As a scientist from another field, I believe we will get a cure within 5 years of getting research started. The problem is that the community hasn’t done anything to make that happen. Thus far, we remain a fringe group of people complaining about being wronged by the medical industry while doing nothing to advocate for themselves.
As soon as we publicise our problem, show the world it is real, unify with PAS and PSSD victims, and give scientists faith that investigation of our problem is a fruitful pursuit, we will get a cure within 5 years.
That is why we need to stop dicking around with miscellaneous pills and herbs, make a serious video, have serious conversations with the other groups, seize on every opportunity to gather as much data as possible for the scientists, and generally start acting like credible people who have a real problem and are committed to seeing it resolved.
Until we do those things, we will never get a cure. As soon as we do, we will. It’s up to us. Here is an example of a course of action that I think would get us started. I would love a critique of my suggestions and to see the topic of conversation here turn from doing the same failed things we have been doing for 15 years to actual action that takes us forward.