sorry bp my english is not fluent, did u mean they want to avoid to post here?
i meant that maybe they could have at least one person that want to inform us in a friendly way and reply to random questions.(when is possible)
u mean that is not their business?
this could help our morale 
They realize there is a considerable amount of bickering and conflict going on here and they also do not want to be flooded with constant PMâs. As they are very busy with their respective professional lives and also helping to run the foundation.
From what I have been told and like Iâve said before the focus must remain on media attention at this point⌠we are definitely in need of more people coming forward with their personal accounts of how Finasteride has hurt their lives.
This can be done under an alias, with or without pictures. These are not going to be TV interviews but written accounts and the more of these that can be piled up, the more people we can directly cite as being victims the better.
Adding the human element to our cause is very important from a public relations perspective, saying people are getting hurt and âkilledâ by this medication is one thing. Having first hand accounts of people who have been maimed or committed suicide because of finasteride is an âace in the holeâ.
I think we all have to realize the puropse of the foundation is to promote media awareness and research. They just canât field alot of âplease help usâ emails nor do they want to argue theory. Neither helps any of us in the long run anyway. This isnât to say they arnât compassionate because they wouldnât be donating their time and money otherwise.
Speaking of media awareness, I just came across this RecallPropecia Twitter feed:
Interesting (and comforting) to note that several media outlets are now following the feed, including CNN, Bloomberg and the New York Post.
But it would be great to see even more PFS victims â along with their friends and family â follow it as well.
So letâs all try to do so asap.
Every âvoteâ against Merck and its Darth Vader-like CEO Kenneth Frazier is a vote for truth, humanity and global health.
Iâm a follower now.
Would be cool if they said precicly what they are going to do with the money. Because it would be easy to waste millions going down the wrong paths etc. Would be cool if they came up with something like a specific bunch of steps they were going to do. Rather than being too general. I would be happy to give money regularly to something like this if I knew they were putting the money to use in a productive way.
I wonder if we could volunteer our time to help them. We have a lot of guys here that I am sure would be able to put a lot of time into this. But it seems most people are unwilling to help. I recently created a thread on all of us creating youtube videos of our experience. Only me and one other person did this. Now I can tell you that these videos(can not disclose here why) have been effective but no one wants to participate.
Itâs going to awor.
Without sounding cynical. Who is keeping track of where the money is being spent?
Incorrect.
It will be put towards these initiatives: pfsfoundation.org/research/
This may involve multiple institutions, and multiple medical professionals across multiple continents. When there is news to announce about such initiatives, we will know.
I have had PFS for 6 years and it is only getting worse, i donât have a lot of money right now, but i pledge to donate 50 dollars a month. There are over 2000 members on this form if we all donated 50 dollars a month thats 100,000 a month and 1.2 million a year. Now is not the time to say you wonât pay because you shouldnât have too. This was an injustice and Merck will get what is coming to them, but now we need to unite and donate as much as we can, and get an answer. I donât want to wait another 6 years.
I will commit to $100 per month myself. Starting immediately.
Remember that there are many artists and famous athletes taking propecia.
deluxxxxx man, your English is getting much better.
I actually think finasteride is not allowed to be taken by American professional athletes. I do not recall where I read this, but I think it is true currently.
It depends on the sport and the governing agency. It was originally banned because when testing for steroids what they do is measure androgens in an atheletes body⌠so people were using it to help hide their steroid usage. In the past few years several sports have reversed the ban thou.
I will donate monthly to these guys I think we all should make a monthly donation to these guys and see what they do. We need to give them a chance. Perhaps it would be better to sign up for monthly donations rather than giving huge amounts in one go as that would give them a predictable stream of money to work with. And if for some reason they do not seem to be doing a good job you can always stop the donations.
I still think we personally can do much more for the case as individuals I have tried to have people create vids on youtube but it seems this is too much work for some. I have got over 6000 hits in a few months and I can tell you the videos are effective at getting the word out I have got many messages and I have even seen other newer videos where people said they stopped taking fin because of another personal video they saw on youtube. Our profiles here are faceless and can easily be brushed away as a bunch of âhypocondriactsâ by Merck and others. But when we add our voice and face to the message you can see this is really screwing up real people.
guys please make dontations to (pfsfoundation.org)
I wrote about my AP but seriously I am thinking to stop my treatment and give money to (pfsfoundation.org) instead.
ive already started monthly donations,come on lads this is a way we can all make a differenceâŚ
Today I donated $50 USD to the PFS foundation.
pfsfoundation.org/donate/
50 USD is not a massive amount (around 32 british pounds) but its an amount i will hopefully be able to contribute each month.
Hopefully the money will help with future medical projects and ultimately, finding a cure for PFS.
Made my second donation today. I will also plan on making a 100 dollar a month donation. I donât post much anymore but would like to thank MEW, Awor, and the rest of you for keeping up the fight.