems are more of a whole body type thing. She thinks I was probably unhealthy before Finasteride and that it just put me over the edge. I stick with her because she’s the closest thing I’ve found to a doctor who believes me and is willing to try various things. However, I still think PFS is something that stands on its own and is not something that just “put me over the edge” health wise. I’m really just seeing her to try and get healthy as possible in whatever areas I can influence and maybe that will help my overall suffering.
I spoke with Dr. Crisler awhile back and he recommended a doctor in the Denver area named Terry Grossman. He is an anti-aging doctor. I am calling him this week to set up an appointment. I’ve already spoken with his assistant who said Dr. Grossman has seen people with side effects from Propecia before. Will he be able to help me? The odds aren’t in my favor. However, at least I’ll be dealing with someone who believes me and has protocols in place. That will be refreshing.
I was working, but lost my job. My wife had to get a full-time job because I’m scared to death to start working again. My eyes are fucked up and it’s very difficult for me to read for prolonged periods of time. I don’t really know what type of job I can get with these eyes.
I m like you. After tried everything , last week i bought on amazon the supplements “suma root” and “jiaogulan” and i m starting to feel better.