Hi! I have found and lurked on this forum for weeks now. Originally, I found out about PFS through people on the Ray Peat Forum and was amazed how the symptoms perfectly described me.
Only issue is, I never took Propecia, Finasteride nor accutane, anti-depressants or any other drugs.
But I have had these symptoms since as long as I can remember. I basically have never had morning erections or spontaneous erections. I need intense visual and physical stimuli to get and stay hard and my orgasms have become weaker and weaker. Abstaining from masturbation or porn have no effect and feel like it make things worse.
It has basically been like that forever. I have first had sex at 14 and felt nothing inside the vagina. It has been like this ever since and I had major trouble getting hard for sex.
Problem is, I am super horny in my mind, but it seems like my mind is disconnected from my penis.
The few times in my life I have waken up with morning erections felt like I had a different kind of energy flowing through my body, I am not kidding … as if something connected the night before and my body started producing testosterone for once …
I have had detailed blood tests done twice and I will try linking them to this thread somehow. The major things that came up were low T (about 300ish), extremely low total cholesterol (about 80), and high-ish prolactin.
I have tried all sorts of diets with no real results. Paleo, intermittent fasting, lots of vegetable juices, super clean eating, Ray Peat type diet. Nothing really does anything, some things make my condition even worse.
I have been to several doctors who run tests, ultrasounds and all, only to tell me that nothing is wrong or it is all in my head. They really don’t care about my low Testosterone or cholesterol and don’t want to prescribe anything like TRT that might help. I have thought about self-medicating Testosterone but I am always thinking about trying other methods first.
Other symptoms that I have are extremely low energy, trouble getting out of bed, general weakness, brain fog and recently a big one, extremely high blood pressure that sometimes manifests itself as pulsating headaches. I have done several tests including kidneys and all, but the doctors don’t seem to be able to find the root cause.
All in all, I feel like it might have something to do with dopamine and androgen production. Everything seems to be screwed up.
I come to this forum because I believe, there are people on here that might have a clue as to what is going on.
I’ll try posting and attaching my blood tests. Thank you!
EDIT:
These are my blood tests. I took two detailed blood tests two months apart. Here they are:
Blood Work 1:
- LH: 7.7 (1.7 - 8.6)
- FSH: 3.8 (1.5 - 12.4)
- Prolactin: 346! (86 - 324) clearly high Prolactin
- Testosterone: 3.93! (2.49 - 8.36) clearly low T
- TSH basal: 0.94 (0.27 - 4.2)
- Free T3: 4.4 (2 - 4.4)
- Free T4: 1.6 (0.9 - 1.7)
- Vitamin D: 46 (31 - 100)
- Average Blood Sugar: 100 (80 - 120)
- Cholesterol: 89 (<200)
- Triglycerides: 75 (<200)
- HDL-Cholesterin: 42 (>40)
- LDL-Cholesterol: 32 (<150)
- CHOL/HDL: 2.1 (<4.5)
- LDL/HDL: 0.8 (<3)
- gamma-GT: 18 (<64)
- GOT: 25 (10-50)
- GPT: 26 (10-50)
- Alk. Phosphatase: 66 ( 40 - 129)
- LDH: 178 (135 - 270)
- Amylase: 62 (28-100)
- Lipase: 19 (13 - 60)
- Uric Acid: 4.7 (<7)
- Creatinin: 0.9 (<1.2)
- Renal Function: 123
- Potassium: 4.6 (3.8 - 5.3)
- Sodium: 141 (137 - 147)
- Calcium: 2.4 (2.1 - 2.6)
- Magnesium: 0.98 (0.7 - 1.05)
- Iron: 169! (40 - 160 ug/dl)
- Acid Phosphatase: 5.8 (<6.6)
- Total Protein: 7.3 (6.5 - 8.5)
- Albumin: 60.9 (55.8-66.1)
- alpha 1 - Globulin: 3.8 (2.9 - 4.9 )
- alpha 2 - Globulin: 10.8 (7.1 - 11.8)
- beta 1 - Globulin: 5.4 (4.7 - 7.2)
- beta 2 - Globulin: 3.4 (3.2-6.5)
- leukocytes: 10.5! (4 - 10)
- erythrocytes: 5.00 (4.6 - 6)
- Haemoglobin: 15.1 (14 - 18)
- Haematocrytes: 47 (40 - 54)
- MCV: 94 (83 - 95 fl)
- MCH: 30.2 (28 -34)
- MCHC: 32.1 (32 -36)
- Thrombocytes: 303 (150 - 351)
- MTV: 10.7 (7.2 - 11.1)
- Neutrophile: 53.5 (50-70)
- Lymphocytes: 35.3 (25 - 45)
- Monocytes: 9.9! (2-9)
- Eosinophile: 1.0! (2-4)
- Basophile: 0.2 (0-1)
- IG: 0.1 (<4)
- Microcytosis: 0.5
- Macrocytosis: 4.2
- EVB: 12 - (11.5 - 14.5)
- HBA1c: 5.1 (4.3 - 5.9)
- HBA1c: 32 (23-42)
Blood Work 2 (2 months later):
- LH 3.8 U/l (2-10);
- FSH 2.4 U/l (1-7);
- Prolactin 194 mU/l (<500);
- Testosterone 16.4 nmol/l (>12);
- SHBG 28 nmol/l (11-71);
- free Testosterone 379 pmol/l (>250);
- Estradiol 99 pmol/l (<250);
- PSA 0.9 µg/l (<4);
- DHT 0.74 nmol/l (0.50-2.00);
- 25-Hydroxy-Vitamin D3 63.5 µg/l (25-70);
- Cortisol basal 133 ng/ml (62,4 - 180);
- IGF-I (restand.) 268 ng/ml (117 - 323);
- TSH 1.38 µU/ml (0,27 - 4,2);
- free T3 3.94 pg/ml (2,0 - 4,4);
- free T4 1.33 ng/dl (0,93 - 1,7);
- anti-TSH-Receptors not measurable (< 1.8);
- anti-TG 24.4 U/ml (< 115);
- TG sensitive 1.94 ng/ml (< 61.3);
- Androstendion 2.09 ng/ml (1.3 - 4.3);
- 17-OH-Progesterone 4.44 nmol/l (0.15 - 4.85);
- DHEAS basal 4.72 µg/ml (2,11 - 4,92)
- Uric Acid 5.2 mg/dl (3,6 - 6,5);
- Harnstoff-N 11 mg/dl (< 24);
- Kreatinin 0.8 mg/dl (< 1,3);
- Bilirubin, gesamt 0.4 mg/dl (< 1,2);
- eGFR (CKD-EPI) > 90 (> 90);
- GOT (AST) 20 U/l (10 - 50);
- GPT (ALT) 26 U/l (10 - 50);
- gamma-GT 14 U/l (< 66);
- alkaline Phosphatase 67 U/l (40 - 129);
- LDH 158 U/l (135 - 225);
- Cholesterol 83 mg/dl (< 200);
- Triglycerides 106 mg/dl (< 150);
- Leukocytes 8.48 Tsd./µl (3.91 - 10.9);
- Erythrocytes 5.07 Mio./µl (4.44 - 5.61);
- Hämoglobin 14.9 g/dl (13.5 - 16.9);
- Hämatokrit 45.6 % (40 - 49.4);
- MCV 89.9 fl (81.8 - 95.5);
- MCH 29.4 pg (27 - 32.3);
- MCHC 32.7 g/dl (32.4 - 35);
- Thrombocytes 250 Tsd./µl (166 - 308);
- HbA1c (IFCC) 34.4 mmol/mol (24 - 43,9);
- HbA1c 5.3 % (4,3 - 6,1)
