Alternative Life Plans - Roommate for Life?

General Discussion
#1

It’s been seven months off and it would appear that I am completely messed up because this crap. As it is I am scheduled to see Dr. Shippen to see if there is anything that he can do.

If things don’t work out…

Plan B:

In the event that there is nothing that can be done about this, and assuming I am still able to sustain myself financially (I was a brilliant programmer and now I might be average-- hopefully), is there anyone that would be willing to live together? It sounds crazy I know, but I fear that no one else will ever really be able to understand me except another Propecia afflicted individual. It most definitely wasn’t in my list of dreams and aspirations but I honestly don’t know what else to do. I’m completely asexual, which would be bad enough as is, but also socially crippled. If there is one thing that I can’t do it is live alone for the rest of my life, and the only other people that would truly be able to understand me are other people which have been cursed with this affliction. If suicide is seriously on your to-do list then PLEASE consider my offer as an alternative.

If anyone else in the United States is interested or might be in the future let me know.

If my normal social life is over at the age of 22 then so be it, but I’ll be fucked in the ass (no pun intended) if I’m going to die alone. By the way, I live in New Jersey, United States but I will move if I have to.

It might just be a hysterical rant and I might feel differently later but probably not. I’m still getting these weird panic attacks.

#2

I understand you’re feeling upset and feel hopeless at this moment. DO NOT GIVE UP . Are you in College in new Jersey? My ex went to Rutgers–nice campus.

Before I respond any further, I wanna’ give you this information. Most college campuses offer some sort of free therapeutic counselling. Because it sounds like Propecia has really caused you some depression, you could really benefit from this. Really–Check it out–therapy can help.

And by the way, you’re not destined to live alone or be with other propecia users because of this. People who love and care for you will always be willing to work with you according to YOUR NEEDS. But first, you gotta’ learn to accept yourself and learn to love yourself.

Think it over, man, and really consider therapy.

#3

I’m in Jersey too. Where abouts?

#4

In Central Jersey around the Princeton area. It would actually be interesting to talk to someone in person who has been through the same thing-- if nothing else.

#5

I’m exactly due east of you, on the coast. Seaside Heights area.

#6

Hmm. It’s about an hour away. I’m still in the process of dying (only half joking)… but what does your schedule look like.

#7

You guys might want to converse by Private Message to arrange such things, rather than in public.

#8

If your still looking for a roommate, let me know. I live in CT.
I was just thinking the same thing…who else would understand us, but only us?

#9

If i didn’t live in Denmark, I’d be up for it. Hell if you want to come in live in Denmark, I’m frickin up for the idea.

#10

When I first read the first post I wasn’t sure about the idea, but then I thought about what a disaster it is when you try to explain your situation to “normal” people who don’t understand. The worst part about hanging out with our peers is listening to all their stories about sex and hot chicks and you just are reminded how ruined you really are.

On the other hand, is hanging out with a bunch of dysfunctional guys really the best thing to do to recover? I think getting together in person, sharing and comparing notes about what has helped us could be beneficial. If anyone wants to talk PM me and I’m willing to do a skype chat.

#11

This was a really good idea. Is anyone still interested in doing something like this? i am in the UK that’s the problem.

#12

I am certainly interested.

#13

I, like many guy’s on here, have realized that girl’s, friends of ours, family, can’t understand us, are not very supportive, and are not good ideal roommate’s for us with PFS. This is a complete traumatic life changing illness that hit most of us real hard. When we were hit with this illness, many of us were just thrown or stuck in terrible situation on all front’s. Been suffering for over 3 years.

Let’s be honest here, and no more macho bullshit; some of us changed and got sick while we were with steady girlfriend’s, fiances, wive’s, children, not understanding parents, unemployment, trouble holding a job, etc…and were left in hostile, cold, indifferent environments.
Some of us were lucky and got sick in a supportive environment, yet some of us, myself included, became ill in a shitty unhealthy situation and environment.

I live in Connecticut. I’m not a complicated guy. Just looking for a place to heal, exist and not be hassled.
I am a creative person and not looking for a type A personality to live with. I’m not complicated and can be very helpful. Like to get along well with people. I don’t drink or smoke. I like girl’s, music, art and reading. I don’t mind doing what needs to get done, I’m responsible, respectful, and respect one’s space. Easy going and easy to get along with.

If your cool with this idea, let me know.

Thanks,
R.T.

#14

therapy doesnt help a whole lot, when your counselor looks at you like your crazy when u tell them u have a 850 total testosterone but absolutely no sex drive… no doctors can really treat us at the moment and i urge anyone to think twice before blowing large quanitities of money on any of these supposed “PFS” docs. They are trying to treat the symptoms and dont really understand what has happened to us. They’ve let me down in the past and cost me substantial money and time. I spent $5-10 thousand on medical bills in 6 months didnt get anywhere really besides having confirmation that many of my hormones are messed up in wierd ways it’s been nearly a year since i quit and I have seen little improvement and do not expect much. I have hope that we maybe cured and do not think it is impossible but it may very well take time. I am somewhat lucky in that with viagra or cialis i can have sex. Although, I have serverly reduced sensitivity and no mental drive to actually preform the act… thus i need to concentrait hard while doing so. I have a girlfriend currently, she is very supportive but still it only helps doesn’t cure me… because of what has happened to me I may have lost my career, I am on extended medical leave right now and do not know what is going to happen there. I haven’t been paid in 3 months and am living off savings currently.

Mentally I have no desire to do anything. Basically I just stay at my GF’s place and play video games till she gets home from work. I used to want to do so much now I am like a miserable corpse. My parents didnt really understand and haven’t done much to help me even now that I have basically lost my job. I stopped talking to them for this reason and seeing as they live 2300 miles away i have oretty cut off all contact with my family. I just dont care anymore about anything. I have helped with my own research and talking to scientists and working with “other” studies and I hope for the best and will continue to offer any assistance that is asked of me. But nobody is going to pull the cure off the shelf at the grocery store, diet, exercise and sleep can help for some but that isnt the cure, before we can even attempt to cure ourselves we need to know what happened to our bodies exactly.

On a side note, I havent been around as much as I used to but I still keep dibs on whats going on. I was wondering one side effect I seem to have but havent seen many others mention. Does anyone have the side effect of their scrotum being tight and not hanging throughout most of the day? I seem to have this like 22/24 hrs a day and then it improves abit right before I go to bed… probably something to do with cortisol. Oh well, take care everyone… try to hang in there, I am fighting everyday to hang on to my sanity like many of you.

#15

i have the tight scrotum in tge morning and generally last to 3pm then it goes back to normal. every morning without fail this happens and must be sleep related. t is up in the morning so maybe its a link

#16

Are you fuckin’ kidding me? Is this section of the forum about balls or alternative living arrangements for guys in need? READ THE TITLE OF THIS SECTION ON TOP. I can’t believe the self absorbed ego driven nonsense sometimes. Most of you must all be from beverly hills or some rich uppper class background. Have some respect for those posting in this section for a real fuckin’ reason!

Some guys on here, myself included are in hell, and around hellish people who bash them for being sick with their ‘imaginary propecia illness’, and are just trying to find a place to live, in a sane understanding environment, because we gave up, FOR NOW on the world to understand us.

#17

In all due respect, why was my post for a roommate removed and placed here? IS THIS FORUM TOO BIG TO HUMBLE ITSELF FOR BASIC HUMAN NEEDS FOR FELLOW SUFFERERS LIKE HOUSING? wtf? Why isn’t there a section for this anywhere on this forum —for God sake’s, many men on here are borderline disabled and need REAL WORLD help. Many men on here cannot claim a disability, so the best they can hope for, is maybe an ‘understanding’ supportive roommate. Many don’t want to gamble on placing their bets on living with a woman, especially in this economy!

I’m not sure if any of you realized this yet, but I already know we ARE a UNION OF PFS SUFFERING MEN, and should try to support and help one another by any means possible. WAKE UP ALREADY AND GET SOME REAL WORLD INFO. FOR US ON HERE. Alot of us, myself included, are at wit’s end with life and just barely hanging on whatever they have now. Not easy for many of us on here, as it is, for those with caring loved ones supporting them. I’m sure I’m not the only one. Let’s get human about this forum. For God’s sake. Please!

#18

Another point to make, is that there are some like myself who want to simply move on, and start living healthy lives, and make the best of what’s left of us. Perhaps someone who would understand would be ideal.

I’m sure that I’m not the only one who feels like Syd Barrett, who never came back to earth after my drug trip of propecia. His was acid. I see no difference, because my brain feels fried after propecia. I’ve never been the same since.

Many of us need a healthy environment to recover, and I’m hoping people on here can understand that some of us are stuck in unhealthy environments, or wish to be understood, and not a burden to others.

A roommate section or alternative living arrangement section should be considered on this forum. It would actually be helpful to some I’m sure!

God bless and help us all.

#19

Please consider this forum administrator. Many of us need this outlet. I’m sure that I’m not alone on this.

#20

@robertino totti
Sorry i didn’t know this forum was all about you. i can see you are mainly talking to yourself here and should really be grateful for any posts that promotes your idea. I for one was briefly intrigued buy your idea but was soon put off as you sound like a right dick.
For your information i have been suffering for almost 2 years. My wife of 13 years has left me because of my depression and lack of sex (which was important to us). My baby i believe miscarried due to fin after about 12months off. I have been unable to conceive again, and now sex isn’t even possible. My business takings are 50% down dues to my inability to focus. I have lost all feeling in my penis, my stomach and most of my back. I have had flu like symptoms for over a year. I have trouble going to the toilet and have to check if I have even been as I have lost all feeling. My ears constantly ring which drives me mad. I have put on weight, cannot sleep and have serve depression. Loss of muscle and constantly fatigued.
So your comment “Have some respect for those posting in this section for a real fuckin’ reason! Some guys on here, myself included are in hell”
My illness is real and i too am in hell, so get over yourself and your stupid idea, seriously i cant think of anything worse than living with someone as depressed as myself. If I want to reply to a post in this topic about the size of my balls I will.