A question about Foundation.

General Discussion
#1

After i read pfs symptoms on pfsf site, i noticed some symptoms are missing. These symptoms are blood circulation problems, insensitive body tissue, collagen loss on face (maybe lypodisthrophy), vision problems and tinnitus. These are very common pfs symptoms, when i asked them they said MAYBE they can add one day.
These devastating side effects are as bad as mental sides, i cant look mirrors, 7/24 tinnitus, vision problems are also affects my entire life.

More important symptoms than my dead dick.

#2

I have all the same issues. Many others have reported this as well. I think it was noted that the problems get better with time. That has not been the case for everyone. Some things better but others are the same or worse.

#3

They should be added, even if they’re less common.

#4

I want to thank foundation , they have added tinnitus as a symptom.

#5

Yes, I saw that as well. And they added suicide.

I guess they look at patient reports coming in, as well as adverse drug reaction reports from the FDA, and add symptoms based on that data.

#6

God dammit has anyone, even just one freaking person, recovered even a little bit of the collagen lost around their eyes/nose bridge? Just one story is all I need. What the fuck did I do to deserve this? Yes, I cared about my hair (which isn’t even bad at all I realize now) a little too much. Is that enough to warrant a death sentence?