Took F for 17 yrs - Natural Recovery after stopping

Member Stories
#86

I had all my symptoms completely cured after an ACTH stimulation test where they injected me with synthetic ACTH, which is a glucocorticoid. After that I was completely cured of all my symptoms for about 8 days or so. I then experienced a very sudden crash during a period of sexual arousal. So something happened to my androgen receptors that triggered a crash. I had the ACTH test done again 2 years after and did not experience the same temporary recovery which left me very confused but seems like a lot of people with PFS can have a temporary recovery once and not experience it again. Maybe it has something to do with the gene expression side.

I’ve been interested in trying methylprednisolone because of anonymous1968’s recovery as well as my own experience with them. Also, glucocorticoids we’re studied to reverse methylation https://pubmed.ncbi.nlm.nih.gov/11296230/

The dosage that Anonymous1968 was much much higher than yours. He was given 1g per day intravenously so it was much more potent.

Even with my improvements and anonymous’ story, I still don’t know if it would help us and am afraid of trying it because of the risks you mentioned. It seems promising but also scary.

#88

I meant the dosage of methylprednisolone that he took. It would make a difference. The typical methylprednisolone pills are only 4mg a piece while he received 1g per day over 5 days. Also it was given intravenously rather than orally.

When it comes to 5AR inhibitors, I also took saw palmetto both topically and orally and that is what caused me to crash.

I did not have any improvements after the ACTH temporary recovery. It was more like before I was in a terrible state, then during the temporary recovery everything was cured and I was alive again, then I crashed again and was back to the same terrible state if not even slightly worse. All mental and sexual symptoms were cured during that time. Libido, erections, mood, sleep, skin and hair texture, etc all were back to my normal self.