The Baylor study delay was unfortunate but we can’t make predictions for our current research effort based on Baylor. The researchers we have now are not just interested in doing one study, they are genuinely committed to solving this issue and they are experts in the realm of prostate cancer and the androgen receptor. This is a vastly different equation compared to the Baylor dynamic.
In terms of being disappointed. Well, if more patients got involved we would be making a lot more progress. It’s impressive what the network have been able to achieve with just 80,000 euros. 80,000 euros in respect to scientific research is a drop in the bucket. The study was supposed to cost 300,000 euros but the researchers are so interested in this condition they are only charging for sequencing. So far, only 200 individuals have contributed to research fundraising. 8 of these individuals are my friends and family. If just half of the registered users (3,500 people) in this forum committed 100 euros a month we would have 350,000 euros every single month for research. With that I can promise you there would be little room for disappointment.
Similarly, if thousands of patients did the podcast this issue would look like a public health emergency and would be practically impossible to ignore or dismiss.
Whether we end up being disappointed ultimately comes down to us. There’s no point throwing in the towel and not taking action if you plan on sticking around with this condition.