Hey, man.
Glad to see you didn’t get worse. It’s also good news that you don’t have any physical debilitating symptoms.
Keep us updated.
This month has been relatively stable for me. I was looking through my journal back when I obsessively documented things and a month ago it looks like I had more severe ED and almost no libido. Seems my improvements were right around the 2 month mark. Now I have more frequent flashes of libido and my erections (while not standing anyway) are more reliable I feel and consistently stronger. Brain fog and tinnitus were there a month ago too, and now are rare. I still feel like my emotional colorwheel needs some filling in. Also knee pain is a recent development but manageable.
Nice.
Glad to see that you’ve improved.
Are you planning on adopting some regimen or will you wait it out?
I’m thinking about it. In the near future I will probably do some fasting and see if this helps.
Ate some gingko leaves off a tree the other day and went swimming. I noticed while changing that my flaccid wiener was not shrivelled like it normally would be. My mood was heightened and I was laughing on my bike ride for no reason. I went to a book store post swim and was really horny in the book store. Cuddling with my girl felt great. It was awesome. But then I ate some again and noticed blood in my stool so probably won’t do that again. I’m gonna try making it into a tea and see what it does for me.
I would tread very carefully with ginkgo, see this post
Oh shoot ok I appreciate you sharing that
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I was reckless with gingko and I regret it so much. Couldn’t get it up at all just now. I pray I didn’t permanently kill all the progress I made in the past months. Do people recover from gingko crashes?
Sorry to hear that, man.
Are you sure it’s the gingko and not just some random crash? Sometimes I get that, too. A few days ago, I had a mini crash and my back started hurting again. Today is much better.
It could have been a combination of factors. When I tried last night to get it up I was in a horribly anxious state which is obviously not conducive to good sexual performance anyway. I tried masturbating again this morning and things seem to be back to baseline (thank god) so I could have just freaked myself out. I hope it stays. Regardless I won’t be trying that again for sure. I never want to go back to the state I was in a few months ago and I was an idiot to put my progress in jeopardy like that. No matter how bad I want to get back to my normal self I have to remember that I’m so fortunate to have at least come to this point where lingering sexual sides are my biggest concern. Glad to hear you’ve bounced back from that mini crash!
Hi all,
I haven’t had much news to share, so I’ve just been reading on here when I return. But I’ve been running/sprinting, weight training, and eating cleaner (and way more meat) for the past few days. And last night I had sex and stayed erect even after finishing which hasn’t happened for some time now. I’m not claiming this was caused by lifestyle changes just yet, but I’ll keep you updated on any changes. Best
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fell off the bandwagon with diet and things for a little bit. But dialing back in now. I am currently taking a cocktail of lemon, water, wormwood, clove, black walnut morning and night and drinking this tea called liver cleanse that has licorice and peppermint and things. I’ve cut way back on sugar and carbs. Meat, eggs, and dairy are mostly what I’ve been eating the past couple days. L-Acidophillus once or twice a day. Also been running and lifting some.
I noticed since trying to do this a week or two ago my penis has been warmer and less often shriveled. This is especially exciting because it is happening as weather is getting colder. It could be like 80 degrees and my wiener tip would have been cold. So that’s something to feel good about. Also I’ve been experiencing more oil on my back, face and genitals. Very pleased to see hints at normalcy like this. Today I had an erection that wouldn’t go down but libido and ED are still waxing and waning issues for me. I also felt pretty intense sadness for a second which actually felt awesome. Just to feel emotion that deeply felt good! It’s strange, but I’m sure some of you can relate. I finally broke down and made a doctor’s appointment too. That’s all. Best.
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Hey brother.
Glad to see you continue improving. Wish you more recovery.
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I’ve kicked the herbs. I am on a second cycle of L-Arginine and L-Carnitine. I was going to wait a week to start them again, but I’ve been seeing someone and wanted to feel confident in the bedroom so I only waited 5 days. My first cycle I gradually worked up to three doses per day of 2g each. I noticed improvement on and off these supplements.
I went hard on this occasion to be safe and took 3g Arginine, 2g Carnitine. Then 3.5 hours later I took another 2g Arginine, and 1g Carnitine. Sexual function was really good. I probably could have gone for a second round if I wanted, but I was happy with my victory. Sensitivity was still sub-par. But erection quality was good and stayed even after orgasm. Also, up until this dose, my testicles were small, but they feel like normal size again! Skin is oily more frequently.
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Had my doctor’s visit today. I was astounded by how unsympathetic and dismissive he was. Such a shame. He talked to me about how safe this drug is and how he has several patients on it with no problems. He said it’s highly unlikely that we can attribute my list of side effects to the drug. Whatever. I don’t know why I expected to be heard after reading anecdotes from you guys on here about your experiences with medical professionals. But absolutely FUCK that. I was livid.
It made me really grateful for this forum. Just to have people who understand and can empathize makes this a lot less isolating. So thank you all.
Anyway I got blood drawn (nearly took me out! I was on the floor, overheating, and with terrible nausea. I had never gotten blood drawn before and I don’t know that I want to again lol), and also got this bitch ass doctor to write a script for Cialis to get me by, though he was reluctant. I’ll share those results when I get them. Today my sexual function was really pretty good when I masturbated. I actually kind of wanted to do it too, rather than just test myself which is what it is most of the time. I was on my knees too which I’ve been testing out more often because at my worst I can’t maintain it on my knees or standing. This is encouraging because I hadn’t taken amino acids today either. That’s all. Best.
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Something I’ve noticed is since starting to work out regularly is that I can’t feel sore until I do 30 minutes or more of aerobic exercise (running). I’ll work out my arms and chest and only start to feel it in the middle of my run the next day.
My blood tests came back. From what I did test, Vitamin D was slightly low and T was low. Makes sense as all my current symptoms point to low T. I’m confident that if I get that back up, I’ll be at a point that I’m happy with. I’ll be seeing an endocrinologist soon and in the meantime trying to naturally boost testosterone.
W—-I hope you’re hanging on. Time is a big part of recovery, so just keep going. I’m always impressed with the bravery that’s exhibited here. It’s so difficult to speak of these matters, especially on those really bad days.
I’m the wife of a guy who’s about 99% recovered, thankfully, but there’s still a lot of “sexual healing” for us to do. He won’t even get on the propeciahelp blog, and barely acknowledges the things I learn from being on here.
One thing I know for sure is that PFS is REAL. I know that there’s not a lot of acknowledgment from the medical world, and that sucks! But take encouragement from the success stories, and keep your head up (and the other one is sure to follow 
). Hopefully, the scientists & med pros here will get this drug eradicated so that lives can stop being destroyed.
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I really appreciate the encouraging words. This made my day. That’s so awesome for you guys and I’m really happy for your husband. This forum is great because I honestly lack the courage to talk about this to many people in real life without the comfort of anonymity. I hope you guys will continue to heal sexually. I’m sorry if you answered this elsewhere already, but did your husband do anything special to recover or just let time heal? Thanks again.
I made it probably a week on a mostly carnivore diet. I find it really difficult to stick to, but I noticed some benefits that make it worth trying again so I will be going for it again starting tomorrow.
-While I was on it, I noticed gyno shrink to the smallest it’s been since the beginning, almost non-existent. Hopefully if I keep it up for long enough it can go away entirely.
-Also, fat loss around breasts and abdomen went down. I returned to more or less the weight I was at prefin.
And only after I cheated did I notice the following:
-Tinnitus disappeared entirely. Up until then, it was still on and off sometimes.
-Libido was way up for a second. A few days after coming off, I was getting boners just stroking my girlfriend’s hand, got hands free boner while standing up and kissing her. It was like an urgent desire to fuck I haven’t felt in a long time.
-Dick hung more normally and fully.
All this stuff soon faded, except tinnitus seems pretty gone. But for this stuff to happen I’d usually need supplements, but I hadn’t taken anything.
If this can happen while not even really being strict about the diet and only for a short time, I’d love to see what can be done in 2 weeks to a month with a little more discipline this time.
I’ve also been turning the water all the way cold for a couple minutes each time I shower and it keeps me energized throughout the day. I’ve been cycling more and lifting some. I’m gonna get on doing some yoga and meditation too to activate the parasympathetic nervous system. I’ve glimpsed the elusive light at the end of the tunnel too many times to not chase it at this point. It’s really hard to stay disciplined but the alternative is to stay this way forever I guess. I’ve got a urologist appointment at the end of this month, but I’m keeping my hopes very low for that considering how useless the endocrinologist was. I have to start treating this as if no one is going to pull me out of this disaster because I don’t think they are.
That’s all. I’ll keep you updated with any changes.
Best!
Happy to report that I’ve kicked all supplements for a while and still my erection quality is consistently good. This morning my semen volume and quality was better too. Prefin it used to be so thick and it had a yellowish tinge to it. The tinge was back! Could’ve been thicker, but anything resembling normalcy is cause for celebration. I’m not gonna attribute any improvement to any action I’ve taken just yet, but I will share what I’ve been doing.
-2 meals a day, sometimes fasting in the AM
-Eating mostly meat, eggs (occasionally some spinach, broccoli, cauliflower)
-Drinking only Reverse Osmosis water
-Limiting coffee, trying to replace it with cinnamon tea which tastes great
-some form of exercise everyday (cycling, weights, core workouts) nothing crazy, bulk of it is cycling because I deliver for ubereats on my bike and I’ve been going hard lately. on off days though I make sure to get about 15 minutes of core or arms.
-turning water all the way cold for a couple minutes each time I shower
-meditation daily
-AM yoga
I’ve lost a bunch of weight. Libido and sensitivity still suffer and I do still need some physical stimulation to get all the way there, but it’s much easier than it’s been in the past. And once it’s up, I can count on it to stay lately which is awesome.
Yesterday I had to tell my dumb ass primary care doctor to fuck off (which felt fantastic actually). I was trying to get tests ordered to see if I have dysbiosis in the gut and he was saying how that’s not how it works, he can’t just order tests all willy nilly, it needs to be warranted by an evaluation. Sure, but his evaluation last time was that I’m a liar, and everyone on this forum is a liar and we’re fine as long as we look it on paper. I know it was totally unproductive to storm out, but fuck him. I’m sure I’ll find someone more sympathetic and willing to help my condition.
Best.
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