Hi everyone,
My apologies that it has taken me so long to reply - I have been dealing with a LOT medically.
I wanted to provide an update because I think it could be useful for folks.
Recently, I was diagnosed with secondary Postural Orthostatic Tachycardia Syndrome (POTS), caused by Mast Cell Activation Syndrome (MCAS). I had never heard of either of these conditions before being diagnosed, so it has taken me a few months to begin to wrap my head around what that all means. The more I learn about MCAS, the more I am blown away by how well it explains my symptoms, from my “allergies” and my headaches, my digestive problems and my urinary pain issues. I’m wondering if anyone else has MCAS (sometimes called MCAD or Mastocytosis)? I’ve read a couple articles that suggest that Accutane has been used purposely to activate mast cells for the purpose of wound healing. Since all my symptoms started after taking Accutane, I’m wondering if it’s possible that my mast cells activated from the medication. I will continue to investigate and report back. Wishing everyone a happy holidays.