a year off fin today.

Member Stories
#1

I have been off fin for exacly a year today. Unfortantly this is no celebration as my symptons have continued to worsen. Current I am taken tamixofen daily and have been for 3 months. I am also on antidepressants to.

The tamixofen has raised my T to 17 (8-30) up from 10.2. But its made no difference to libido, penis sensativty or general wellbeing.

It has gotten to the point where I can no longer have sex. My penis is so numb i can pinch it i not feel pain let alone any pleasure. strangky if I taken viagra I get an errection but its impossible to ejacualte ever. My wife and I were trying for out 3rd baby and I have relised this is not going to happen now. In fact we will probabily slipt up over this.

I am having crazzy thaughts of suiacide and it scares me. I dont know why this is effecting me so badly. I guess as men we need sex and how this and the associated feelings make us feel.

I recently got back from a holiday where i did a lot of walking in full sunshine. I got sun burnt and eat more healthy than normal and drank less. I felt improvements in sensativity i am sure and some small improvments in libido. But almost the day I got back i felt the dreaded tingling in my balls which i associate with more cells being killed off and as a result further loss of sensativity.

I wish everyone here a recovery or a way to live a happy life. For me it has beaten me. Goodluck.

#2

Anonn, hang in there. Things should improve with more time.

In meantime, I would seriously advocate getting off any anti-depressants, they can also cause their own host of side effects, particularly sexual. You may find some of your issues get better once off the anti-depressants.

If the tamoxifen is not helping perhaps you should give your body a rest from all treatments and see what happens. Altering hormones can affect mood, and adding anti-depressants into the mix will probably further compound issues in a negative way. Not to mention, its hard to be able to track what is causing changes/improvements, if one is taking many treatments at once.

Anyway, this problem is getting increasing medical and media awareness and its likely only a matter of time before it starts to get investigated in the lab. Hopefully then we’ll be closer to answers and definitive treatments. Stay positive, if you need people to talk to, there are many here for support.

#3

Firstly I would like to thank everyone for their private messages and comments. I have relised that this forum is a huge place for support and i felt touched by some of the comments recived. I amsorry for posting such a negative comment Although i do feel beat I will try and remain posative no mater what. I am normally so much stronger - I was just having a bad day, arguying with my wife when I could not have sex and drank myself stupid.

This forum has given me a lot of answers and I feel i have not contributed enough to help others - mainly because I have not muchprogress. But i have some observations over the past year and so here my info.

  1. Firstly I think tamoxifen has slowed down/minimised the numbing effect. I wish I had taken this earlier.
  2. If you are having ED problems I found yohimbie very good for this. It gave me bad eyes and made my heart race so I switched to the expensive viagra but others may benefit.
  3. I like many have lossed penis lenght and girth, however I have been rubbing dht gelinto my penis and have without a doubt seen improvments. Infact I think i am bigger than before fin but this might be wishful thinking.

Other than a lot of walking and lots of sun which gave slight improvments I have found nothing that improves libido. Even abstaining has made no difference. I think that abstaining can have a negative impact and think we should use it as frequently as what was once normal to keep things in good shape.

I also only get morning erections and strangly dreams (not sexual - just dreams) when I take tribuls pro before bed. If i dont take this i neaver dream and neaver get morning erections. Not sure if the dreams are relevant.

Finally i have managed to increase T using tamixofen but its has made no difference to my symptoms, so it must be how the body deals with T that is the issue. I belive the latest studies show that Dil T is what is lacking hense the use of the DHT gel. Only been using this for a few weeks so hopeful over time some nerves might get the dht needed to bring them back to life.

Thanks for your support.

#4

Stay strong Anon, and do your best to find a decent doctor to at least try and help.

You have no dreams AT ALL without the supplement?

#5

randomly found this regarding your use of anti depressants and tamixofen:

Recent cancer studies on about 1200 women over a year by Medco Health have found that some (not all) anti-depressants (Prozac, Paxil, Zoloft and others) decrease the effectiveness of Tamixofen. They found that about 7% of women not on anti-depressants have a cancer recurrance but this percentage doubles for women who are on anti-depressants.

like mew said… they have other sexual side effects as well, i’d lay off them. after propecia, i personally now have an issue with prescription pills… i won’t put anymore in my body unless i’m doing it to help improve PFS directly.