That’s exactly what I think.
I acknowledge that addressing apparent deficiencies in labwork is often unsuccessful.
However, I think this is the only route we reasonably have.
I’m not really convinced there will be a silver bullet that will collectively help us all, considering the symptoms & their occurrence and people’s reactions to supplements are WIDELY varying.
I think everyone has to understand their own manifestation of PFS through testing & labwork. If we had a comprehensive list of labwork, correlated with symptoms, and responses to various supplements, we could begin to start mapping different PFS profiles and see if there are commonalities.
Right now, the only documented commonality is the use our use of a large list of drugs, not even the same drug. Some people are here from taking JUST minoxidil or JUST saw palmetto. And some are here from Accutane and SSRI’s.
I’m imagining a database of bloodwork that could be paired with the ongoing database of survey answers.
I know we’re also doing a DNA database analysis as well.
It seems people assume that labwork is trivial or useless because there’s no consistency in labwork amongst us & that the response to modifying lab readings doesn’t correlate to improvements. But I think this is a mischaracterization. It could be just that we’re not assessing them in a way to notice patterns pr derive theories off of them.
I’m with you, in the boat that, I want to get as much testing done on my body. Preferably, over intervals of time to document & understand their fluctuation as well. This is the only route I have to understand what’s happening in my body.
It seems we have so many members willing to throw everything including the kitchen sink at their bodies in terms of supplements. But this is how we got here. Without a clear understanding of our hormonal profiles & playing with them using supplements that we don’t understand the full implications of.
I’m going to definitely look into getting my neurosteroids measured.