I would like to know your opinion here - what if our symptom is not curable even after the scientists understand the whole mechanism?
Tell me your opinion on what each of you will do.
I don’t believe anything is incurable, there are only so many things to understand about the human body, it’s not an endless pit, we will eventually know everything there is to know about biology, it’s just a matter of how long it’ll take, but looking at what we know now in comparison to 20 years ago and how easy things are becoming, that where not so long ago “impossible”, I’d say we have a good shot.
Modern technology, future AI combined with neural nets and deep learning, the possibility of personalised medical care, I’d say we live in a good time.
We just don’t know what we’ll discover, for all we know this disease could be so simple to solve in the future, we could be looking back at this forum and thinking, how did we ever think this was complex? I hope we eventually look at cancer the same way and disease and suffering are at a minimum for everyone, being sick is never fun and you only really appreciate what you had when you no longer have it.
I don’t think anyone in existence can come out and say this is incurable because quite frankly, they haven’t a clue, so don’t listen to anyone who tells you otherwise, keep the head up and try look after yourself in the meantime, sanity is extremely important in dealing with any long term illness.
12 Likes
Yeah I’ve no doubt it’s curable. The things catching a cold, Saint John’s Wort and fexofenadine have done just prove it to me.
Something’s out of whack by a long way, needs firing up again or re-sensitising and we’ll get past it. That’s my scientific opinion btw you can publish that. 
4 Likes
I also believe that in theory nothing is incurable. However it will take a long time until we cure PFS. My guess would be that the timeframe from now until the day a cure is available will be measured in decades not years.
Hope I am wrong on this, however I dont see how it could realistically happen within 5-7 years for example.
What is this topic? A chance to feel more depressed?
5 Likes
Admins, please close this thread. Is not useful for people suffering depression from PFS.
2 Likes
I don’t see a point in avoiding this question or suppressing it. The answer is that there isn’t any reason at all to think it’s incurable. The issue is that no one is TRYING to cure it. People are sitting around moaning about instead of getting organized and funding research. Until that changes it IS incurable. It is up to US to get it cured. No one else in the world has any incentive to be a superhero for a bunch of balding middle aged white men who fucked themselves up on a cosmetic drug.
Until we organize, coordinate with PSSD and PAS groups, start funding research, and DO, it is effectively incurable.
3 Likes
I think there’s a lot to be said for that.
The next time someone is preparing a theory on how best to solve this, or an idea for a radical promotional charge, please, please, please do this:
Join our existing efforts.
Fill out the survey.
Get a 23&Me Kit
Sign up for our YouTube project (there is something else coming I cannot tell about at this time with regard to that).
If you’ve done all those things, message me and say you want to help out with something.
If we join up together we will be heard. If we scatter ourselves we are just individual voices, easy to be ignored.
5 Likes
This is a crass characterisation of what has happened and I’m not sure why you keep repeating it as a look around just at the member stories of this website shows that it is demonstrably untrue. We have members of different races and nationalities and the majority are in their 20s or 30s. Additionally, finasteride is prescribed commonly for BPH so it is not only a cosmetic drug.
1 Like
Of course it is. But the reality is we are probably at the bottom of the list in terms of demographics altruists are looking to rescue. It’s up to us ourselves to make research happen to find a cure. If you don’t believe me just look at the last 10 years. Virtually nothing. Not even Baylor out. The only thing out other than low-cost Italian study is a study that was probably engineered to have an inhibitory effect on further study (the Harvard study, which functioned as a “move along, nothing to see here”).
Guys we need another 100 participants at least for our study but the more we have the better.
We need a big push from this community. Looking at the survey results so far we can determine that 75% of participants have a tertiary education.
So we are looking at University students and graduates as majors users of Propecia.
We have our target audience!
All we need to do is reach out and start emailing.
That begins with emailing all your friends on social media and asking them to forward your message. Those of you who are young and have friends in Uni or have graduated have access to the people we need.
We are looking at an age group between 23 and 38 years old as the main catchment.
This is what you can send.
If anyone is taking Propecia please read this story. Merck has hidden the drug risks of Propecia which has already been linked to multiple suicides and over 15,000 patients reporting serious on going side effects.
A US Judge has allowed Merck to continue hiding the serious side effects of its drug Propecia from the general public.
For anyone taking Propecia you have no idea what damage this drug could be doing to your body. You need to ask yourself why would a reputable drug company hide the serious side effects of one of its drugs and who does that benefit?
Reuter’s has now asked for the release of the secret Propecia papers.
This is not the first time one of Mercks drugs has been linked to concerns about patient safety.
In 2004 Merck had to recall its popular arthritis drug from the market Vioxx which was linked to 140,000 heart attacks that resulted in approximately 60,000 deaths.
2 Likes