Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.
Where are you from (country)?
How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
Google search, I knew about it for quite some time, but never did register, for lack of courage and because the mere mention of PFS made me depressed.
What is your current age, height, weight?
35, 187 cm, 80 kg
What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?
What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
What condition was being treated with the drug?
For how long did you take the drug (weeks/months/years)?
How old were you, and WHEN (date) did you start the drug?
November 2008, 22 years old
How old were you when you quit, and WHEN (date) did you quit?
November 2008, 22 years old
How did you quit (cold turkey or taper off)?
How long into your usage did you notice the onset of side effects?
The first day. First morning after I took it (the afternoon before) I woke up without morning wood. I got scared but continued cause I thought my body needs time to adapt.
What side effects did you experience that have yet to resolve since discontinuation?
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.
Loss of Libido / Sex Drive
Loss of Morning Erections
Loss of Spontaneous Erections
Loss of Nocturnal Erections
Inability or Difficulty to Ejaculate / Orgasm
Reduced Sperm Count / Motility
Emotional Blunting / Emotionally Flat
Difficulty Focusing / Concentrating
Memory Loss / Forgetfulness
Stumbling over Words / Losing Train of Thought
Slurring of Speech
Lack of Motivation / Feeling Passive / Complacency
Extreme Anxiety / Panic Attacks
Severe Depression / Melancholy
Penile Tissue Changes (narrowing, shrinkage, wrinkled)
Penis curvature / rotation on axis
Testicular Shrinkage / Loss of Fullness
Genital numbness / sensitivity decrease
Gynecomastia (male breasts)
Dry / Dark Circles under eyes
Persistent Fatigue / Exhaustion
Stomach Pains / Digestion Problems
Constipation / “Poo Pellets”
Vision - Acuity Decrease / Blurriness
Tinnitus (ringing or high pitched sound in ears)
Increased hair loss
Lowered body temperature
Other (please explain)
Dark veins popping out on penis shaft and scrotum.
What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
l-carnitine, l-arginine, zinc, maca, ashwaganda and many more which I can’t remember - didn’t do nothing for me.
Tribulus terrestris - I’ve cycled it for about 2 months, 7 days tapering on and off, with 7 day pauses in between. After an initial boost that lasted for about a month - my erections got stronger and more consistent and frequent, morning erections returned - things started to get worse. After the 4th cycle new veins started popping out on penis and my erections got worse and so did my baseline, and it remained so even after discontinuation.
Cialis, viagra, levitra - I take daily cialis, sometimes skipping a day or two and even though it doesn’t help me much with regular, daily erections, I more often than not wake up with morning erections, even though they are at 70% of what they use to be. For daily erections, viagra works best for me, 50mg gives me strong erections and with stimulation, I can keep them even while standing (which is not the case with even 20mg of cialis). Levitra barely works. None of these drugs helped me in the long term.
Keto diet - I was on a strickt keto diet for 8 months but I had no improvement.
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?
Since no doctor ever believed my story, least of all my personal doctor, I never did much tests. A urologist did a ultrasound scan and told me there’s no sign of fibrosis or other damage, but his check up was so hasty, I’m not sure I should believe his results. He prescribed me daily Cialis, so at least I got something. Besides that the only blood test he did was for testosterone and shbg:
No wonder I can’t sleep…
Anything not listed in the above questions you’d like to share about your experience?
Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
Trigger warning: suicidal thoughts.
I started losing my hair in 2006/07. In november 2008 a urologist prescribed me propecia. I was warned about side effects, but it was said that they’ll stop after discontinuation. Anyway, the morning after the very first pill my morning erection wasn’t there, which was very rare for me. Forward 3 weeks, I noticed my scrotum got kinda smaller and more tender and dark veins popped out on it and on my shaft overnight. This scared the hell out of me so I decided to stop the drug. At the time I was engaged to be married in 7 months. I remember the first day after stopping - I had the biggest erection of my life, gave my ex multiple orgasms. The erection was so over the top hard I came out a bit of blood. After that, nothing was the same anymore. Things started to get progressively worse, both physicaly and mentally. This was a slow process. My ed and depression weren’t so drastic at the beginning. I got married eventually. After multiple crashes over a 2 year period, I was getting so distraught I seeked out psychiatric help. My wife an I couldn’t concieve and my anxiety and depression was getting out of hand. The docs diagnosed me with BPD and I was given SSRI-s (venlafaxine) and quetiapine for therapy. This made my sexual and psycholigical health even worse, so eventually, after 5 years, my wife left me. Things escalated from that point on. I tried to commit suicide with pills OD but survived, woke up intubated 3 days after in intensive care. This was approximately 7 years ago.
There’s not much to tell from that point until now. I quit all psych meds. Tried keto diet for 8 months with no improvement. I still have pfs, I’m still depressed, emotionaly unstable, suffer from severe insomnia and am actively suicidal.
That’s why I’m posting this. I don’t know how much I can take anymore. I’m on the verge of giving up and I want my story to be out there before I check out. I’m sorry I didn’t speak up before. I was a long time lurker on this site but never mustered up the courage to speak up.
Thank you for reading.