Good luck, Im also coming off 9 pills as of 2 days ago. Very interested to track your progress and will be watching your thread.
Thanks for posting agarman,
If everything works out, please post what you did or didn’t do before you disappear. There are lots of topics on here where people have just disappeared.
It’d be a morale boost to hear from people getting better and could also be helpful in mapping out the successful ways to deal with symptoms.
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Agreed, I posted in a different thread involving facial changes however just in my 2 days coming off I have seen tremendous progress in my sides which were:
Blackness around the eyes
Swelling in top layer of the skin
Sleep interruptions
Loss of morning erection
Weaker erections
2 days off and I slept well last night, got morning wood today, and I’ve noticed that working out (specifically my legs) made me feel back to normal. Will continue to update on progress.
lol I remember seeing Hasson and Wong lying and posting study results that nobody experienced side effects from liposomal fin earlier this year. Some other shit company Cassiopea is claiming that their topical anti-androgen drug Breezula causes no serious side effects either. It’s just more lies though.
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Thanks everyone for the replies. Really glad this community exists.
Wanted to share more information - I’m planning to follow the “spinach” protocol listed at the link below over the next few days (assuming I can stomach it). Figure the worst that can happen is my stools turn green and I get sick of spinach even if it doesn’t work haha. I’ll also be upping my zinc intake to 100mg to hopefully keep estrogen down, and will go to the doctor for a Viagra prescription to see how the plumbing is working.
Other than that I don’t plan to do anything different other than continue to eath healthy, exercise, and stay positive. Don’t want to take more drastic measures until I know this is persistent (3+ months).
If a 1% liposomal did this to me I can’t imagine what would have happened if I was on the 2.5% or oral fin… Trying to stay positive and not go down a dark rabbit hole here. Taking solace in how many profiles abruptly seem to stop posting - can’t imagine that would be the case if things has stayed the same.
Best of luck to everyone and thanks for reading.
Not to sound morose but I think reality needs to be looked in the eye. Unfortunately for some (many?) of the people who abruptly stop posting there is a reason different than recovery. I recently discovered one more of them - VancouverBC. This was his last post: Suicide
I am optimistic about your recovery. It is too early to know if you have PFS. There is a very high chance that you don’t.
Agarman
You dont need to be reading that right now, focus on your wellbeing and stay positive. Ive found that working out helps a lot, however I didnt actually experience any real side effects like others. Still waiting to see whats comes of this. Keep in touch
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I would not use Zinc. Stay far away from it and get your RDA through your diet. Zinc has been shown to block aromatase as well as 5AR2. I believe one guy got extremely bad PFS from using 150mg zinc per day.
Best of luck on your recovery, keep us updated - don’t fizzle out 
Ya as a matter of fact don’t listen to me, I dont know as much as these guys do. All I know is that I take zinc everyday and I have avoided many side effects, however that can be attributed to the fact that my body chemistry is not prone to fns (I fucking hope to God) or that Im not taking anywhere near 150mg, thats an incredibly high dose for anyone to take
Thanks everyone for the replies. Quick end of weekend update from me.
I wrote this post on a Friday afternoon and was experiencing non-trivial shrinkage after being on the up and up (looked like I had a child’s penis while flaccid…),and what felt like an anxiety attack (from reading the stories here all day long I think…). I made a point to eat a healthy salad and a bunch of spinach as indicated earlier. Not sure if it did much - but I did think I felt a bit better and more full/sexual, likely placebo though.
Spent the weekend outdoors at a concert and with friends - tried my best to keep my mind off of it which is easier said than done. Think the heat helped increase size but was constantly checking as non-obviously as I could all weekend…
Still getting nocturnal erections from what I can tell. Slowly felt better each day. Was able to masturbate Friday and get it up without porn which is a good sign (haven’t in 1 week, trying to limit) - couldn’t have done that a few days ago. Shrunk back again slowly after, at a similar rate to normal, but reduced to what I would think is ~50% of normal size. Seemed not 100% the next day but acceptable (which I consider to be when the tip goes past the testicles, even if just slightly).
This morning I woke up and felt “fuller” down there - had sexual urges and was able to get it up a few times from self stimulation and imagination. Size looks almost normal in the mirror most times I check and feeling a bit more libido if that makes sense? Taking this all as a good sign.
Concerningly, I am noticing that when erect my penis is tilting on it’s axis to the right - not painful or limiting in size, but seems to be pyronie’s disease? Would align with a slight hourglass figure I’m seeing on my right side only when flaccid… I’m shocked such a short amount of time on the drug can do that - hoping it’s not permanent, but if I can come out with just this I’d be beyond thrilled. Can anyone comment on their experience with Pyronie’s and Fin?
Feeling much better overall today but not deluding myself, know I’m very far from out of the woods yet. Still extremely on edge about a potential crash popping up out of nowhere - seems there’s no rhyme or reason in the way of “if you make it X weeks without a crash you’re likely in the clear”… Will try to post updates 1x a week or so for anyone else in the future experiencing a similar profile.
Gents - thanks for the point about Zinc, I had no idea! I have seen it recommended everywhere here to reduce estrogen as you quit… I’ve dropped the dose down significantly but am still taking some (~50mg) for now. Seeing conflicting evidence on this but would like your take - does the mild 5AR inhibition outweigh the Estrogen suppression from your experience/knowledge? Wonder if I should taper down over the next days.
Fingers crossed this is all a good sign on the way to recovery. Know 10 days since quitting is almost no time and a crash could pop up at any point… Seriously can’t thank this community enough for existing and everyone for their kind words so far. I’m hoping the small donations I can make will help find a way out of this horrible disease…
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Quick update.
Feel as if I’m in the middle of a crash. Was able to masturbate again last night to test the pipes no problem. Felt very full and penis was back to normal size last night. Had nocturnal erections and woke up feeling good. Even had a spontaneous erection this AM.
I think something happened this morning though. I may be in the middle of a crash… My penis shrunk way up, testicles too all of a sudden. I had a very delayed lunch and not much to eat the last 24 hours and felt something like an anxiety attack coming on. Felt something similar last Friday but managed to get my mind off of it and it passed.
Feeling extremely anxious - is this the dreaded crash? It’ll be ~12 days since stopping the gel now… Been having loose stools from all the spinach, so it may be something else, but my extreme shrinkage going on this morning is very worrying. Going to try and push through with work and keep my mind occupied as I eat my spinach and try to focus on staying positive. Wish me luck all - please send any advice you may have my way.
I don’t want this to sound like I’m discounting your symptoms, but it sounds to me like you’re in a constant cycle of worry - anxious because of shrinkage, shrinkage because your anxious. Someone correct me if I’m wrong but if you were to experience the crash, you would know right away.
Chances are you’re probably panicking. If it makes you feel better, Im riding this out with you. 5 days off 9 pills now, not feeling any differently then pre-fin but will keep you updated.
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I think you’re right Pete. Took some calming deep breaths, ate some healthy food, and had a warm shower and things un-shrunk a bit. Still feeling anxious as hell like something’s not quite right.
I’ll go back to posting 1x a week here to update on progress, and go 1x a month after 4 weeks. I think the less time spent on this board the better for now - seems to raise stress levels and cause a negative feedback loop. From the last few days it seems I do better the less focused I am on this and the more I stay relaxed and try to live a normal, happy life and laugh once in a while.
Thanks for following my story.
I know what you mean about feeling like something isn’t right - that deep anxiety in your chest and gut that you can’t seem to shake. I know because I get it too sometimes and then realize shortly after Im stressing myself out from reading all these stories. I’m almost certain thats your mind playing tricks on you. If a crash were to happen, I imagine it will hit you all at once - one commonality and reocurring theme I often see people describe is feeling intense fatigue and loss in libido, and your penis going numb shortly after you wake up.
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Hi-
Quick update from me for anyone following my story.
Lots of ups and downs. Felt better overall the last few days - was able to get it up, masturbate (had watery semen which I didn’t on the drug), and even have sexual thoughts as recently as 2 days ago. Noticed my erection is to the right and a bit tilted, worrying sign of Peyronie’s.
I think I’ve gotten worse the last 2 days however. Feel significantly less libido and not sure I could get it up if I tried…
Not yet felt a crash of any sort but feeling as if I have less feeling in my penis today. Noticing an hour Glass shape when coming out of the ocean today, very nervous. Could be mental but I’m fairly certain I have Peyronie’s.
Noticing size wise I have some nocturnal erections at night, wake up full, and then testicles and penis retract between 10-2 pm. The last few days this was alleviated by a warm shower and a nap but less so today.
Penis is currently cold even after a warm shower. Extremely worried as a result. Not sure if the ocean swim today may be a culprit. Will keep thread updated in case this ever helps future PFS sufferers.
Agarman
I honestly think you’re okay buddy, don’t stress out too much. Give it time before you start to assume the worst. The fact that you can masturbate successfully and are having nocturnal erections is a promising sign. You are likely having lingering side effects which will subside.
As for losing feeling, does it still feel that way? Make sure you’re not excessively tugging just for the sake of making sure it works
Just started today. Getting that rubbery, numb feel people talk about. Scary stuff. I’ll keep you posted - thanks so much for being willing to talk and glad you’re doing better
You really shouldn’t take zinc or any other hormone changing drugs.
How are you doing LBV? Any change in your side effects?