We need some positive vibes in here, so I made this thread. I’m going to continue to work on my TRT protocol, and hopefully - be able to stabilize the condition. Moreover, NPE (the Norwegian System of Compensation to Patients) is going to settle my case, and I’m going to hire a lawyer, and pull the case further, if the offer doesn’t satisfy me. What’s you plan?
Happy new year!
north europe is well aware of PFS
it’s strange that norwegian medical system don’t push for research.
you couldn’t ask for special assistence?
The norwegian authorities don’t give a shit about Propecia, but my case may change that, as large amounts of money draws attention. I’m currently on disability as well…
let’s hope for that, but i really haven’t seen much other pfs sufferers from norway on PH .
mainly r from USA (ok, for the extension of the country) but i saw a lot from italy as well
good luck with the law-thing
these assholes have ruined my life which was already out of controll before taking propecia.
i am almost 22 . i hadnt any sexual experience since i was 17. the further years i was
disfugured by a rar desease which swallowed by face for 2 years. in this time i stayed home all time 
after being operated i had my face back but i was already on propecia so i couldnt really be happy about having my face back.
god i know you can hear me.
i know you are there.
i know you love me.
in 2012 i am going to gym to boost my testosterone and will eat more brocolli for a better recovery.
i am still a vegetarian but maybe i am going to eat meat again.
maybe the tofu i ate was the reason why i could stay home for so long.
i researched the soy history and the more i read the informations and studys the more it could be possible that soy
has unmasculined me a little bit( lower libido)
happy new year wish you the best
Take avodart again if it hasn’t already cured me. I am almost certain that i will recover this year.
i will inject nebido on the 2nd day of 2012. this is a nice plan
The blood therapy…starting next week.
Happy new year everyone. It’s best to try and stay upbeat as possible with all this. It’s very easy to go down a dark, lonely and angry path with all this but that is really going to to be to the detriment to yourself as well as others.
There is so much i/ we could be doing in 2012 - creating more awareness in the media and the medical professions, forming action groups in our own countries/states, engaging with research bodies, following our litigation battles. If we can find the time, then great, but it’s not easy when we have our ‘normal lives’ to lead as well as battling the symptoms we have all been left with. For example, now and again i have these battles with myself on the absurdness of it all and how i ended up in this mess. This is totally debilitating.
The one thing i’m going to definitely try and highlight on this forum and to other medical professionals and researchers, is the experience i had with tamoxifen. I took it 3 months after crashing after reading various reports on this forum on how it could be our only chance of recovery. To my utter amazement, it did cure me, albeit for 3 weeks before i crashed again and the returning of previous symptoms but to a lesser extent. I’ve posted my experience in other posts so i won’t go in to it again on here, but i strongly feel this is a major discovery and we are all very lucky i had this experience with tamoxifen. Tamoxifen is fairly well researched drug and many AR specialists seem to be working with it. If my experience can somehow inform researchers and medical experts on possible mechanisms for PFS and possible areas of research to cure it, well we have probably moved many steps forward to having a cure for all of us. I’m especially hoping Awor and his research group can use my experience to help get a positive result for all of us.
At the same time i am keeping my expectations in check. Even if we nailed the mechanism and cause, it might be very difficult to find a cure. I try and tamoxifen now again to see if the same positive effect can be achieved as the first time, but nothing is happening. Maybe i have missed my chance and the rumour on these forums that a full recovery can only be achieved if you take tamoxifen and clomid early after crashing the first time, is correct. The best i could then hope to achieve would then be to inform new crashers and get them cured. But at least that would confirm my experience as not a one off and something to be investigated further. However, with all the coverage propecia is gaining now, i can’t see that we will have that many more new PFS cases, as surely people will 1. realise not to take the stuff in the first place and 2. if you are already on it, to take care off yourself and wean off when coming off it.
Last thing, we are really going to be much more stronger and efficient when we starting working together more. If we can form action groups of 10, 50, 100 people who live close to one another, i’m sure we can achieve more and in a quicker timeframe than 1000s of single forum posters posting randomly whenever they feel like it. It just seems enough info has been shared on the board and we are just going over the same stuff. I don’t have the time to co-ordinate a UK based group at the moment, but if any other British bulldogs wants to get the ball rolling, i will be there in flesh and in spirit. Then hopefully American states and other countries will follow suit. It could mean quarterly or even annual meetings to discuss action plans in our respective areas and then discussion (on this board) between the various groups on these actions and results being achieved. Maybe 2013 will be the year for action groups, after we have seen where Awor’s research group are taking us.
Yeah, it would be great if all the members on this board could reveal which country they’re living in, so people could connect, if they want to.
-Have another go at Danazol.
-Pay a visit dr. Chris Kresser.
-Raise my testosterone.
-Avoid bitterness.
Put Chi’s theory to test with the power plate, since there is one in my city. Going to give Maria’s recommendation of Maximum Milk Thistle a try. Might also try to rid myself of “candida” via nystatin. I know there’s a lot of criticism with that approach but I might have digestion issues, whether is related to PFS or not I have no idea.
I am planning to meet a Men’s health specialist in Canada and finally be able to do a full hormone profile…Currently I only have basics like LH FSH, T, Free T and prolactin which most doctors say is normal but actually is much below normal (learnt from this forum)…I also want to network with patients from Canada so we can support eachother and share information about helpfull practitioners…
Can anyone tell me about Canadian forum users…
Mark
Plan is - Not give up!
Continue to believe that this problem is in fact some properly messed up pelvic floor issue, potentially relating to GABAA. Much more work on the powerplate, plus increase in supplements that work on pelvic floor and prostate.
buy a new prostate on ebay. ideally one that comes with a free penis
Continue on synthroid. Going to raise my dose from .075mg to .125mg. Then add clomid / anastrozole.
If no results there I will try Quercetin / Gabaa / and cialis / Viagra and maca.
Hopefully by the end of this year there will be some sort of a cure.
A ‘cure’ within the next year?
A cure from science/ research, if there is to ever be one, will be decades away. The only hope of a treatment that could be considered a ‘cure’ within the next couple of years would 100% have to be something we stumble across ourselves. I.e. if i got better from Avodart and others tried and got better or Joetz got better using maximum mil thistle and others tried it and got better.
GHB and Nystatin should be two things that are investigated further in 2012 imo.
Really? You’re really using avodart and suggesting others use it too? We’ve had at least one member kill himself here due to the extreme and persistent side effects of avodart.
First off, you have no idea when there will be a cure. None of us do. If they can find what they are looking for, things could move quickly for a treatment option. Or, maybe they never find anything at all. There is no need to speculate and suggest it will be “decades” and break peoples spirits, because 99.9% of us here do not have a clue. I know you are hurting and probably very angry. I am too. Still, there is no good in making such statements.
Also, dude, in our situation, thinking outside the box is very necessary, but taking Avodart, no matter what the current benefits may be, sounds very, very dangerous and may hurt you even more. Just be careful man. If the benefits you state do not last, you might strongly consider never touching 5ARI’s again.
I hope you feel better and continue to make progress. Be well.