Source: private conversation with a PSSD/PFS researcher. We were talking about a grant call for personalized medicine.
ME: "Unfortunately, like many diseases without treatment option, our community is suffering from a religious-like “supplementomania”. Some claim cures, improvements, but there are no consistent patterns (apart from high-intensity training, keto, Tribulus and maca, but these things only seem to work in a few people, maybe it’s a coincidence).
I think all these supplements might interfere with biochemical data from patients during clinical trials, so maybe a tracking app of what different supplements the patients take might be helpful to clean up and create new data.
RESEARCHER: "This is an ERa call on development of clinical support tools for personalised medicine implementation, your idea of having a tracking app for supplements use could generate interesting data and fits well with this call…
… About what you mention below, I fully agree and sometimes I really get surprised by this folk medicine among the community. I’ve read many messages over Twitter, and think this is not right. There must be a science-oriented joint work whereby all possible treatments (experimental or not) must be researched before advertising these miracle solutions – believe me, I’ve seen this, people with health issues believe in anything they think might be helpful. This is dangerous and may affect their health – placebo effect if you know what I mean."