Hi @cooper,
I think what @Greek is trying to communicate is that, regardless of findings, we are not yet able to treat the underlying pathology, so until more is understood you specifically may be better off making the best of your (relatively very lucky) situation and ignoring the relatively minor symptoms you’re reporting if possible.
As to your question: You may well realise that patients are affected to very variable degrees on a site specific basis, something demonstrated anecdotally and in primary research. While pathological findings upon penile evaluation are common in PFS patients with sexual dysfunction, it not universally conclusive, and therefore in a mildly affected case like yourself may well be subclinical. However, modern doppler scans are an effective evaluation of flow pattern and pathological changes to the corpus cavernosa, spongiosum and tunica albuginea. A urologist experienced in ultrasonography and interpretation will be well placed to evaluate this for you.
I had recommended to @Kan that he seek a perineal EMG to check for denervation given the significant atrophy he had described and his previous doppler findings, which in his case provided a clear finding. If you feel you have experienced noticeable perineal atrophy this is another test to consider, however again this may be fruitless. I would echo @Greek’s concerns as to the cost/benefit of such investigations, and make sure you’re sure, as it may be a costly endeavour without much practical benefit.
Best,
Axo
