I don’t see anything new here for people to be depressed about. There’s absolutely nothing unexpected in that paper. We just simply have to press on with getting the admins the preliminary data they need to make research grant applications as well as to continue to reach out to Accutane, SSRI, Trazodone, and other sufferers to expand and diversify our community presence. Once we are a unified group of men, women, and children large in number, we can start to have a voice and obtain recognition. Then things can spiral upward.
Until we do that, no cure for us.
The era of denial, escapism, assumption that if we sit here and complain and/or commiserate enough then the world will deliver us a cure ought to be over now. I hope it’s also clear to everyone that googling herbs and popping pills we read about on Wikipedia isn’t going to get us anywhere either.
All that stands between us and a cure is our unwillingness as individuals to do work to bring it about. Hopefully it’s very clear to everyone what that work is (reaching out to other communities, getting survey filled out, diversifying our demographic, becoming too large and serious to be dismissed or ignored anymore).