so frustrating

I am suffering for years and I haven’t had any improvement. It’s so frustrating. All supps and meds have only helped temporarily (if at all). My life is ruined.
I am about to give up hope.

We’ve got the media reporting PFS, plenty of doctors working on this, it’s gradually being acknowledged as a legitimate sickness, and we have lawsuits in the works. I am a lot more optimistic now than I was a year ago.

I don’t want to sound like a hypocrite; because almost every night i have suicidal thoughts but putting things into perspective helps at times.

dailymail.co.uk/femail/article-2010610/The-Ghost-Boy-The-uplifting-story-Martin-Pistorius-survived-mystery-paralysis-love.html

This guy got a mystery illness and had far more taken away from him and even after 10 years he is making improvements.

Man just read solonjk’s thread.
I don’t say it is the holy cure but it’s rather encouraging.

don’t give up keepup :smiling_imp:

i know how terrible can be our condition

i’m frustrating about up and down

ther’s a sadistic tendency in my sides, they make me believe i’m
well recovering and in ten days or in a month i make some step backward

some weeks ago i was near to claim a very good improvement, i pm mew and he wisely said to wait at least 6 months before speak

and he had reason, but i want stay optimistic

prop,
at least you have fluctuations. I haven’t had any.
All the best to you. Hope you stay better for good!

the best of you too keepup
as joez and jg said, now we have more reasons to hope, scientist and media are on our side.
recovery happens

I second joetz.

To use political-speak: history is on our side.

I posting this today as i need to vent out. I am going through a very tough phase. My stomach problems have worsened so much that i did not eat well for months. It seems some exaggerated immune response keeps the inflamation of my stomach from healing. At the same time i have allergies (after propecia) to all stomach medications, meaning i will crash if i take it. So trying to recover naturally, my weight has gone down from 155 to 112, very fast. Thank God my weight has stabilized and i am eating better. I have been through so many different issues because of this disease, it is unbelievable. ED, lack of libido, penis shrinkage (all reversed), then acid reflux disease, digestion problems, immune system problems (inflammation out of control), insomnia, panick attacks, irritability, brain fog, food and medication allergies… jesus…
It made me wonder today how can an innocent act of going to a doctor and being prescribed a legal prescription drug bring so many consequences. I never thought someone could become ill because of a medication at the time. This is something very cruel about this drug, the target market are inexperienced, young men. I take responsability for being vain and naive but at the same time i researched a lot at the time (2003) on the internet and there were no cons against finasteride on the web, only wonders (“it will even prevent you from having prostate cancer in the future”). I don’t know. All i am feeling today is the severity of the consequences i am facing is not proportional to my mistake. But hey, it is not a fair world right? Just asking for those who are religious to say a prayer for me, if you could. I need to gain weight, i am weak.
Thanks guys

hey man, i was prescribed the drug in late 2010 and the doctor, merck, and the fda were STILL claiming all sides are reversible if you quit, and they did not list even close to all of the side effects, and I heard the crap about it being a prevention from prostate cancer.

if there is a God, the people responsible for putting us in this hell will get what they deserve.

still, be optimistic, with the foundation we now have a very real chance of finding out what we need to know so we know how to treat ourselves. hang in there man, it will get better.

May God give you ,me and every body here a good health and show us the right path. Amen.

Samuel 26:10

This is so true. I think about this every single day of my life now… We were all vain and naive, but this is too much…