Warning: restarting propecia will kill you

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#23

Self-reporting form

  1. Name of the therapy/substance: Viagra
  • Dosage: 25mg
  • How often you took it: once
  1. Status
  • Still using [ ]
  • Stopped with no lasting change to initial symptoms [ ]
  • Stopped with persistent change to symptoms [x]
  1. Duration of use: Days [1] Months [ ] Years [ ]
  2. Response when you started:
  • Greatly improved [ ]
  • Slightly improved [ ]
  • Stayed the same [x]
  • Slightly worsened [ ]
  • Greatly worsened [ ]
  1. Current response (if you’re still using) OR Response in the time before you stopped the treatment
  • Greatly improved [ ]
  • Slightly improved [ ]
  • Stayed the same [ ]
  • Slightly worsened [ ]
  • Greatly worsened [x]
  1. Lasting changes to initial symptoms after cessation (if you have stopped for more than 3 weeks)
  • Greatly improved [ ]
  • Slightly improved [ ]
  • Stayed the same [ ]
  • Slightly worsened [ ]
  • Greatly worsened [ ]
2 Likes
#24

Quick summary of above:
Symptoms: full PFS… total body decay and wastage, homeostatic functions wrecked

Viagra worked but made me feel like shit for the rest of the night and increased insomnia. Had sharp pains in heart area and upper right leg near groin…the latter still there. In addition having pain in upper right arm near armpit.

This is the first time I’ve tried it with PFS. Will not take again which is a shame because it was pretty dependable in the old life along with everything else.

**update: as the day has progressed i feel significantly worse than usual which is saying something because I usually feel like shit. Today I feel extra shitty…just dizzy and tired and nauseous. I was hoping to have killed myself before things got this bad but I failed to do that.

I know I’m posting a lot…my brain has become severely impaired, I’m in a permanent state of torture
i feel like every second i want to vomit
I feel like something bad is about to happen

***update…I forced myself to exercise, which is getting harder and harder to do. Did a routine of pushups and pullups, after which I was able to lie down in a relaxed state. Not sure if I dozed off at all but it was a nice break. This situation of forced exercise and heavy sleep meds under the threat of physical and mental torture is not sustainable.

1 Like
#25

Worked pretty good, got to relax for a few hours. I have the norco version too, maybe I’ll try that tomorrow if I don’t wake up blind.

**The norco did not work (see report below) but a week later the percocet did manage to relax again. I guess the question now is if I’m going to drug my way through PFS am I better off with opioids or benzos.

#26

Godspeed brother

#27

Self-reporting form

  1. Name of the therapy/substance: hydrocodone-acetaminophen (generic norco)
  • Dosage: 5mg-325mg
  • How often you took it: twice
  1. Status
  • Still using [ ]
  • Stopped with no lasting change to initial symptoms [x]
  • Stopped with persistent change to symptoms [ ]
  1. Duration of use: Days [2] Months [ ] Years [ ]
  2. Response when you started:
  • Greatly improved [ ]
  • Slightly improved [ ]
  • Stayed the same [x]
  • Slightly worsened [ ]
  • Greatly worsened [ ]
  1. Current response (if you’re still using) OR Response in the time before you stopped the treatment
  • Greatly improved [ ]
  • Slightly improved [ ]
  • Stayed the same [x]
  • Slightly worsened [ ]
  • Greatly worsened [ ]
  1. Lasting changes to initial symptoms after cessation (if you have stopped for more than 3 weeks)
  • Greatly improved [ ]
  • Slightly improved [ ]
  • Stayed the same [ ]
  • Slightly worsened [ ]
  • Greatly worsened [ ]

What are my symptoms: full PFS… total body decay and wastage, homeostatic functions wrecked
What was I hoping this drug would do: make me feel something other than bad
What did it do: Made me tired, that’s about it.
Fill in the blank: ___ this shit: Fuck

*update: unbearable depression last night so tried this again at a higher dose. Took one and a half of the 5/325s and this time it worked…got relaxed and sleepy and even got the pleasant itch I remember from taking vicodin after surgery. This lasted for at least three or four hours and got me to bedtime to where I could take my zolpidem ER. I worried the two meds together might kill me…sorry did I say worried, I meant hoped. But they didn’t and I woke to decay another day.

**Tried the higher dose again, this time it felt like too much and may have hurt my head. It could also have been the conjunction with beer and zolpidem. I’m gonna be one of these guys when the toxicology report comes back they’ll just write me off as a drug addict. Tonight is benzo night yay. Why are there so many hours in the day…spin faster earth.

8 Likes
#29

Self-reporting form

  1. Name of the therapy/substance: adderall generic
  • Dosage: 10mg
  • How often you took it: bunch of times
  1. Status
  • Still using [x]
  • Stopped with no lasting change to initial symptoms [ ]
  • Stopped with persistent change to symptoms [ ]
  1. Duration of use: Days [ ] Months [1] Years [ ]
  2. Response when you started:
  • Greatly improved [ ]
  • Slightly improved [x]
  • Stayed the same [ ]
  • Slightly worsened [ ]
  • Greatly worsened [ ]
  1. Current response (if you’re still using) OR Response in the time before you stopped the treatment
  • Greatly improved [ ]
  • Slightly improved [x]
  • Stayed the same [ ]
  • Slightly worsened [ ]
  • Greatly worsened [ ]
  1. Lasting changes to initial symptoms after cessation (if you have stopped for more than 3 weeks)
  • Greatly improved [ ]
  • Slightly improved [ ]
  • Stayed the same [ ]
  • Slightly worsened [ ]
  • Greatly worsened [ ]

What are my symptoms: full PFS… total body decay and wastage, homeostatic functions wrecked
What was I hoping this drug would do: kill me. Or reduce fatigue and distract me from pfs enough to focus on work for a bit
What did it do: Consolidating all my notes and updates on this. This was prescribed by my GP for fatigue. One 10mg pill first thing in the morning takes my mind off my compounding symptoms and decay and allows me to work and function. I’ve experimented with higher and lower dosage and taking at different times during the day and this so far has been the most effective. It does cause a rebound nasal congestion for me that I’ve been treating with 12hr nasal mist. This medication takes a few days to work so if you try it don’t expect miracles right away, in fact the first time I took a full dose I was crazy amped up and couldn’t sleep…that passes. It takes a couple hours to kick in and then starts to wear off after another couple hours. Some people take another dose but I didn’t find that terribly effective…for me the momentum of the first dose has been sufficient. Will update when/if this changes.

**update: I noticed the effective duration has been diminishing so yesterday after 10mg at 6:30am I took another 5mg around 10am and this combo seemed to do pretty well to get me through the day without nodding off.

1 Like
#30

I find dopamine foods and the sun are the worst things for fatigue

#31

hey there. i’m very interested in your story, would you be able to talk over a voice call? i cant private message on here for some reason

#32

That sucks for me then because those are my favorite foods and the sun is my favorite star.

#33

They were for me too until they started nailing me, I didn’t realise at 1st but I began to feel sleepy for no reason. Overtime it go worse. Ie the sun was good for me up until 2 years ago. I’m wiped out by it now it might not be the same for everyone same with my muscles and tissue they collapse even more with dopamine. Its like everything has been turned upside down for some of us. What should help has a negative effect I guess its the over expression. But it still doesn’t explain the constant deterioration / erosion in some of us

1 Like
#34

Yes time is not our friend.

1 Like
#35

Yeh about 4 years ago I was still eating extremely healthy foods. Veg, salad, fruit, lean protein and that was it . I m1ostly still had my physical frame but every few days I turned into a gibbering irrational wreck and then realised it was what i was eating. I changed my diet and got a boost similar to the bounce people get when they come off fin. From then I slowly became sensitive to more and more stuff, lost a load of muscle overnight and my face started to change. I must be deficient in so much now even though my bloods show fuck all. I have food cravings around the clock. I can never satisfy them, I think that’s the hormonal imbalances I expect anhedonia, irritability, anger etc weakness, tissue loss are all linked to us not being able to process dopamine. Some kids have been better on cigarettes and booze which stimulate dopamine but it’s generally a temporary upturn only. For some bizarre reason different antagonists can help for a short while then the resistance builds in the form of a crash is that the immune system at play we’ll find out one day???

#36

I started PFS like that. Before PFS my appetite and activity were so regular and predictable that the moment I experienced an anomaly I knew I was fucked. I could tell right away that food was not converting to energy and that cells were going to die and they did. Then for a while my appetite was fairly normal. Now for the past week I’m back to always hungry and dizzy which I assume will mean accelerated tissue loss.

2 Likes
#37

Fucking hell

1 Like
#38

My appetite is greatly diminished with pfs. I’ve gone through periods where I would just lay in bed for 2 days at a time. Would skip a day or 2 of eating and barely even notice it.

These days I mainly just eat for dopamine/pleasure as it’s one of the only things I can still get some sort of enjoyment from.

4 Likes
#39

Gum recession is terrible, moves this into a whole other ballgame. Upper front gums have been steadily rising and yesterday left front tooth started to hurt and it still hurts. It makes my whole face scrunch up…mouth, eyes, forehead too. Guess this is just going to become more pronounced as the clock ticks. Time is not our friend.

#40

Exactly how my gums started 6 years ago Desensitising toothpaste is the only thing that helped in terms of the discomfort usual stuff for gingivitis etc only aggravated the problem so I’d be mindful. I think it’s the breakdown in collagen that you’re seeing elsewhere in your tissues. If I can offer up anything I’d say it slows down with time. .

#41

This is an update on lorazepam…the OP is too old to edit apparently so here’s the form since that post pre-dated the form

Self-reporting form

  1. Name of the therapy/substance: lorazepam
  • Dosage: 1mg
  • How often you took it: now a couple nights a week
  1. Status
  • Still using [x]
  • Stopped with no lasting change to initial symptoms [ ]
  • Stopped with persistent change to symptoms [ ]
  1. Duration of use: Days [ ] Months [4] Years [ ]
  2. Response when you started:
  • Greatly improved [ ]
  • Slightly improved [x]
  • Stayed the same [ ]
  • Slightly worsened [ ]
  • Greatly worsened [ ]
  1. Current response (if you’re still using) OR Response in the time before you stopped the treatment
  • Greatly improved [x]
  • Slightly improved [ ]
  • Stayed the same [ ]
  • Slightly worsened [ ]
  • Greatly worsened [ ]
  1. Lasting changes to initial symptoms after cessation (if you have stopped for more than 3 weeks)
  • Greatly improved [ ]
  • Slightly improved [ ]
  • Stayed the same [ ]
  • Slightly worsened [ ]
  • Greatly worsened [ ]

What are my symptoms: silenced AR, head to toe soft tissue loss and disfigurement, fatigue, insomnia
What was I hoping this drug would do: kill me or help me sleep
What did it do: helped me sleep

I’ve been using this sparingly to avoid tolerance and addiction, alternating with zolpidem which worked very well pre-PFS but not as good now. Lorazepam is a much nicer and more natural feeling sleep than the zolpidem. But one thing I can’t get out of my head is @Titan1’s comment that if he could change one thing about his PFS experience it would be to not develop a benzo addiction. And lorazepam is the benzo he was addicted to. That’s heavy shit.

**update: lorazepam stopped working so I stopped taking it. No after-effects or withdrawal symptoms as far as I can tell. I’d been taking 1mg two or three nights a week for about five months.

#43

Yep that’s life now. I would kill to respond to caffeine and alcohol again

#45

You’re lucky in that regard, it’s a subtle torture. What’s your worst symptom now?