Hi @LazarusRy,
I am one of the administrators that provide this forum. I am in an extremely severe condition - far more so than the average conversation here revolves around, which is why I (and other severely affected cases I am in personal touch with) don’t spend much time talking about my personal situation. I am squarely focused on getting the acknowledgement, scientific assistance and public protection this issue needs. I believe my efforts can and will speak for themselves. This is not remotely possible alone and we all need you to be strong.
Please do not consider such a drastic action at this stage. I understand the loss you speak of very personally, but you should not be under any illusion that this will help - it absolutely will not help, it will be another injustice swept aside. It will be a loss to us all.
Standing together and pushing for progress is what will help, and now more than ever we are making considerable strides, organised right here. Additionally, what we hope is a significant scientific investigation is also due very soon. I would urge you to please take part in the survey to share your situation in a practical way. I would also urge you to try and focus on the small steps of self care and managing each day right now. Like you, the many therapy attempts I pursued out of desperation were either like water to my symptoms or exacerbated them. If you aren’t personally confident in the grounds for taking something, do not feel pressured by the certainty of patients who are making therapeutic suggestions you may see across this or other forums; you are clearly stating you are worsening from what you have attempted thus far. This has resulted in tragic outcomes before now in more seriously affected cases.
You’re stronger than you know and your life is valuable - don’t let go of what matters to you even through your current suffering, which I fully sympathise with and promise you I will do everything I possibly can regarding.