if there is any protest in Ottawa, I can join.
Yea, it seems a convention or gathering is overdue. We are sufferers, like any other disease. We should get together for our cause.
If we were to have an informal meeting, we’d have to have an informal meeting place…or we could meet online via webcam. I’m in Michigan and would have to stay local if I were to be part of a physical meeting. I have google plus and I believe skype if we were to go the online route. I mean, going online would only be a little more personal than posting to a forum but at least it would help ideas and information flow more smoothly. Let me know what you guys think.
I am from New York City and am calling on all of those who would like to get together and share our experiences. I would like to be able to have a group that could fund possibly hiring our own endo/neuro endo to engage in indepedent research into this syndrome.
Thats not a bad idea. Finding a doctor who would be willing to take us all as patients. We could pay him additionally out of pocket to incentives him into finding/solving the problem. You should start a new thread and see who’s interested. Then we could see which doctors are interested in taking us on.
there are a few people involved with the pfs foundation who will “take us on” … we should focus on research with our own organization, instead of attempting to hire our own scientists or whatever guys
We also need to watch out for charlatans I went to a doctor who only admitted to me that he couldnt help me after I spent about a thousand euro seeing him for only 3 visits.
Oh really Lennon? Name these doctors that are willing to take us on and research for us? Other than traish and Goldstein
“The Post-Finasteride Syndrome Foundation is currently in the process of working with multiple major U.S. medical research institutions to develop research initiatives into PFS. The Post-Finasteride Syndrome Foundation will release further details of these ongoing research projects at a later date.” pfsfoundation.org/research/
I dont rely on generalizations,specifics. If you can get me to the specifics I will donate directly…a lot of money.
The PFS Foundation isn’t releasing details for a reason. A reason that benefits you. If you want to wait to donate until further details are released, that’s entirely up to you.
We already have scientist who are willing to help us, I just can’t understand why the same people on this forum keep posting pure BS and are trying to reinvent the wheel?
hopefully we will know a lot more after the roundtable discussion in Italy.
What questions would you ask, and what demands would you make if you were willing to donate over $50,000 to this cause?
I’d pool money with other sufferers. Gather $1,000,000 and award it to the first research team to come up with a cure/effective treatment options for PFS