do you know for sure that the antibiotics they will give you have the same properties?
Not even the worldās best scientists could tell you.
I know that a severe case here who used more common antibiotics without incident, but worsened dramatically and hasnāt recovered from taking one pill of an antibiotic used for treating a rare skin disease but also acne.
For me, this thread highlights one of the biggest worries of PFS that canāt be ignored.
Well I know I said Iād be off here for a cppl weeks but today something troubling happened. Since my crash my breath has been really bad I just attributed to swamp mouth that I get time to time. Except earlier today i noticed behind my molar there is a hole in my gums that is clearly infected and my gums are swollen and hard. There is no pain but itās for sure an infection. So Iām back here again. Facing my worst fear. My worst dellemma. I am certain I will be recommended antibiotics. Iām trying to stay calm. As it honestly truly seems like being punshied for something from a past life at this point. Uponnmy recent crash, my break up, my insane symptoms. Now this. But Iāve decided I will simply not be taking them. If I have halitosis forever and my head rotts off then so be it. If there is the possibility they can remove the tooth (which is impacted and embedded in my jaw) I will go through with this major surgery and major financial burden in hopes they can cut and clean out any infection. Iāll endure that pain and bone loss and protracted recovery because im 38 and not 17 whne most ppl have wisdom teeth out.
But antibiotics are simply not an option for me. I think eventually something will take me off this earth and into the stars but not yet.
I feel like im annoying on here and Iām.sorry.
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Never annoying. Your sharing the story of your path. Iāve woke up to these holes too. Personally I think itās the immune system attacking the tissue, its often accompanied by the further loosening of skin which u recently described. .Try gargling with Himilayan salt. Ive been using it lately in small amounts it helps the adrenals too. I used the recommended amount initially which was foolish. Good luck.
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Thank you bruv Iāve been gargling salt like mad. My gums are certainly in bad shape . So thin. Luckily the blood I can suck from the hole seems to be a lot less maybe thatās a good thing idk. Ive just simply decided Iām not taking antibiotics ever and if that kills me in the end so be it. But I wont suffer that crash cause I know it would be the end of my mobility and sanity. Laz you are truly a gift to this forum a we are all so appreciative of you. God speed fellow sufferer on our journey. I will post the outcome of my visit tomorrow
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Thanks man, keep us posted I pray for you
Update
Yep itās infected. And Iām sensing due to the surface area of the swelling that itās the wisdom tooth the molar beside it and where I had my other removed is all infected in the tissue. There is no pain but there is pus and swelling and a foul smell. Im feeling like its all infected Im hoping thats not the case but i kinda can feel it is. She says i wont need antibiotics if they remove the tooth are are able to clean everything out. This is my best case scenario. Either way im looking at a few grand for this wonderful procedure .The earliest consultation I could get with a surgeon is at the end of May. Until then I have a mouthwash to use and prayer it doesnāt spread or get worse
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I know how worrying this must be with everything being comprised. Iāll be thinking of u and will offer up a reg prayer. Good luck Bro
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Thank you bro 
hoping for a positive outcome where I donāt have to take them
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What was the common antibiotic that didnāt effect them?
Doxycycline - He felt terrible during treatment. Had some head pressure, but all things went back to baseline after he stopped taking it.
Ceftriaxone - Only had diarrhea for a while. Well tolerated.
Amoxicillin (?) - He said he thought he took this one too for a dental procedure. Canāt confirm. Whatever it was, he had zero side effects. This is what I got for a dental abscess cleaning, too. Personally, one of these fucked me for a few months in terms of bringing my NMN supplement-induced dysphagic symptoms back. It also brought back other symptoms for only a day or so.
If it werenāt for the NMN, I think my life would be a lot different. I pray that you will get through this one, hippydoof.
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Thank you man this is a great breakdown . Im scared shitless of antibiotics itās my number 1 substance Iām afraid to take like a dark cloud looming overhead. Has you NMN cleared up some? Appreciate the prayers dude i need em right now
What did they do when you couldnāt take amoxicillin? Did it go away onnts own? My gums are seriously infected. I am fucked
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The infection went away on its own in my case.
I am so sorry, man. Sooner or later this will be my predicament too as I want to get a surgery to save my life.
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Thanks man. Itās a scary situation. Today the inflammation has gone down a bit and my mouth doesnāt taste like an absolute sewer. Hoping my body can fight this if i keep gargling salt and doing the mouthwash. You need jaw surgery ya? I hope a time comes when you can have it done with less of a crash risk. Thanks for getting back man 
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I donāt know whatās what anymore
I donāt know what to do
I think I have sepsis. I am meeting the criteria of the infection spreading but also crash symptoms are the same. I was feeling so ill yesterday.
Swelling on gums has gone down but pressure on ear and eye in that side if my face. My stomach is churning my derelaization is insane. I am extremely fatigued. I accidentally swalled some of the anti bacteria mouthwash. Maybe thatās causing this. itās also signs that the infection has spread. Hot and cold flashes. Muscle twitchesā¦ I have all this shit already. Iām just fucking done. Iām.so tired guys Iām so so fucking tired. I want to scream and cry. This has been a merciless beating the past 1.5 months and Iām hanging on by a thread.
Iām going over this in my head there are a few ways this tooth shit will pan out for me
- Miraculously it goes away and Iām okay (not likely)
- Dental surgery to remove tooth and can clean out infection (low probability)
- Dental surgery plus antibiotics (most likely)
In event 3 I will prepare my will and take out the $10,000 thats owe to me. Spend some before taking the plunge and leave the rest for funeral costs. I am not saying I will kill myself before doing this. No ill take the antibiotics and endure the reaction. If however it completely devastes me then I am checking out. Iāve suffered long and hard. Over 20 years and I wonāt live a life if Iāve truly lost everything. I know the horrors of this disease but I know it can get much worse. And worse is a place I will not live in. My bones, connective tissue, muscles, cognition are already so impared. My humanity and identity is something I am barely clinging on it. I cant imagine crashing to hell and having major dental surgery with my connective and bone issues being in a crashed state. But thatās getting a head of myself. Just planning a head. I was so very sick yesterday. Mentally deranged really. Havenāt slept.
God please help me to overcome this. These are some of most trying times of my life and my fight is not what it used to be. Guys I am not well at all and thereās no signs of this really letting up. Please let this pass
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If you believe that you have sepsis please seek medical care immediately. My cousin passed away from sepsis. Every second counts.
Thinking of you @hippydoof
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Iāll be going to the hospital tomorrow if I do not improve. I am urinating a lot which is a good sign I do.not have it but I have all the other hallmarks which mimmick this disease already
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Hello mate so sorry to read this, when I had gum grafts I was given a course of antibiotics I canāt remember which ones, I was very worried but they did their job and I had no illl effects, so youll probably be okā¦ I cant say with 100% certainty but I suspect a lot of what your experiencing is pfs at its worst. When its like this it feels like the end, weve been here before, many times and pfs mirrors so many conditions with the symptoms being so varied and widespread.
I understand and comprehend the feeling of having no fight left when enough is enough, but it will pass .I truly believe it will.
Praying for you Bro
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Thank you Laz Iām hoping this passes bro. Iāve been bad but this feels different. Today was insane but I managed to get through. Luckily Iāve been pissing a ton so I dont think itās sepsis but Iām not 100% sure. Feet to the fire. things have somewhat eased off as the day went along.
Will be moving with my dad if I crash hard off the antibiotics I told my family today so I have a game plan at least.
Much love bro and thank you as always
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