24 years old and 4 years with PFS

Member Stories
#1

  1. Where are you from (country)?
    Uruguay

  2. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
    google search, with thats terms “sindrome post finasteride”

  3. What is your current age, height, weight?
    21 years, 1,83 m, 60kg

  4. Do you excercise regularly? If so, what type of excercise? I dont do excercise now. (Last year I play amateur football.

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?
    I dont do an specific diet. I eat everything, meat, vegetals, milk, fastfood. But i started to eat more healthy without gluten and milk.

  6. Why did you take Finasteride (hair loss, BPH, other)?
    hair loss

  7. For how long did you take Finasteride (weeks/months/years)?
    6 weeks

  8. How old were you, and WHEN (date) did you start Finasteride? 20 years

  9. How old were you when you quit, and WHEN (date) did you quit?
    20 years

  10. How did you quit (cold turkey or taper off)?
    I quit propecia of one day to the other.

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?
    propecia

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
    First week 1mg/day
    2 week 1mg/(day yes, day not)
    3 week 1mg/day
    4 and 5 1mg/(day yes, day not)

Total 28mg. One box tablet of propecia.

  1. How long into your use of Finasteride did you notice the onset of side effects?
    At the second day i start to doubt. And low the dose.

  2. What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
[X ] Loss of Libido / Sex Drive
[ X] Erectile Dysfunction
[X] Complete Impotence
[X ] Loss of Morning Erections
[X ] Loss of Spontaneous Erections
[ X] Loss of Nocturnal Erections
[ X] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[ ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfullness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[X ] Severe Depression / Melancholy
[X ] Suicidal Thoughts

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ X] Other (please explain)
Vibrations in the penis.
Cold in the penis.
Lump in the testicles (not sure if caused by propecia)
Veins in the penis

  1. What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
    cialis

  2. If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?

  3. Anything not listed in the above questions you’d like to share about your experience with Finasteride?

  4. Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

Hello everyone. Start 'll apologize for my English . I speak Spanish. please respond at length , as I will use a translator to understand .

I sumarize my case:

8 months after the drug.

improving sexual function and steadily worsens .
A few days (2 or 3 ) a month , where I feel complete relief of symptoms : good erection, high libido.
Rest of the day , a mix of everything but never satisfied . Most with erectile dysfunction .
Also I have periods of morning and nocturnal erections , but not very satisfactory (sometimes weak ). And periods without nothing of morning erections.
Any similar case ? Improvements and relapses ?

capaz extiendo mas adelante mi caso y explico mejor. alguna pregunta?

#2

Hola Darío.

Parece que principalmente tienes sides sexuales y que fluctúan hasta tal punto que algunos días cada mes consigues una recuperación prácticamente completa de tus capacidades.

Preguntas que si hay casos similares. Muchos. De hecho lo que tú estás viviendo se parece a lo que yo vivía hace un año o así. Y ahora estoy mucho mejor, acercándome a la recuperación total. Teniendo en cuenta que yo arranqué con muchísimos más sides que tú y que eres un par de años más joven yo diría, y te animo a pensar, que es cuestión de tiempo y ser paciente. Y al igual que has visto mejoría en todo este tiempo puedes seguir mejorando hasta un punto óptimo.

Es cierto que cada caso es distinto y que no hay que comparar el caso de uno con el de los demás, pero si yo habiendo tomado mucho más finasteride que tú y de una manera más descontrolada y teniendo un par de años más que tú, es lógico pensar que cuando lleves 25 meses después de haberlo dejado como yo seguramente puedas estar como mínimo tan bien como yo estoy ahora.

He hecho alguna cosa que te puedo recomendar por mensaje privado si quieres, pero nada secreto ni ocurrente, fundamentalmente vivir muy sano en todos los aspectos, mucha fuerza de voluntad, paciencia y optimismo.

Básicamente no cometas ninguna tontería como consumir drogas, medicamentos arriesgados, mucho alcohol o tabaco… Ni te dejes vencer por la depresión. En mi opinión, aunque es difícil según el caso, si eres tan joven y adoptas el estilo de vida correcto, la mentalidad, optimismo de aquí en adelante y no cometes tonterías, encuentras motivaciones, etc. Es muy probable mejorar hasta un punto aceptable y posible hasta un punto muy bueno. Y si fueras más mayor, hubieras tomado más, tuvieras más problemas, requeriría más tiempo y esfuerzo, pero también sería posible, de hecho hay casos.

No pienses que nadie se recupera, quizá haya algunos que por algo desconocido no logran recuperarse, aunque muchos de los que creen que se encuentran entre ellos seguro -según mi opinión- que no han hecho todo lo posible y lo correcto por curarse. Y los que se recuperan muy lento simplemente deberían de tener paciencia e intentar acelerar el proceso sin hacer tonterías. En cualquier caso, como tú mismo ves que mejoras e incluso hay días que estás muy bien y empeoras de nuevo (no estás loco, también me pasaba a mí y me sigue pasando, pero hasta un baseline ya bastante aceptable) yo diría que no te encuentras entre esas personas y que sí vas a mejorar. No pierdas la esperanza y ánimo.

#3

No me esperaba una respuesta en español.
La verdad te agradezco el trabajo de escribir un mensaje mas elaborado, siendo el mio tan corto y resumido. (Lo hice mas largo pero sin querer lo borre, y decidi reescribirlo pero con menos detalles).
Como has dicho, mis efectos son sexuales. Al menos los que me preocupan a mi. Claro que la depresion tambien, pero siento que es producto de la situacion y no algo que me haya hecho el farmaco. (Ya tenia depresion antes de empezar ademas).
Estoy comiendo sano, evitando las drogas, el gluten, los lacteos, el azucar. (Pocas veces me permito un antojo). Y estoy intentando hacer un poco de ejercicio fisico.
Me esta aconsejando un chico de Valencia, que luego de dos años se curo. Y estos son algunos de los consejos que me dio. Asi como tambien evitar el estres.
Como ya dije, tengo pequeños periodos de recuperacion. Y soy una montaña rusa. Pero la mayoria de los dias tengo problemas de ereccion.
Algunos dias terribles (tengo pequeños periodos donde la impotencia es muy preocupante, duran no mas de una semana).
Tan montaña rusa es esto, que hace 3 dias tuve ese periodo buenisimo, donde me masturbe 3 veces el mismo dia. Y al otro dia a la mañana tambien. Y hoy ya siento frio en el pene, y no logro una ereccion.
(Doy el ejemplo para que se entienda a que me referia).
Tengo fe, y llevo las cosas mucho mejor. Los primeros meses fueron terribles. Especialmente esas semanas de impotencia total. Ahora mentalmente lo soporto mejor. Y se que despues de esa semana horrible, vuelvo con todo (para volver a caer).
Que bueno que hables español, usaste el traductor?
Si quieres podemos hablar por privado luego.
Y me cuentas tu caso. De donde sos, etc. Un abrazo!

Cuando tenga tiempo y ganas intentare explicar con mas detalles en ingles mi caso, para el resto.

#4

I answer you a days ago but administration dont acept my message yet. ¿Maybe because i answer in spanish? I send you an email. I try with mp but i cant because im new in the forum.

#5

Me gustaria oir esos consejos que tenias.

#6

[updated story]

Where are you from (country)? Montevideo, Uruguay.

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other? I find it in a hair loss forum, there people usually mention this forum when talk about side effects.

What is your current age, height, weight? im 24 years old, 1,83m, and maybe 70kg, i dont know exactly my weight right now. But im ok.

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)? I used Finasteride (propecia)

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? 1mg/day, and some days I didnt take it because I was having side effects and and I had the doubt if it was the medication or my head, so I abandoned it for a few days, and then I took it back

What condition was being treated with the drug?
Testicular pains were seen immediately and daily, then erection problems, liquid ejaculation and strange sensation unpleasant, disappearance of morning erections

For how long did you take the drug (weeks/months/years)? I toke 28 pills, during 1,5 months or something like…

How old were you, and WHEN (date) did you start the drug? Im 24 years old, and I start the drug at my 20 years old, august/2015

How old were you when you quit, and WHEN (date) did you quit? I was 20 years old, october/2015

How did you quit (cold turkey or taper off)? I wouldn’t know how to answer this question, I just finished the box and decided not to buy the next one.There were days when I stopped taking it to see if the effects were from the medication or from my mind.

How long into your usage did you notice the onset of side effects? I dont remember exactly, at the first week i start with testicular pain and some problems with erections.

What side effects did you experience that have yet to resolve since discontinuation?
After discontinuation, Erectile dysfunction worsened, for the first time in my life I was totally impotent, it lasted for a few weeks, so I have 4 years with erection problems that some days get very bad to the point of being totally impotent, and others improve but never like my normal erections before propecia.
Testicular pain disapear with the discontinuation.
with the passing of the months dark circles appeared, veins were marked on the penis, and some days the skin of the penis is dry and I get hurt when I masturbate.
2 weeks ago, the doctor find me testicular microlithiasis.

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
[ ] Loss of Libido / Sex Drive
[X] Erectile Dysfunction
[X] Complete Impotence (some days)
[X] Loss of Morning Erections
[X] Loss of Spontaneous Erections
[X] Loss of Nocturnal Erections
[X] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability or Difficulty to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[ ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfulness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[X] Severe Depression / Melancholy (does exist any man who dont experiment depression being impotent with 20 years? I think its normal)
[X] Suicidal Thoughts

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[x] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[x] Persistent Fatigue / Exhaustion (some days)
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[x] Other (please explain)
appearance of veins on the skin of the penis.
Dry penis skin some days, to the point of getting hurt with masturbation.
Microlithiasis testicular

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? Cialis for erectyl disfunction with no results, psicology terapy with good results for the depresion.

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)? I had Prolactin slightly high and out of range when he left the medication, he also had low FSH. 2 weeks ago I did the tests again, and I have prolactin ok, but FSH is still low.

Anything not listed in the above questions you’d like to share about your experience?

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

1 Like
#7

Darío soy de argentina. Cómo estás ahora ? Me gustaría contactarte por privado, saludos.