I wonder a lot about where many of the users who joined pre-2010-11ish that used to post more regularly have gone? I hope that most of them are hanging in and continuing to fight, despite not posting as much anymore. Hell, if you are a user from years past who mostly lurks and doesn’t post these days, but sees this thread, I would love to hear from you as reassurance. Or anyone who knows of users who have come and gone, give me a sign. Thanks.
-Ben
I was wondering the same…
Perhaps it’s the lawsuit?
Hello!
still fighting, getting slightly (and very slowly) better through very healthy lifestyle and a lot of sport
I only log on a few times a month anymore, basically to see if there has been any progress. After over 6 years I’ve become a different person, unfortunately. It has been really hard to accept. I truly appreciate what Mew and Awor have done trying to battle this disease, but my limited knowledge of the science makes most of my posts of limited value. I’ve been a regular contributor to the PFS foundation since last fall and think that our only hope is that a miracle occurs the research. As has been stated often everyone should contribute to the foundation on a regular basis. It is our only hope.
I am a member from 2008 I think. Suffering since May 2007. I am still around, just that I dont post much. I have no improvements. Its actually gotten worse because now I have mild nagging ache in my hip bones as well. My memory is gotten a bit bad. Over all nothing changed except maybe some improvement in ejaculate volume.
I had a urinalysis test last week. I gave a urine sample after which the doc tried massaging my Prostate to extract the fluid. It was so uncomfortable, I collapsed on the table I was leaning. He stopped in 30 seconds…and din’t try it again as he felt I would black out. So that test went down the drain I guess. I have two other tests lined up to check for Prostatis. Will post a more detailed info tomorrow. But I am still around…
Because nothing has changed and nobody can help us.
I have been to multiple doctors and they look at me like I am an alien. My testicles have shrunk into small grapes, no libido, eyes wont focus as fast, muscle twitches, just a tiny bit of ejaculate from a weak erection. So fatigued and sleepy I can barely wake up and make it through the day.
ALL of this happened 2 weeks after I quite propecia. I had a 2 week recovery and then my body crashed, and here I am getting worse. I have read a lot of threads, it seems the only consensus is that finasteride is poison for a small amount of people that take it.
So here we are. I just do the best I can, accept my fate and live the best life I can with the hand I have been dealt. Even a casrated zombie like state is still better than killing myself. I can still find joy in life and reasons to live.
Good luck and stay strong.
Well, I’m still around. I don’t check this board much anymore but I’m still suffering. Just have nothing new to report.
I wasn’t getting anywhere with the myriad of tests I was taking and Doctors I was seeing, so I just stopped and got back to my life. I have good days and bad days. Overall still not 100%, however I’m not suffering from all the symptoms I once was. Mostly the ED and low libido are my main problems. Fatigue as well. I think it’s been about 8 years since this all started.
Good luck people!
I’m suffering since the end of 2008 , I’m not recovered , but last sunday after 3 days of drinking , 3 days abstaining from masturbation and eating some watermelons I had a rock hard boner almost as hard as before .
unfortunately this was just a one day experience … and I don’t want to redo this for a long time because it’s rather a death lifesyle than a healthy way to recover…
No but I am more than convicted that our entire problem lies in the brain and something such as drinking almost brings it back to normal is encouraging.
I also have huge improvements after drinking Excessive amounts of alcohol or alcohol intoxication
Yeah but I also had extreme headache after day 2 like the headache you have when you take pde5 inhibitors …
I have this condition occasionally since I take l-thyroxin and angiotensin receptor blockers… pretty weird combination
I know …