2/2019 update: I figured I would give you guys an update. So I am now just over 150 days off:
Symptoms that remain:
-no nocturnals
-no spontaneous
-shrinkage
-bend to the left and up
-cell phone type buzzing in pelvis area and base of penis
-no tingling in prostate area and base
of penis
-general anxiety
-very weak thin base of penis
Symptoms that have improved a little bit:
-joint pain
-physical shaking with anxiety
-insomnia
-depression
-brain fog
Everything came back mid range for my hormones or everything was very normal. My testosterone came back at 550 but only thing is DHT At 30. My doctor said a DHT level of 30 is normal, which I disagree with pretty heavily.
My pituitary tumor came back with something small not effecting my hormones. My endocrinologist thinks that cabergoline may help with shrinking the tumor and may help fix my symptoms, which does not make sense but I want to try following his instruction. If that does not work, he said we could start on clomid and if that does not work he is going to look at some type of DHT therapy. I went to another doctor that specializes in sexual medicine in NYC and he said I have mild Peyronie’s and suggested a vacuum pump. If that does not work or help, then peryonie shots but he did not think it was necessary.
One thing I have noticed since I posted. I been able to have sex with my gf when taking daily Cialis and have noticed a major difference in my flaccid penis while on it. I have also noticed that vaporized marijuana increases my libido and sensation noticeably. The base of my penis is still flimsy, jelly like, and extra skin there.
Based on my updates, I was wondering if you guys could please help in my next course of action specific to my case or just any thoughts and feedback would be appreciated. Thanks again for all the help and support.